Tag Archives: medication

Running in parallel

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I don’t understand the connection between wanting to have sex and writing. I see the connection between writing and medicating way more clearly. It is fascinating feeling like I have my brain back after 3 years of not feeling connected to myself in this way. This narration feels like more of my true self than any amount of being in a room with me can reveal because I will always do my best to mislead you in person.

I know the difference between being allowed to write what I am thinking and feeling and being allowed to act out how I am feeling or what I am thinking. The world doesn’t care how I feel it cares how I act. But I care what I feel. If you want to have the ability to crawl around in my head and fuck with me then you must care. I could just write to Noah, if I were actually more afraid of the consequences I would probably do that. I am getting comfortable and I’m not sure if that is good or not.

It is weird to me that I now live in a country where well actually the police might care what kind of consensual sex I have with my spouse. There are rules here that were not part of the background noise of being a Californian. I am unlikely to change enough to really be what they wish I was. The thing is, if neither I nor my husband ever complain then nobody actually knows what we are doing to one another so it’s kind of a moot point.

Side note: IT IS NOT A MUTE POINT. NOT EVER. FUCKING FORUM PEOPLE.

I do find that I am putting the more explicit stuff over on that site because it feels a little less like courting danger. I just want to gain citizenship so I can sit over here and garden and mind my business. La la la.

But I can’t. I have literally had my blog used against me in a legal mediation already. I was not a reliable witness about the things that were happening with my roof because of the swinger parties I went to. Super charming. If that, if the threat of getting in even more trouble isn’t enough to shut me up is that pathological?

I believe with my whole heart that I am not doing anything wrong. I am enjoying my sex life with my legal spouse. Hell, I’m not even poly. I do believe I should have the right to sit over here with my pot and my husband and my kids doing our weird things. Obviously the kids are not involved in the sex weirdness. And that is the point. I have a very strict filter between which people are allowed to see what and when. I mean, my children could find my blog–they know it exists. It’s my legal damn name… I’m not being secretive. I have told my children over and over since they were small children that once they read my blog they can’t unknow the things about me that they will learn and I’m pretty sure it will freak them out. Given the questions that I will answer simply and directly my children are smart enough to know that when I say, “Are you sure you want to know that” that they probably don’t.

I will off-handedly give answers that make them want to rinse their ears out with bleach. If I suggest you don’t want to know something… I’m probably not being over cautious. I am not over cautious about generic information that might influence their lives in some way going forward. I believe in boundaries and privacy. I don’t have secrets because if I will spew them on the public internet it doesn’t count as a secret. I have things that I do not tell all people in all settings. Do you understand how much time and money I spent on therapy to learn how to compartmentalise like this? Decades. Personally I have paid many tens of thousands of dollars for therapy and the state of California has probably paid at least a quarter of a million if you count the times I was in institutions.

My children do not overlap with my sex life.

For some reason I still absolutely compulsively need to write about it. This is the exhibitionist part. I think that is something I dramatically underrated about my life in the bay. A lot of what I did in the bdsm and kink communities was massively spurred on by the fact that people were watching. From when I was 18, from the second time I went to the Power Exchange the energetic interaction with the crowd was absolutely integral to the experience of being kinky.

And yet when I went to Sydney I felt really weird about the fact that the only public play spaces were performance spaces on stage in front of a dance club. That felt different for some reason? Why didn’t it just feel like BaGG? People there referred to their play as performance. At the munch I was asked, “How long have you been performing” and I twitched.

Now it seems to me like the difference between “nae bother” and “all good” and “it’s no trouble”. They are just different colloquialisms. I mean, there are nuances of difference between play and perform but most of them are about structural differences in the locations. People moving between the two locations will mostly seamlessly move between the slight differences in behavior.

When I was younger there was this really sharp divide between sex and bdsm with a lot of my friends. My friends were people who liked public bdsm spaces (I’m including house parties) and most of them do not allow sex either through explicit rules or implicit culture. Having sex is mostly off screen. Although, how do you define sex, right?

It’s all muddy in my head right now. It’s like a dam bursting and things are coming through all at once instead of in a neat stream. I don’t think I like the lisdexamfetamine. I have not been able to access this many streams of thought at once since I have been on it. I mean, I think it is useful. If my new provider (I was switched people and I meet the new one in 2 weeks) is ok with me having a much lower dose and using it as needed then I think it would have a ton of utility. But not all day and not every day. It makes me hate sex. It makes me not want to write. It makes me feel flat emotionally and unable to orgasm. I can work like a demon but that’s not all good.

