Tag Archives: parenting

There is always a cost

I am so worn out and I am trying to both rest and catch up and it strikes me that they are diametrically opposed. My growing zone has an annual last frost date somewhere between the last 4 days of April and the first 5 days of May. There was snow on the ground last week. Because of the world-wide problems with insect die off it is widely considered wise to wait until the average temperature is 10C or above. This is slightly hilarious to me because only July and August have night time averages above 10C… the average is 11C. Does that mean we shouldn’t ever disturb gardens here? It’s a thought to ponder. (Waiting until the temperature rises is because bugs hibernate when it is cold and if you go out and tidy up your garden you may well kill off a generation of wee beasties unintentionally.)

Tasks I need to perform:

  • install bike pulleys
  • install trailer pulleys
  • build a better compost unit (my pallets are all rotting and sagging)
  • sift my compost pile and distribute the lovely material around my garden
  • get some fertilizer on my hydrangeas and all the food plants
  • finish taking apart the old shed for boards
  • build the potting benches for my poly tunnel and the raised beds I want to have in there
  • weed, always weeding around the fence borders because the ground elder is fierce
  • get more wood chips and cover more grass with it because by golly in about 4 years I will have subdued it enough to make a serious start on alternative ground covering plants
  • get more seeds because I only had like 5 packets of veg seeds left, and they were mostly gone in any case, and I need to get cracking on starting this year’s plants
  • figure out storage for the mountain of costumes I brought home from Texas
  • respond to cafe owner about holding meet ups for the youth group
  • schedule a walking munch and the 101 workshops
  • clean my dang bathroom
  • tidy up my room because right now it is a royal mess
  • restart the subscription orders from the grocery service
  • do a bit more pushing with the mum bike group to get some activities scheduled
  • figure out when the group camping trip is happening and get myself organized for that
  • install the trailer hitch on the new bike so that I can have towing capacity when I have extra passengers
  • get YC more time out on the balance bike because she has nearly outgrown it and I don’t really want to buy a bigger one I want her to progress to pedals, dangit
  • schedule with a freakin roofer
  • schedule with a plumber for the apartment bathroom (the sink is leaking)
  • schedule getting the retaining walls repaired around the property because it is past time
  • I really should be reading books because, dude
  • don’t forget the damn skin care routine
  • oh yeah I should eventually have sex with my husband
  • all of my kids could do with some one on one time because they are all feeling super needy and emotional
  • I really need to organize group bicycle skill training for my family because my instructions are not adequate to help all of them know what they need to know
  • I need to organize specific training in bike maintenance because this is causing a lot of fighting and fussing and it is driving me insane
  • I should submit data to the national database about when my fucking fruit trees are in flower because tracking this stuff is important
  • the XR people would really appreciate it if I took on more duties, as would the allotment people
  • oh yeah, I also need to schedule some physics experiments because my kids really don’t understand some basic elements that would make cycling go better
  • I need to sit on my kids more industriously about working on their school work because that is literally one of my main jobs
  • I haven’t touched up the sloppy paint areas in my room I was going to come back to
  • I want to move the white board from the kitchen into my bedroom so I can use it to track forking lists like this
  • I also want to change a bunch of how I store things in the kitchen/dining room/laundry room because the current set up is inefficient, sloppy, and difficult to keep tidy
  • I should also be more industrious about exercising and eating vegetables and going to fucking sleep at a reasonable time

Yeah. Fuck me. I still have almost constant headaches and neck aches from the concussion. The sensitivity to light is really bothering me but I have to push through it anyway. I am still feeling stupid and like I am not retaining new information. I feel unmotivated and weary and frustrated at basically every moment of every day.

Visiting Noah’s family was intense. I feel like I understand the dynamics a bit better. I have much stronger opinions about what I would guess for various folks’ diagnostic labels but I try not to say those out loud too much because I am not an expert and I am not seeing any of these people in any kind of professional capacity so it’s a dick thing for me to call out. However, it helps me decide how I should respond in terms of my own behavior and as long as it is my opinion and judgment and it exists in my head and I’m not trying to influence other people I think it is ok. It’s funny to me how much I can now go, “Oh yeah. I’m trying to place a rules system around this topic because that helps me understand it.” I don’t want to make other people agree with me or change… heck I don’t plan to see any of those people again for 3-5 years. I will barely communicate with them through rare letters.

I believe it is important for me to think about things in this way because I have to think in a long term way if I am going to manage the historical trauma my children have inherited. I happen to be a big believer in the epigenetic nature of trauma. The things that happened to their parents impact them. The things that happened to their grandparents impact them. The things that happened to their great grandparents impact them. That said, neuroplasticity and resilience count for so very much. And let’s not discount the benefit of various levels of privilege.

I don’t need to try hard to control other people. I need to know what I need to think about when it comes to my own behavior and what I am modeling for my children. That’s what I am doing here.

I mean, I can worry about the gardening and the social life and the academics and the house maintenance… but what I am actually fucking doing here is figuring out how to raise people who can come from a fairly intense amount of ancestral trauma and thrive. Their mental health, their resilience, their ability to grow and change and find a better path is what I am fucking doing with my life.

