I haven’t had to come to you in a while, hat in hand to beg your favor. I need some kind of personal assistant/housekeeper/bossy person with great organization skills who can visit with me for a number of hours in a week. I don’t need them to do much other than be there to force me to work. If they want to help with pieces, cool, but it’s not the main point of the job. The point of the job is to keep me on task.
I am not struggling to get through the list of tasks for the kids. That’s the easy part. I can do that in my sleep. I can make sure food is on the table. I can get most of my shit done.
I am struggling with the load of paperwork that is now mine. I need to get paperwork dealt with on a lot of different levels. It freaks me out and I shut down and then I can’t do it. This is where Noah and I traded off who did what based on when our brains shut down. I feel like, literally, the place where I am failing is with executive functioning to do the adult bureaucratic stuff.
I never took the SATs. I never took any kind of exam for grad school. I simply showed up and they let me in for both undergraduate and graduate school. I have skipped a lot of steps in life. I ignored them like they were irrelevant and magically I did ok until I didn’t. I am still hella salty that I was too poor to get disability accommodations and that’s why I don’t have a graduate degree. Oh well.
Once again I act like qualifications are irrelevant and, by and large, they turn out to be. I am not sure how to deal with the stuff I can’t side step. It’s not that I need someone to do it for me. I need someone to be my audience so I’m not allowed to freak out.
I feel bad about this. I am more functional, for some things, if I am being watched. I won’t ask the kids for this. It’s awful. I come out to the studio intending to work on it and instead I find I have now finished Sandokan. It was vaguely cute? It was popcorn.
I have to get this stuff done. There are consequences if I don’t. This is where I am all “Oh, yeah. This is why I have been labeled with having a disability. This failure junction. Awesome.”
I miss Noah so hard. He would have had the citizenship paperwork in weeks ago. I am flailing. Also we are on our third fucking virus in a month. Everything feels so hard. I am so tired. My body is not enjoying this constant illness. When I mentioned it to an NHS doctor she said that we aren’t out of our house enough. We need more exposure to germs. Thing is, we are all a collection of weird long term health problems we have acquired from viruses. This is not going so well for us.
I wait until we are out of the range of contamination but I can’t wait for complete health before we return to activities. We’ve been coughing for about four weeks now, since the first one. Eventually we restart exercise and classes despite coughing the whole time. We aren’t contagious. We are simply not getting better. Then we catch a new virus and it goes through the house like a horrible domino video. Those things low key freak me out. I see them as indicating health problems and how they spread through communities. Ugh.
Ok universe, that’s all the time I have. I have some non-dairy mochi waffles to try out.