I can feel in my body how I acted when my big kids were small when I use cannabis. It literally feels like my entire body relaxes and I can access all of the lanes of the superhighway that is my brain to track being a patient mother and a creative teacher and a considerate friend and a person dedicated to fitness and a person who is drawn to eating the foods that actually best fuel physical activity instead of numbing emotional and physical pain and a filthy fucking whore.

More than one thing can be true. I have nothing to be ashamed of so why should I act like what I am doing should be a secret? There is a difference between secrets and boundaries and privacy.

I am talking in circles this morning. I can feel that spiral thing happening but I don’t have time to explore it. Breakfast will be on the table in 10 minutes because that is what Noah does. He does it because I asked him to. I owe him the respect of showing up on time.

We’re All Mad Here

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I was reading an article that included the phrase “Mad Pride” about how mental illness has been perceived by society (mostly the US/Canada/UK) over time. It made me stop and think hard about how much my life has changed. I am in the closet now in a way I was not in California. There were times in my younger years where I would keep some things under wraps (I was militant about limiting sex life conversations with some groups of people) but mostly I didn’t hide any aspect of myself to such a degree that anyone and everyone couldn’t find out if they tried even a tiny bit. 

There is a big difference between “I don’t share personal stories about my sex/romantic life with students or homeschooling parents but I write about it explicitly on my public blog” and “I took my writing private so that someone would need at least a basic understanding of the internet archive in order to find out anything about me, I stopped writing about myself publicly on any topic that might be controversial and I no longer bring up or mention most things about my past and I am actively evasive with every person who does not have connections to my former life.”

It’s different. I am feeling more comfortable in the community. I feel like I probably do not have to remain quite this guarded permanently but I feel intense gratitude towards myself that I allowed myself this runway of time to have a place in the community where I am already seen as stable and competent and fairly well educated, especially in topics that are not well understood already here. I am starting to have that boost to the ego experience of having people say, “Oh Krissy I wanted to ask you about something. I don’t understand why ____?” When that something is often related to an aspect of interpersonal communication. I’m also getting more requests than I can take when it comes to organising level responsibility for different community groups or associations. And folks are asking me how I have taught my kids (thing). That’s definitely one of my sweet spots for feeling like I am not an imposter who should shut the fuck up.

It’s not that I think everyone should do what I do… that would go poorly. What I really appreciate is when people are interested in the process of how I figured out what was right for me because understanding that process is the bit that can help other people. They will have a different right answer in the end, but maybe seeing how I made decisions that align with my values will help them crystallise what their own values are so they can feel confident in their own choice. I like talking about parenting philosophy, not parenting choices. Because we are going to make different choices and that’s absolutely great. It’s mandatory. It’s as it should be for there to be the delightful variety of folks that this world needs. But the philosophy behind parenting is a place where you can discuss motivation and intentions and you can learn from each other without getting into a pissing match about technique. 

Technique is hard because it’s a minefield of traps for not understanding your own privilege when you frame what you do. Noah says that society has as much justice as it can afford. It’s complicated because often a family has as much justice as they can afford. And from family to family that is such a complicated and loaded concept that oh goodness just no. Can’t.

Anyway. The article. It goes through who is allowed to be mentally ill in public now. Who benefits from hashtag campaigns and public awareness movements around mental illness? It’s a short article but provocative in a way I agree with. I am so deeply aware of the privilege I enjoy at this point in my life. 

But this privilege comes with costs too. Costs I could not have imagined when I was on the far side of that particular privilege slider. 

I’ve been watching a lot more sci-fi/fantasy shows and movies recently. I am particularly drawn to things that are depicting ways that people live with an understanding of there being completely opposing truths/narrative/existanses existing all at the same time. 

So, I like to talk about money. If you have been here for a while you have seen the arc of that from poverty to (I think) fairly substantial wealth. When you are new to a community you only really exist from the moment they meet you. Your past is invisible and unknowable. Ok fine with google they could look me up but they don’t. I write all over the fucking internet. I have one handle I use on every site and I am so trackable it is definitely what a security expert would frown upon and give me a lecture for. I am consistent in part because that is my absolute only talisman against being called a fraud. My story is too whack-job. But I gots receipts, bitch.

I have suppressed so much of that over the past few years. I have been so very silent. It is taking a toll. 

The pendulum is going back and forth on so many different dynamics in my life. In one way I feel like my kids just got out of a big disequilibrium period (or at least some combination of them) and I am slamming my way into one with full force and fury. There are a whole bunch of things that are not working and I need them to change. 

I say over and over that disequilibrium is a necessary feeling for everyone because without it you probably won’t grow. You will get complacent and comfortable and you won’t want to face the terror and uncertainty and pain that comes with change. I have to get angry to have the force to demand change. I have to feel like I will wreck big things if the change doesn’t happen.