I lose sight of that. I get mired in the weeds (literal and figurative) because it is easier to put my head down and just do whatever is in front of me. When I do that I invite inconsistency and acting out unconscious patterns. I invite the repetition of behaviors that have already damaged their bodies through their inherited genetics and what the fuck am I doing; I know better. I don’t need to shove them through survival. I don’t need to create lists of tasks so long that no lifetime can contain them all and then convince my children that they are inadequate if they aren’t working their bodies into dust.

Life is not about grinding yourself in a mortar and pestle. It’s just not. There are costs to those behaviors and attitudes: impatience, lack of understanding, lack of dignity, unkindness, addictive behaviors, unhealthy bodies and minds.

Noah’s grandmother survived, but the costs her children paid were so severe that they cannot bear her presence. There is duty there, some of them still serve that duty, but there is no love. Her grandchildren can barely tolerate her. Her great grandchildren are split on despising her or on not knowing her. She accomplished fairly impressive things. What was the cost? She lies on a bed alone in a room day after day. Most of the people who have ever known her have no interest in her company. Was what she accomplished worth the cost?

Noah’s mother mostly has good relationships with her children. Noah fleeing the nest as early as he did and with such intensity seems to have made a lasting impression. She worked on her behavior. She came to therapy late in life but she did get there. That’s something. Is she perfect or healed or a person I would want to spend much time with? Oh goodness no. But the difference between how she acts now and how she acted when I met her over 15 years ago is dramatic. Not different enough for me to leave my children alone with her, even though she did ask politely.

I have stopped looking at the long run. I no longer weigh and measure how I behave based on the relationships I want to have with my 30 and 40 year old children. I am sloppy. I am messy. I am inconsistent. I am pursuing short term goals at long term cost. That is stupid. I am not modeling what I think should be modeled. I am not showing how to make better choices with a joyful heart. I am dragging myself through a series of tasks and I am short tempered and impatient. I don’t think I am being vicious but that should not be the bar. Frankly I am not happy with how I have behaved for a while. I’m distracted. I’m snippy. I am not performing the behaviors I believe are necessary because I am wearing myself to the bone on things that matter so much less.

This is not what I want my children to remember. Do I think they need to have some challenges and some difficulties in life in order to build resiliency? Of course. That doesn’t change the fact that I don’t want to be outward focused. I want to be focused in on the people I made commitments to.

Krissy, you know who you are supposed to be. Go fucking act like it. Or you will pay the cost.

This feels healthy.

I think this would have been mostly our approach if we had stayed in California but it is a little bit hard to judge. Over the past few years Noah and I have increased how much we drink for a whole bunch of reasons. We both still drink a small enough quantity that a Scottish doctor will laugh themselves off their chair at the idea that we might have a problem with drinking. But we have a drink a few nights a week and rarely more than that in a night. (Ok, sometimes the drink is stiff.) The older kids ask for tastes sometimes. Middle Child asks slightly more often than Eldest Child and EC occasionally “sneaks” a little bit of something. I put sneak in quotes because she always tells us that she has done it and asks if we are upset.

That has been kind of a consistent theme with her lately. She is pushing boundaries on doing things on her own when no one is around to witness but she doesn’t push that hard or that far and she almost always feels super guilty and fesses up really quickly. Like: I put the baking chocolate/candy in a little plastic box with a 3 digit code on it. She spent weeks figuring out the code then stole some M&M’s. When I finally noticed she laughed hysterically and confessed her prank and immediately offered up more money than the candy had cost to start with. On her own she poured a tiny little bit of the Jammy Red wine and drank it. I believe her that it was a very tiny amount because I didn’t even notice the amount in the bottle change.

The other day MC asked if I would pour them a little bit of the white chocolate liquor that I like a lot. I poured about half a shot glass. They took two tiny sips and declared themselves sated and handed it back with most of it remaining in the glass. EC very much likes a particular brand of cider that I get and when I open a bottle she asks me if she can pour some of it in a cup and share. The whole bottle is 2 units of alcohol and she takes about 1/4 of a bottle. I don’t see a problem with that.

I feel like each kid probably consumes about a full unit of alcohol over a two month period. But they are adventurous and eager to find out what they like and they are developing strong opinions about brands and types of alcohol. Mostly they don’t like the vast majority of strong stuff and that makes me pretty happy. They almost always have a little bit and then say, “Ok I feel that. I’m done.”

I don’t remember seeing anything like this when I was young. When young people got their hands on alcohol they would chug it as fast as possible even when they thought it was horrible. I feel like my kids will be able to go to parties as young adults and only drink if there is something they really like and then not to excess because they are learning what it feels like in their body to just have a little.

Noah and I model fairly conservative habits around drinking. I am not sure when he was last drunk. I really struggle to remember a time when he has ever been woozy or more than a tiny bit extra goofy–but really who could tell when he is such a super dork all the time. (I read him the last couple of sentences and he says he has been drunk and I just didn’t notice because he was low-key about it. Oh, ok then.)

I got super drunk one night by myself super late. I was hanging out in a chat room and I got super silly and it was really fun. Then I went off and brushed my teeth and went to bed and it was a normal day the next night. I also got super drunk night one night when I went off to see friends on the East Coast of Scotland last summer. Like rolling around on the floor singing along with silly songs, drunk. I think that is it since I had kids. I don’t drink a lot.

