(The time references will be weird. This was written over multiple days.)
Yesterday morning my dishwasher broke. That sucker is D-E-D. And then last night the Prius died while I was driving on Alameda.
That was after a day of no-medication where I was shrieking and shaking and freaking out about making it to a dance recital on time. It was a festive start to the day. I don’t shriek or shake in front of people I don’t live with. I save that for the Gibbs.
But you know what? I can afford to fix these problems. They are very small problems in the scope of my life. Truly, these are problems that are tiny. I will barely notice the hit to my bank account.
We already bought a spiffy-as-heck dishwasher this morning. It will work better (not hard–ours was a piece of crap when it was new 15-18 years ago), be quieter, and use less water. A total win.
Tomorrow we have babysitting lined up that will make it easy to go back up to Alameda and figure out what the heck is wrong with the Prius. Noah will be slightly inconvenienced but it won’t be a big deal.
In the past two months I’ve had something like eight doctor/dentist visits. That’s a lot of driving. That involves going to Cupertino a few times and Pleasanton a bunch. That has massively cut into my spoons for driving.
One of my friends keeps prefacing comments with, “I’m sorry things are so hard right now” and I feel a little bewildered. On one hand, things certainly aren’t swimming along smoothly. On the other hand shit dude, do I even have problems?!
My belly isn’t being more cooperative than usual but it has calmed down from the serious trouble it was giving me. My ankle is feeling a lot better but I’m still not quite up for running/ice skating. (It twinges if I pull sideways at all–but I’m walking on it more.) I am now up to 7 straight days of pooping normally. I want to throw a party.
I fudged on egg in fried rice on Friday night. By Sunday night I’m still feeling good and pooping solid. I feel so confused by my food stuff. I think that eventually I will find patterns in “I can’t have more than x amount of y food” but right now it is still feeling tricky. At this stage I’m pretty darn sure I don’t have a real allergy. Real allergies are consistent instead of being about, “Well you can have 8 oz of z but not 10 oz.” I have irritation and sensitivity issues.
I’m reading yet more books on living with IBS. The doctors who specialize in it seem to be unsure if they feel hope or not. “You will never be cured. Stop looking for more medical tests to find out what is ‘really’ wrong with you. Learn what your body needs in terms of diet and then learn how to manage the pain. It will be part of you forever. The more you fight it the worse it hurts.”
Well shit, dude.
What I’m appreciating the most is how adamant the consensus is that there is no such thing as a standard treatment. Every individual with IBS has to figure out how it works in his/her body. Much like autism! If you know one person with autism you know one person with autism and you know nothing about the disorder. IBS seems to be somewhat similar.
I’ve got to just say that I felt super validated and supported by the specialists saying that IBS patients tend to be wicked sensitive to medication and are often unable to medicate for their problems because the medications are more problematic. That is a huge validation point.
I’ve already been on every medication they recommend. Can’t take them.
Why can’t I? Because as much familiarity as I have with diarrhea even I have limits. I need to be able to sleep. I need to not hate myself so much that I am incapable of thinking about anything but how much I should die. All the meds recommended for IBS treatment fuck me up. I live with enough suicidality. I don’t need a fucking antidepressant that makes me unable to function through the haze of wanting to die. No thanks. And oh man the insomnia. I went about two weeks without sleeping once in high school.
My longest span of sleeplessness during adulthood was eight days and that freaked my therapist out. I don’t need more meds that make it impossible for me to sleep.
And the drugs that completely kill the libido aren’t an option. I won’t be able to survive that. And my marriage won’t survive that. Just no.
They don’t improve my IBS symptoms so having all the extra shit dumped on my lap is self-hating to such a degree I won’t do it. I’m not going to do it just so I can make doctors feel better about having “managed” me.
The problem with IBS as a diagnosis is–they do have to check and make sure you don’t have other issues. But once they check you shouldn’t keep checking. That’s a hard balance. If you don’t check to start with you don’t know if you have IBS or something much worse. Tricky.
Ok, now it is another day. I’m only sorta still thinking about the things I wrote about above. And my arm hurts really badly. Like, can’t pick up a pitcher of water and pour it with one hand pain.
We spent many hours this morning trying to get the Prius fixed. The first shop couldn’t do it. The Toyota dealership in Oakland will fix it though. It may be expensive but …
I keep feeling these waves of excitement. When something breaks I can FIX IT. That’s… a weird feeling. It’s an awesome feeling. This is privilege. When I have a problem I can just find pay to fix it. No big deal. My bank account will barely blip. I doubt that our petty cash will drop below six figures. This blows my mind every single day. I’m not poor any more.
Holy fucking shit I’m not poor anymore. When my car breaks I can just fix it. When my dishwasher breaks I can just replace it. Hell, I could walk out and buy a new car today. (I don’t want to do so and I won’t…)
I feel like I don’t have a lot of room to complain about my life this minute. Yes, things go wrong. But I have resources and the ability to fix problems. I am so very lucky.
This morning I got a call from the remodeling company. I should have an email today or tomorrow with the proposed design. Things are moving along.
And I figured out who sent the mushroom kit! It was my friend in Oregon (who is one of my big encouragers for gardening stuff). So exciting! We are supposed to plant on Christmas Eve.