I am doing a med change. Amitriptyline and Lisdexamfetamine are not working for me anymore. There are enough negative symptoms with using them that I just cannot. Sex just hasn’t been happening. I’m not happy. I’ve been intermittently explosively raging for quite a while and it’s just not ok. I don’t like me. I need Patience, and I don’t mean the drink made with a whole lot of bourbon.

It feels silly to say this but I want to drink less. (It’s silly to say because Noah and I both have recently put in MASSIVE orders of alcohol.) I got variety. I got stuff that I want to invite other people over and say “I have x and y for you to taste test.” I want a social gambit, I don’t plan to consume much of it myself. I is making friends. 

I have a teeny tiny bit of regret about buying this house because it is huge and has been really rough to repair but I can’t tell you all about it because a Shorty has just informed me that there are gingerbread pieces waiting to be made into a house and I am all out of time.

Almost here

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My birthday is coming up. Going to Texas and England this year means I am not running away by myself. (Important note: the woman we went back to Texas to see has now passed away. I have no regrets over prioritising that goodbye trip over other more fun activities for this year.) Noah wants to be thoughtful and asked me what I want. I want to not want anything so I can’t feel let down. I want to have patience for the 973,383 times I will have to remind my children to do basic chores (like brushing teeth). I want to not miss my mother. I want to go back and rewrite my back story so that my impending birthday doesn’t feel like a hand grenade about to land on my head. A buddy suggested that I go camp somewhere for cheap, but I have been working too hard. I couldn’t right now. My hands are trashed.

I have an old friend staying with me. It is complicated in the way that integrating a new person with deep grief, and addiction issues, and learned helplessness will be. To be fair, every time I feel like I am going to freak out about an issue I have to address he is responsive and polite and most of my requests have been acknowledged and respected. But negotiating and setting boundaries is hard. It’s One More Thing on my emotional chore list and I’m tired.

It has been a fucktastically busy year. Busy on so many levels and my exhaustion is, once again, bone deep and completely saturating my soul. I feel numb and on fire and empty and aching. I deeply miss the comfort of tracking things that happen in my blog because I benefit from the space to process but mostly I do not feel I can anymore. I have reached a certain age where I now have to be realistic about the fact that I am not really going to make more very close friendships. Sure I can find new activity partners, but it isn’t the same thing. The people I have met in the last few years I am deeply conscious of this careful distance I keep. They are not allowed to know me. And I cannot talk about my deep relationships anymore because when I do I ruin them and it is absolutely all my fault.

So I do small bits of processing with people but very little in my historical record. I do almost none publicly. I mostly stuff my feelings and feel disconnected. I do not expect or hope for any kind of improvement.

I worry that the adhd medication was effective and useful for a time and it has gotten to the point where it is causing as many problems as it helps and I am starting the process of weaning off (with medical supervision do not fucking criticise me).

I watch the incoming terrifying blend of natural, political, social, and financial disasters hitting the UK with a sense of grim apprehension. I have been waiting all my life for a moment like this. I feel horrible about the fact that a lot of people are going to suffer terribly, some are going to die, but it won’t be my family. I continue my grim plod towards being able to provide a variety of supplemental food because I think famine is coming. I am installing solar panels with a battery system. I am installing rain butts, many and as large as I can manage. A chicken coop is finally being built. Hell, I’m even building a firewood pile because I worry that there will be a cold snap before the solar panels are installed. By the end of fall I will finally have my polytunnel set up for next year’s food growth.

I am working as hard and as fast as I can.

Noah’s job has managed to go most of the way towards fixing the issues that were happening with his salary. This is good. It would be a terrible time to go do a job hunt. I think we only lost a year’s worth of progress towards retirement. I am deeply aware that the fact that he is so insulated from the current global difficulties with regards to fair pay that he is still going to be able to retire before 60 means that I will never really understand the rest of my generation. Marrying him was hitting the lottery. I did not expect this. There is no fair. There is no deserve.

Even in company I feel lonely. I know I am not meeting anyone else’s emotional needs and they are not meeting mine. I do not know what could be done to change this. What I do know is that I am not suicidal and I am financially and physically prepared for more hardship than 90% of the planet. Maybe my expectation that things are going to fucking suck is almost a good thing. I am going to persevere. I will endure. I don’t need to be happy. I need to get the fucking work done.

And right now the next task on my list is to go make Middle Child a birthday cake. They are turning 12. Puberty is arriving and it’s going to be a wild fucking ride.