I worry about this because I have friends who had terrible alcoholics for parents and I don’t want to hurt my children the way my friends were hurt. I am hoping and praying that I am threading the needle on modeling moderation and drinking because sometimes it tastes nice instead of drinking to cope with life.

So much of parenting is this terrible guessing game about “Ok, how am I fucking up my kids?” In this way I feel like we are not doing too terribly. I hope it continues to go well. Of course we are following Scottish law and Youngest Child is not entitled to taste our drinks until she hits the ripe old age of 5.

I shit you not. That’s the rule in Scotland. Children under 5 can’t have alcohol. I guess her next birthday is going to be a real banger. I’m kidding. It is pretty funny, though.

Insults in action

Eldest child has decided that she is one of those ridiculous gamer people who call everyone (including me) “bruh”. For reasons that follow my usual extreme lack of logic this bugs the crap out of me.

Years ago she was saying/doing something where she was trying to “set someone straight” in a sassy voice and I said, “You got that right, sister.” She narrowed her eyes and and did the cat butt mouth and told me that I don’t get to call her that.

So last night when she started calling me “bruh” I said, “If you call me ‘bruh’ I’m going to start calling you ‘sister’ alllllllll the time.” She narrowed her eyes at me a little bit and carefully did not do a cat butt mouth (because I totally made fun of her for that until she stopped doing it) and then said…. “You know… I kind of love that our big name calling exchange is to refer to each other as siblings.” I skipped over and kissed her on the cheek and said “Me too.” Then she smiled and leaned her head towards me for a nuzzle.

ETA: I forgot to write down the funniest part! Middle child said “You also object to mum. Why are you so picky about names?” I said, “Because I’m not into mums. Definitely not my favorite flower.” MC said: “Yeah you aren’t into mums because you like dads!” I said, “Well I am into MILFs but that’s kind of a different thing.” MC looked puzzled but EC exploded across the room with “AHHHHH I CAN’T KNOW THIS” then she bolted across the room to glare at me as I laughed and laughed and laughed. She is feeling super smug lately about how she knows everything that can be made into a dirty joke because she is on the internet. Once in a while I am a twerp and I let her know that she isn’t the only one who can make dirty jokes. It cracks me up.

A while later I almost went up to bed without writing in the five year journal the kids just got me. Big eye roll here. Two years ago they both got 5 year journals in their stockings as a way to get them to practice handwriting just a little bit every day. This year they decided that if they have to suffer so do I. Well then! EC poked fun at me for almost forgetting then gloated about the fact that they will finish two years before me and she’ll be 16 when she finishes the book so I won’t be able to make her start a new one. I countered that oh yes I can. She said, “But I’ll be too old. You can’t tell me what to do by then.”

(Based on a reference to a comedian I watched a bit ago and I repeated it to the kids) I said: “Oh I’m going to be the whitest Mexican mom you’ve ever seen and if you sass me when you are 40 and married I’m still going to send you to your room. And you will go.” She furrowed her brow then gave a deep sigh and said, “Yeah. That tracks.”

What’s funny about that is I think I have only sent her to her room like once in the past two years because she was being unbearable. It’s not like that’s a big part of our relationship. With EC in particular usually all I have to do to let her know that she is over the line is to glare at her. She absolutely hates it and will crumble under the force of it. She still puts her hands up in front of her face so she “can’t see me”. Then she will loudly announce that she can’t see me and thus I have no power over her.

People ask me how often I hit my kids to get them to cooperate. Ha. My parenting is pretty much force of will, baybee. Also super long “discussions” where I explain that I am right and you are going to understand why I am insisting on (thing). For a few more years you don’t have to agree with me you have to obey. Then you’ll be an adult and we have to negotiate more.

Except for sassing me. Then you can go to your room.

If you need to hit your children to enforce your will you have already lost.

An affirming phone call

I want to write this down so that in the future I can remember this feeling. I talked to a buddy in town yesterday; she works in special education in an autism class. This is sometimes complicated for her because her training is entirely in language teaching (usually foreign language to mainstream kids) but this was the job she could get around here. She has been given very little additional training/teaching so she is figuring it out as she goes and reading books on her own to help her in her job. Also worth mentioning that her daughter is Middle Child’s best friend.

We talked a lot about what I’m seeing and what I’m trying to figure out with regard to helping MC. We talked about the areas of severe academic delay (specifically: MC is effectively reading about 4 years below grade level and writing 5-6 grades below level) and the complications that occurred in the classroom when MC attempted to go two years ago. We talked about dynamics in our house around chores/getting stuff done.

She was very clear that she didn’t have a lot of specific advice but she was a sympathetic ear and she talked through her experiences working with families in her classroom. She understands why I am not super keen on pushing more in the direction of the National Autistic Society help and why I have the worries I have. I talked about Auntie who is in her 80’s and has her three adult children living with her because none of them can take care of themselves and live independently. I talked about my brother Tommy and the way he physically abused his entire family and why the tantrums/violent outbursts are so triggering for me.

