I have to sit very still because I probably popped the artery with an increase in blood pressure. The nose is sensitive and the blood vessels aren’t buried deep and increases in blood pressure puts strain on thin closures. Given that I lost a whole bunch of blood clots in the last bleed that were quite large, one the size of a golf ball… I’m not done healing from the original surgery most likely.
It was really stupid to dive into a pool. I take responsibility. I thought three weeks was long enough. He said 3-4 weeks for exercise. Then I looked online (after my first nose bleed) and saw that swimming is supposed to be held off for 6+ weeks. Whoops.
It’s my fault.
Yeah… I know.
So I have an appointment this Friday with my surgeon and I’m supposed to stay as still as I can manage until then. That’s 10 solid days of sitting.
I FEEL LIKE I AM ABOUT TO EXPLODE WITH EXCESS ENERGY.
I need to be cleared for driving a long way on Friday. The following Tuesday I have appointments in Oakland/Berkeley I want to keep. I will find out the results of the ADD testing and I’ll get a genetic test done to see part of why I am so wacky when it comes to my medication responses. I hear that these days they have better ways of trying to tell why a person is wacky. We’ll see.
I am scared that the genetic testing will be, “We don’t know why you are so reactive to medications” followed by “You must be making it up” when I have a consistent 20 year history of having abnormal physical reactions to medications. Well, not even abnormal physical reactions. All of my reactions to medications follow known potential side effects. I just get the unusual and extreme side effects. They are always listed on the package as possible but the doctor says, “My other patients don’t respond this way. It is weird that you do.” BUT THESE REACTIONS ARE LISTED ON THE PACKAGE. WHY DO YOU SAY IT IS WEIRD THAT I HAVE THESE REACTIONS WHEN THEY ARE LISTED ON THE GOD DAMN PACKAGE?!
I’m going to stop and say again: my recent ER visits went fantastically well. I am going to hold on, in my mind, to this image of doctors getting to do exactly what they are trained to do and doing it well. They weren’t threatened by my weird reactions so they didn’t shame me even a little. Shit happens and everyone did their job well.
Doctors are not always shitty.
But psych patients try the patience of doctors. Psych patients try the stamina of doctors and they don’t like it.
Whyyyyyyyyy am I so treatment resistant to many of the things doctors want to throw at me to solve my problems? I think it is because solutions are way more complicated than that. I think that if my body had settled down and tried to “behave” more when doctors gave me pills… I wouldn’t have fought so hard to change every aspect of my life. I think that on some subconscious level I knew that the solution to my problems had to come in relationships and life experiences and genuinely figuring out how to stop acquiring more ongoing trauma… Pills would have prevented me from having the fierce drive to change everything in my life. I would have been more apathetic. More accepting. That would have been bad.
Maybe I had every negative side effect because feeling more-ok with not-okness would have been devastating to the overall curve of my life.
I really don’t know. I know that I try things. I know that I follow directions for how to “get better” and deal with my issues and… only some of the things work.
Mostly what has worked has been getting away from ongoing traumatization. Mostly what has worked has been finding a partner who will help me and be with me and adapt to my needs. Mostly what has worked has been having children and proving to myself that I can be a good mother. I have some value. I have some ability to do good things.
Being a good friend has helped. Seeing that I have resources to share has helped. Not feeling like I am just a pathetic eternal sinkhole of need.
If medication had worked when I was 15 and I had learned how to conform better to what was happening…. would I have prosecuted my father? Would I have pushed so hard to get the fuck out of high school?
If medication had worked when I was 19 would I have worked so hard to find coping methods? Would I have finished college and left my Owner? Or would I have… reverted to a mean? I don’t know for sure. I know that having an intense amount of drive is a lot of what kept me pushing to find new things.
If medication worked better now would I try so hard to find more books to read, more strategies to employ, more reasons to make things work on my own?
I don’t choose to have the reactions to medication that I have. I just have them. I just document them. It would be easier if I could stop doing research and working and just… coast on some extra help from a pill. But it hasn’t worked for me.
I fucking wish it would.
I’m not saying that other people who can take medications are lazy or not trying hard to improve or aren’t doing work or…
I’m talking about my journey with my individual issues. I’m a deeply flawed person. I ain’t judging you. Glass houses and all that shit.
Noah has been extra schmoopy lately. Like, schmoop on turbo.
Noah gets up in the morning because of me. Noah works all day because of me. When Noah is resting for a few minutes, he comes to cuddle up to me before returning to working. Because I’m really the whole center of his world. Yeah yeah, kids, but no. I’m it.
My mama told me that whenever two people are in love one person is more in love than the other person and that person is at a disadvantage.
I feel like my relationship has gone back and forth and right now… Noah loves me more. And I have not been honoring the gift he is giving me. I have been hurting him with that. I have been allowing him to be at a disadvantage. God damnit if I’m not proving my mama right. Fuck and shit and craptastic.
Noah does love me like I’m his favorite Disney princess. (A reference to a thing that happened online and I’m not giving context.) Noah loves me like I’m his favorite person of all time.
I need to stop being such a fucking asshole and I need to work on appreciating what I have more. I need to figure out how to fall more in love. I need to honor the fact that I am treated way better than I deserve. I need to honor the fact that Noah has changed his whole god damn life for me.
Noah gives to me the way my female friends give to their male partners. With an open hand. Without demand that I earn his love in return.
God damn how did I get so lucky in this lifetime? Sometimes people tell me that of all people I deserve what I have now. No. That’s not how it works. It doesn’t matter how shitty my childhood was. No one could possibly deserve what I have now. I just have it. Because life isn’t remotely fair.
Given how much my head still hurts, it is easy to remember that sex is off the table for a while. I have been feeling a lot of urge to snuggle and kiss though.
DO YOU KNOW HOW GOD DAMN AWESOME IT IS TO BE ABLE TO BREATHE THROUGH MY NOSE WHILE I’M KISSING?! IT’S LIKE A WHOLE NEW WORLD!!!!
I’m very excited about this breathing through my nose business.
Noah is earning a lot of adoration lately. He’s being so very nice. He’s doing so much stuff. I’m kinda compulsive about working. In order to persuade me to sit on my ass… Noah is doing most of my chores. Not all of them (and that’s ok) but enough that I really don’t have justification to get up and work. The stuff that I’m not doing right now is stuff that can wait. He’s doing everything that can’t wait.
I feel like a princess.
Why doesn’t everyone get to have a partner who will treat them the way that Noah treats me? Ok, minus the kinky sex. Not everyone is into that part. But the support, the love, the attention.
I wish everyone got to be loved the way I am loved. It feels like magic.