Side note: in the past couple of weeks it has come to my attention that pretty much all of the friends I have met here have basically no idea that I have/had siblings and they know nothing about my traumatic family background. I made a couple of comments recently in context in conversations in completely different groups and they all responded with extreme shock and complete surprise. “How have I been talking to you for this long and I had no idea any of this happened?” Well… I don’t trauma dump anymore. I don’t share my mental state by and large with newer friends here. It isn’t relevant to mention any of these things if I’m not going to talk about anxiety/depression/trauma. So I don’t. This is part of my strong feeling that I am never again going to make a close friend where I talk about the really hard stuff. I will have surface friends and basically shut the fuck up about my brain going forward. It’s not safe to talk about. I can no longer absorb the consequences of being honest.

But I do sometimes need to talk about educational stuff and I need some amount of support around that. We talked about classroom strategies that she uses and how functional/useful they are for my child. We talked about the possibility of Youngest Child going into school here and the likely outcomes of that.

It is her professional opinion after working in special ed in local schools for several years that my children really are better off at home. The resources are thin on the ground and are only available for the most extreme cases. MC has already been on a waiting list for assessment for over two years and it could be another year or more before they are seen. YC would be looking at four or more years given how the waiting list has expanded over the past two years and possibly more like six years. The resources for private assessment are many hours away and their waiting lists are closed because they will not be able to get through any additional patients any year soon and they don’t want to have a waiting list that goes beyond two years. When they do reopen their waiting lists they will have a strong preference for siblings of children already in their system. Even if/when my children managed to be assessed there are very few resources available for kids at their levels. (She knows my family and is comfortable stating that.) Autism resources are only available for kids at the most extreme/non-verbal end. AHDH resources are pretty much limited to medication or being taken out of a mainstream classroom and not taught much. Other Pervasive Non-Verbal Learning Disorders are pretty much ignored entirely.

She and I have had many a chat over the years about our classroom experiences with special needs and the differences between what is given to 504/IEP kids in the bay area and what is available here. She contrasts this with what is given in her native (other European non-English speaking country that I won’t name for a vague gesture in the name of privacy) country and she is of the opinion that my level of training is higher than any co-worker she has ever worked with. She thinks American understanding of education and specifically special education for disabled kids is head and shoulders higher than anything available in Europe. She is stunned by the sheer variety and kinds of books I have read in order to be a more appropriate teacher for my children. I had previously mostly focused on the ADHD/dyslexia/general atypical neurodevelopmental needs reading stuff in conversations with her.

We shared the perspective that there is a very careful balance with special needs/disabled children and adults between giving them the help they need and enabling/infantilizing them to the point where they fail to learn skills that would allow them to be more independent as adults. When you are in the family you lack the objectivity to see the larger arc and how your actions are impacting your family. When you are in the classroom/an outside observer you lack the ability to see all the nuances and decisions that are creating the entire situation so you are ignorant of the full reasoning behind what is happening and whether it is necessary or not. We talked about how difficult it is for parents to hold the line and insist on many of the pieces of development that work towards independence because fighting every battle all day long is exhausting.

Then I said “And I get to be the parent and the teacher and be with my children for nearly all of their waking hours! It’s great!” She kinda choked for a minute and then gushed about how amazing it is that I do what I do with my kids because she sees the results and she sees us interact and man do I keep it together.

That was so fucking validating. She hosts MC for sleepovers pretty regularly. Her daughter is an only child and she’s pretty happy to have a friend over quite a bit. Her daughter has other local friends but has an easier time with MC than with a lot of the kids from school because my buddy and I have fairly similar perspectives on manners and appropriate ways to interact. Because of the one on one social dynamic and the fact that MC is highly motivated to be liked by people outside the family MC really shines in these visits as they get to show off their pride in being able to help with household chores and how to speak with people.

It’s really fascinating seeing how my personality plus my parenting techniques interact with my childrens’ personalities and needs. MC has a very strong basic need for control and a lot of anxiety around demands being made of them. However they have been raised in a 24/7 environment where there are very specific high standards about how we talk to one another and “we are workers, not shirkers” is the family motto so they have adapted their need to not be directed in somewhat surprising ways. The PDA profile fits them to a T and I can go down the list explaining all the ways they resist/avoid work… yet they still manage to do a significant amount of work because of the desire to be a “good citizen of the household”. It’s complicated/complex.

MC has very much internalized that a lot of the ways I am strict/intense in my demands are because of my internal terror that I will fail them as a parent and they love me; this makes them spotty in how they learn and follow through on what I ask but there is this undercurrent of wanting to try. They may take 6 fucking hours to sweep the kitchen most of the time because it is not ok with them on an internal level that they are being told to sweep the kitchen but when they go to someone else’s house and they want to show off they can do it in 5 minutes and tell their little friend all the specific tricks that make it easier/faster because they get to feel like a teacher and they fucking love that.

Hunh. I just had a thought. I kind of wonder if MC is going to finally be interested in learning to write when they get to feel like they are showing YC.

It is quite a challenge to get them to practice reading out loud to me but they do love to do it with YC. When they babysit (more like “mother’s helper” because everyone else is in the house but distracted with video calls or taking a bath) they do a lot of reading/talking about learning. Very much “Having someone read to you is the best…. let me show you.” So much of my teaching approach relies on careful observation and figuring out how to turn my kids personalities to my advantage. That and one to one teaching gives a level of intimacy that simply cannot be matched in a larger classroom. That is not a slam on classroom teachers in any way. I was not as good of a teacher to anyone in particular when I had 150 students. I did my best and it wasn’t what I can give my children.

I feel so much insecurity and anxiety about whether or not what I can give is good enough. I worry so much about letting my children down. It does so much to increase my confidence when I can periodically touch base with another teacher/educator and I can go through my approach and methodology. I do have a fairly extensive education when it comes to child development and what different special needs entail. I have worked very hard on understanding theory.

Towards the end of the call I said, “Something I am very conscious of with regards to my teaching and parenting is that I literally have more will and force of personality than most people. If I believe I am doing the right thing it doesn’t really matter how hard it is or how much time it takes I will do it. It is part of how my brain acts out hyperfocus. When I feel secure that I’m doing the right thing I have just about unlimited energy. I know that if my children were in a classroom they would lose out on that for a big part of their educational support because teachers by and large don’t have that intensity for a myriad of appropriate and healthy reasons. My kids do have special needs and I knew they would before they were born and I am fully committed to doing whatever I have to do to meet them. It is just hard and scary when I feel like I am flailing and I don’t know what to do.” She said that matches what she sees and my kids are lucky to have me.

I feel a lot better after the phone call. I do cycle through novelty. I do renegotiate how things are taught and what things are taught. I do hold the line on “You have to learn a basic level of functionality in order to be an independent adult and we are going to get you there.” I do push/encourage my children through learning and growing in ways that overall result in them liking themselves the vast majority of the time. Even when my kids struggle with anxiety there are usually pretty obvious organic/social reasons that I am not directly to blame for (obviously with the exception of genetics). I am not mean to my kids. I don’t beat them down. They are pretty happy and healthy and secure. Even when they are struggling for a while it is usually in ways that are predictable and appropriate developmentally and I help them pivot towards the path they want to be on.

I am not the shitty parent I sometimes fear I am. I am not perfect because there is no such thing. I do pretty well though. I refuse to stop learning and growing and increasing my ability to meet their needs. When I fail for a while I use that as motivation to push through towards a deeper level of understanding so I can better succeed as their needs change as they grow.

Part of the modeling I want to do for my children is showing that these periods of disequilibrium mean that you keep trying and learning and growing. You don’t give up and declare yourself a failure. As long as you are alive you have the chance to keep growing. Don’t give up on yourself. If we aren’t going to meet my personal goal of having my kids basically ready for complete auto-didact learning to finish the growth necessary for adulthood by 13 that doesn’t mean you can’t hit that mark by 15 or 18. It’s ok that you need the growth curve you need instead of the growth curve I had in my head as ideal. That is not a failure. It is a miscalibration and we’ll just keep going.

Frankly the way that MC needs to reassess every few months and needs a tremendous amount of novelty in order to keep doing things… looks like how I have managed my adult life. I go through intense bursts of focus in different areas. I have to restructure chores and tasks and hobbies regularly or I burn out. You know what? I’m not a failure. I do cool stuff.

MC will too.

Maybe that’s it?

It’s not a secret that I have long had struggles with my middle child. I adore them and love them and worry a lot about whether or not I am doing the right things for them. I tried to get them evaluated by Stanford before we left California and they got a 15 minute yes/no questionnaire that wasn’t at all useful for data on understanding them. I was frankly pissed off. When they enrolled in school here after a month the school asked for permission to refer them for extensive neurological testing because something is going on. We’ve now been on that waiting list for a bit over two years and every sign points to the likelihood of it being another two years before we get answers. But kiddo is rapidly running into puberty when everything is going to get exponentially harder. My window for effecting major change is closing.

Due to all of that I’ve been doing more research. I am heading in the direction of Pathological Demand Avoidance. (Sometimes referred to as Excessive Demand Avoidance because pathological has a bad reputation. I mean… the definition isn’t awful. The word seems appropriate. I get that colloquial associations can be complicated.) It’s not really diagnosed in the states, this is a UK recognized syndrome. But holy shit when you read up on it: https://www.childrenandfamilyhealthdevon.nhs.uk/wp-content/uploads/2020/05/pathological-demand-avoidance.pdf Oh. That’s my baby. I read it and felt strong recognition. I showed it to Noah and he could illustrate each section with repetitive conversations we’ve had in the past. I read it to kiddo and they said, “Oh wow. That sounds like me.” So whether or not we ever get to an official diagnosis we are treating that like Plan A going forward at this stage.

This has some potentially wide ranging implications for the future. How we home educate needs to change pretty broadly because neither of us can handle more years of crying all the time from frustration that they just won’t fucking do as I tell them to do. We need to find new strategies for figuring out how to get stuff done together and separately. And frankly my plan had been to use our investment money till we die and have the will put everything left towards charities. That may… not really be an option if my kids are not going to be 100% able to support themselves and work. I’m still in the preliminary stage of course but I’m looking into stuff written by adults with PDA and mostly they are not independent and able to work.

(Very briefly if you don’t want to read the whole description on that web page: Pathological Demand Avoidance is very related to autism but there is no certainty whether it does or does not fall under the Autism Spectrum Disorder label. It has enough specific quirks around sociability that it seems to be related but not the same. It is a syndrome where anxiety is the dominant part of the difficulty and the stress of being told what to do is so intense one shuts down. By golly if that doesn’t describe my baby. I’ve been saying for years that when they have a list of things to do the most likely way for them to spend the day is staring at a blank wall, numb. Or huge violent tantrums. It’s a wild card sort of option.

I don’t say any of this to complain, criticize, or put them down. I am looking to understand better so I can figure out how I need to change my parenting so my child can have the maximum level of mental health and support available. If this is what is going on I want to see what needs to happen so they can thrive not so I can figure out which levers to pull to make them change. They are who they are. I accept them and love them. But I have clearly not been handling things in the best way and it’s a problem and it needs to change. We both feel bad a lot of the time and I believe with my whole heart it doesn’t need to be that way.

We are both smart. If we understand what direction we need to head in we will figure it out. One of the ways I am that I believe verifies my own autism diagnosis/autistic personality is that I need to have a set of rules/labels that tells me how to behave or I flail and I experience a fair bit of distress. If I can figure out what label is most accurate then I can do research on what works best then I can act it out. Work with what you’ve got and the whole thing goes better.

PMDD is so awful

I am on day 42 of my cycle. I start running low on hormones around day 26/27/28. I usually start sometime between day 28 and day 35. It’s been pretty consistent since the last kid. I am… not ok this time. I can feel the complete and total lack of energy or happiness or give. My bones feel worn out and terrible. The numbness in my hands is super bad at this point. I know that a lot of that is how much I’m painting but progressively over the last week it has gotten worse and overwhelming and awful.

My whole body is hurting. I haven’t had many spells like this since I moved here. This is a California-level of pain. I feel sad and irritable and angry and disappointed in so many people and situations and results that I feel unable to cope. I am not suicidal; which is a blessing–that doesn’t darken my door much anymore. I just feel like I’d like to crawl in my bed and cry for a few days until my period starts because I am completely out of cope. In the overall scheme of things that is a relatively healthy and sane impulse and I feel proud that I am in this place now instead of where my lows took me ten years ago.

It is weird being able to list things that I miss about California and reasons that there were advantages there that I don’t have here… while completely knowing that I am overall doing better here than I ever have. Do I still have pain? Yes; particularly when I am drifting back towards California-style work habits that I know are dramatically not good for my body. Do I still have some anxiety? Yes; my anxiety here is so different. I can’t put a number on this to do like a “rate your pain” scale. Knowing that I will never run into Dan or Paul or my mother or my sister or Auntie or Anna or Brittney or or or or or means that I no longer live with hypervigilance. It’s not that I believe that nothing bad can happen to me I just fully accept that scanning the room for exits is not going to be helpful in any of the bad things that happen to me going forward. I can’t tell with a casual glance who is going to be a problem so I just… don’t.

I mean, when the dude got out of his car to yell at me and smack my hand I didn’t freeze up or start crying or react poorly until after he drove away. I stood my ground (in a suitably gun free manner) and I defended myself verbally and I took his picture. I did what I think I should do. And now I don’t scan looking for him or his car because I am pretty confident that if he ran into me in town and harrassed me again I would simply call the police and tell them we had another problematic interaction and he would get in trouble. They put a mark on his record.

I am living in a small town where the police get upset about that kind of thing between strangers. It is still hard to solve between neighbors… but that’s a whole different dynamic. Stranger assault is prosecuted.

I’m anxious about saying the wrong thing to people I am trying to make friends with. That isn’t gone but it is different from California. I find it intensely healthy for me to be consciously aware that people here don’t owe me anything. I haven’t been doing things for people for years with the hope that someday things would shift and they would support me when I needed it because they love me. That’s very freeing.

Even though typing this is terrifying for me I’m going to do it because this space has to be for me if it is going to work. Even things with Jenny have leveled off and found a comfortable stasis. We are not trying to live in one another’s back pockets because we are both cat-like and we like a lot of space. There are topics we kind of avoid because it feels like those aren’t the best ones for us. It’s feeling really comfortable and happy for me. I can only project and not speak like I really know how she feels but she isn’t expressing any dissatisfaction with our relationship. I feel like I pushed too hard when I moved here and we had to work out how to deal with each of us having our prickly points and it has worked out. She remains one of the people I love most in the world. I would bury bodies for her. If something catastrophic happened I would absolutely rescue her or her kids or her husband. I believe with my whole soul that she would show up for me in an emergency. I am feeling safe and comfortable that we have managed to find a nice place between us. I suspect in 5-10 years when our kids are older we will see each other a tiny bit more than we do right now but we are both people who are very comfortable in our own company and that’s not a bad thing.

I’m slowly working on other relationships in town and that’s slow going and complicated because people are like that. I like living here and I think it is going to be a good space for me in the long run. I worry a little about Noah’s place here because he is a lot more constrained than I am in terms of going out and meeting people. He’s going to need friends in the long run too and having them all be on his computer is mixed.

Kids are a pain in the butt. I’m just saying. This has been a bad week for me in terms of my emotional state and that’s no one’s fault. Also: my kids have been buttheads a few times and we’ve had words. I feel so intensely proud of myself because we had words. I didn’t shout. I didn’t scream. No one was punished or denigrated. “Hey this thing is happening and it’s not ok and we need to talk about why.”

Ok, take a deep breath and really feel that. Even when I am upset and I want to freak out because of hormones… we talk. I say, “Hey let’s explore some of the angles you aren’t seeing on your own right now.” When we are done they understand why I am asking for a change (it may or may not happen–let’s be real) but they aren’t angry with me for bringing it up. I understand more about why it’s going on from their perspective. It’s not ok to just silence people when they are inconvenient. Children aren’t problems they are *having* problems and talking about why is important.

It is so hard that my older kids are very much in a place where many of their problems are now things I cannot fix because it isn’t about me. The main upside of that is they are starting to feel in their bellies that it is true when I say the same thing about my problems. “I’m not upset about you. I’m having a problem.” I can see Little Girl struggling through what the older kids went through and she is directly acting out her stuff with her dolls and it’s interesting. I feel so much more emotionally/mentally distant from the process now than I did when the older kids were that size. I will roleplay with her with her dolls.

So yesterday morning I woke up and I felt awful and I cried some. It’s not because anyone did anything. Then Little Girl came in and joined me for a snuggle and she does this thing where she likes to dig her feet into my legs. Sometimes it is ok and sometimes my body hurts and it is super painful. I was already crying so of course she felt bad and took it on herself. Later she had a whole scene with her dolls where she was talking about them hurting her by poking her legs so she was putting them in time out because it’s not ok to be mean to her. I roleplayed one of the babies and talked about how I wasn’t trying to be mean; I was trying to be close because I love her. Is there a way I can be super close without hurting her? I am scared to go in time out right now because that means I broke a rule and I don’t want to feel like snuggling is breaking a rule. She was so kind and loving and caretaking with her baby. It was really wonderful to watch. “Oh my gosh! You are right! Snuggling is not breaking a rule. Maybe we should change where we are snuggling so that you don’t hit my legs and hurt me.”

My grinch heart grew three sizes.

(At this point pretty much the only rule she breaks is screaming in the house and you have to take big voices to your bedroom. This is not California and I can’t insist that all screaming has to be in the yard because of weather.)

I don’t talk about the big kids much anymore because they deserve privacy and walking the line is complex. But I do want to say that it is fascinating to me just how much they still ache for my approval. (They get a lot of it–I’m not saying this is a hollow thing.)

My Oldest Girl is pushing so hard to individuate and good golly hormones have hit her like a freight train and she has so much hostility about injustice and difficulty in the world. Saying good morning at the wrong time is fairly likely to get a stiff middle finger. I go with it. I try hard not to take almost any of it personally. We are dancing around the balancing act of “I’m still your mother so sometimes I am going to be obnoxious and I will want to give you a hug and a kiss. If you truly object in the moment you are allowed to refuse but mostly it’s a good idea to let me do it.” She is doing a lot better in terms of mental health since she stopped going to school. Things were getting really bad for a while there. We come from families that have a lot of depression and anxiety and PTSD and suicide. It would be highly unethical and neglectful for me to not act quickly when I can see my child melting down because of abuse they are receiving. She is starting to blossom again. She is returning to herself and I love seeing it. It’s going to be a process for her to find friends here and school is not going to be the solution. Her art blows my mind. She has so much talent and skill and she practices all the dang time. Her writing is fun and engaging and she is absolutely brilliant at creating pictures in your mind of what is happening to her characters. She still needs a bit more work on exposition but that’s not a terrible lacking–just something to think about and work towards a bit more. She is strong and fit and confident and willing to speak up for herself. And she’s taller than me and built like 30-something Taylor Swift and I cannot even.

My wonderful and delightful Enby is still plugging along. Puberty is happening and it’s a roller coaster. It’s interesting how the acting out is different now from when they were younger. They have so much more self control than they used to have. They still have giant feelings that are hard to manage at times but they know which direction they are growing towards/working on when it comes to expressing those feelings and they are consciously and deliberately learning skills around that. I am so impressed by the effort they put in to being self aware. They are baking and cooking and tweaking recipes and being brave and adventurous. I am sad we didn’t get a better evaluation done at Stanford before we left because they clearly have some specific learning challenge going on and I’m struggling with figuring out what it is. They really have a hard time with some aspects of education and we are trying a few different things because I don’t know what direction is the right one. They are making progress but I think they are always going to be a person who is much better with kinesthetic and active and oral learning rather than on paper learning. It’s really cool watching them learn coping skills around that. They want competence and if they have to route around an area of challenge for that… well just get on with it. They alternate between being this absolutely startlingly compassionate person and being a normal kid. I see them being on this see saw towards adulthood and it is so clearly part of the process they need to follow. They progress intensely then they regress a bit then they leap again. The more patience I show and the more scaffolding I supply the bigger each leap is and the smaller the regression. If I am impatient or difficult about the regression then it intensifies and they can’t leap again for quite a while.

It is fascinating living with these children. The Oldest doesn’t need my approval all the time–once in a while she succeeds in order to spite me. The Middle craves approval like it is heroin. They will beg, borrow, steal, to get it. They do not function well at all if I am anything other than a full throated cheerleader. Rebukes and course corrections have to be delivered with the softest of touches or they wilt and don’t recover for days… sometimes weeks. The Littlest is so small that she still needs tons of redirections towards “Oh hey it would be great if you….” “Oh golly if you do x then y will happen and that’s not good.” I suspect she is going to be more on the spitfire end as she grows. Her threenager year has been so very long.

This post brought to you by the good news that one of my buddies now works in the paint store and he is encouraged to give a friends and family discount to people and basically no one he knows buys paint. I was talking about the sorry shape of my arms right now and how I am pushing myself raising the clock before the paint dies and he told me to take a break. It won’t be nearly as expensive of an issue to fix as I fear. Ok. I will listen.

So I stopped painting a week before my purported end date. I have a ton of other work to do that has been sliding through the cracks. This will be in no way a bad thing. I am exhausted in a way that means I am not sleeping enough because I can’t shut my brain off to sleep. I’m craving alcohol like mad. I think at my next cycle of talking to the GP and psych nurse I will say that I think I am ready to both increase the Amitriptyline and the Lisdexamfetamine.

I am still on very low doses of both and getting closer to a normal dose would be useful at this point. My blood pressure readings are so so so much better on 30mg of Amitriptyline. I’m back in the high 120’s-low 130’s/high 70’s-low 80’s. There is still room for improvement but that’s not dangerous or scary. More Amitriptyline would possibly help with that. Losing weight would probably help with that.

These medications are breaking the stalemate of my weight plateau. I’m still eating whatever I want whenever I want. I am drinking some alcohol (in the range of 4-6 units/week because I know drinking is not recommended on these meds) but not nearly as much as I was. I am not doing tons of exercise because I have been in the house painting all the time but I am still doing the twice weekly yoga and I’m riding in the neighborhood of 20-ish miles a week and even occasionally getting in a decent length walk. I’m not sedentary but I’m not over-exercising in a way that would cause weight loss. So I really believe the drop is as a result of the medications at this point. I didn’t think to weigh myself right when I started the medications. The first data point I have in this year was in February and I was 211. In late August I was at 203. As of this week I saw 199 for the first time in a long time. I repeat: I am not dieting. What I am doing is taking medications that change my brain chemistry and increase my serotonin changes how my brain processes dopamine. That’s making my body not feel like it needs to hold on to fat in the same way. I’m not doing this because I want to lose weight; I am noting physical changes in a way that can be measured. Things like mood are harder.

The PMDD window is something that can overcome the positive effect of any medication in my experience. I am seriously dreading the peri-menopause experience of my cycles gradually lengthening. I expect the next ten years to be hard. But it’s not like any decade has been easy so get on with it. I am deeply grateful that I have gotten to the point where when I feel really low that does not increase suicidal ideation or fixation. I am grateful that I don’t struggle with the desire to mutilate my body anymore. It is complicated as fuck dealing with my children as they have times of feeling like they want to hurt themselves. I am grateful to the marrow of my bones that they know they can trust me and talk to me when they feel like that. Yes, you can always come in my bed and snuggle if you feel you are scared and you aren’t safe to be alone. Puberty is a horrible time and we’ll talk and we’ll get you through this.

If therapists were available they would be in therapy. I didn’t understand the depth of privilege we had in California around mental health. My entire life trajectory happened because therapy was plentiful and that would not have been possible in other places. All my kids have is me. That’s fucking daunting. (I mean, they have friends and we are making community connections…) We talk a lot about having thoughts and feeling impulses doesn’t mean anything bad about you. Let’s talk about the possible consequences if you follow through. I’m not saying I will punish you; I’m saying that once you cross the line into these behaviors there are people in the community who are bound by law to intervene so if they find out this is what will happen. It’s out of my hands. Let’s talk about strategies and ways of coping and figuring out what other things could be done instead. Let’s build habits around feeling distressed so that when something even worse happens you have some pre-built ruts in your brain for how to handle bad things. Let’s talk about distorted feelings and projecting and learning how to scan your central nervous system and what tools exist to help you feel grounded and like you can wait to act–this feeling does not require a response RIGHT NOW. For the record no one is actively suicidal, no one has any kind of plan, and people are not engaging in the sort of behavior that would involve mandatory removal from the house.

What is happening is that they both have had to deal with bullying and additionally people have been telling my daughter that she should kill herself. They are both just children and this has been hard for them. They have every predisposition genetically towards mental health struggles. Life was never going to be a walk in the park. There were always going to be dark times. But you can bet your fucking buttons that I am going to teach them how to light a candle in the dark. (I got some LED candles so nobody else tries to burn down my fucking house. Oh good grief.)

They are kids. They are all so different. I like all of them. I am annoyed by all of them. I admire all of them. I enjoy spending time with all of them. I don’t know what their future will bring but I sure hope that I get to be an enthusiastic cheerleader as they go do all the things they will do. I tell them that when they don’t believe in themselves they can borrow some of my faith in them. I will never ever run out.