PMDD is so awful

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I am on day 42 of my cycle. I start running low on hormones around day 26/27/28. I usually start sometime between day 28 and day 35. It’s been pretty consistent since the last kid. I am… not ok this time. I can feel the complete and total lack of energy or happiness or give. My bones feel worn out and terrible. The numbness in my hands is super bad at this point. I know that a lot of that is how much I’m painting but progressively over the last week it has gotten worse and overwhelming and awful.

My whole body is hurting. I haven’t had many spells like this since I moved here. This is a California-level of pain. I feel sad and irritable and angry and disappointed in so many people and situations and results that I feel unable to cope. I am not suicidal; which is a blessing–that doesn’t darken my door much anymore. I just feel like I’d like to crawl in my bed and cry for a few days until my period starts because I am completely out of cope. In the overall scheme of things that is a relatively healthy and sane impulse and I feel proud that I am in this place now instead of where my lows took me ten years ago.

It is weird being able to list things that I miss about California and reasons that there were advantages there that I don’t have here… while completely knowing that I am overall doing better here than I ever have. Do I still have pain? Yes; particularly when I am drifting back towards California-style work habits that I know are dramatically not good for my body. Do I still have some anxiety? Yes; my anxiety here is so different. I can’t put a number on this to do like a “rate your pain” scale. Knowing that I will never run into Dan or Paul or my mother or my sister or Auntie or Anna or Brittney or or or or or means that I no longer live with hypervigilance. It’s not that I believe that nothing bad can happen to me I just fully accept that scanning the room for exits is not going to be helpful in any of the bad things that happen to me going forward. I can’t tell with a casual glance who is going to be a problem so I just… don’t.

I mean, when the dude got out of his car to yell at me and smack my hand I didn’t freeze up or start crying or react poorly until after he drove away. I stood my ground (in a suitably gun free manner) and I defended myself verbally and I took his picture. I did what I think I should do. And now I don’t scan looking for him or his car because I am pretty confident that if he ran into me in town and harrassed me again I would simply call the police and tell them we had another problematic interaction and he would get in trouble. They put a mark on his record.

I am living in a small town where the police get upset about that kind of thing between strangers. It is still hard to solve between neighbors… but that’s a whole different dynamic. Stranger assault is prosecuted.

I’m anxious about saying the wrong thing to people I am trying to make friends with. That isn’t gone but it is different from California. I find it intensely healthy for me to be consciously aware that people here don’t owe me anything. I haven’t been doing things for people for years with the hope that someday things would shift and they would support me when I needed it because they love me. That’s very freeing.

Even though typing this is terrifying for me I’m going to do it because this space has to be for me if it is going to work. Even things with Jenny have leveled off and found a comfortable stasis. We are not trying to live in one another’s back pockets because we are both cat-like and we like a lot of space. There are topics we kind of avoid because it feels like those aren’t the best ones for us. It’s feeling really comfortable and happy for me. I can only project and not speak like I really know how she feels but she isn’t expressing any dissatisfaction with our relationship. I feel like I pushed too hard when I moved here and we had to work out how to deal with each of us having our prickly points and it has worked out. She remains one of the people I love most in the world. I would bury bodies for her. If something catastrophic happened I would absolutely rescue her or her kids or her husband. I believe with my whole soul that she would show up for me in an emergency. I am feeling safe and comfortable that we have managed to find a nice place between us. I suspect in 5-10 years when our kids are older we will see each other a tiny bit more than we do right now but we are both people who are very comfortable in our own company and that’s not a bad thing.

I’m slowly working on other relationships in town and that’s slow going and complicated because people are like that. I like living here and I think it is going to be a good space for me in the long run. I worry a little about Noah’s place here because he is a lot more constrained than I am in terms of going out and meeting people. He’s going to need friends in the long run too and having them all be on his computer is mixed.

Kids are a pain in the butt. I’m just saying. This has been a bad week for me in terms of my emotional state and that’s no one’s fault. Also: my kids have been buttheads a few times and we’ve had words. I feel so intensely proud of myself because we had words. I didn’t shout. I didn’t scream. No one was punished or denigrated. “Hey this thing is happening and it’s not ok and we need to talk about why.”

Ok, take a deep breath and really feel that. Even when I am upset and I want to freak out because of hormones… we talk. I say, “Hey let’s explore some of the angles you aren’t seeing on your own right now.” When we are done they understand why I am asking for a change (it may or may not happen–let’s be real) but they aren’t angry with me for bringing it up. I understand more about why it’s going on from their perspective. It’s not ok to just silence people when they are inconvenient. Children aren’t problems they are *having* problems and talking about why is important.

It is so hard that my older kids are very much in a place where many of their problems are now things I cannot fix because it isn’t about me. The main upside of that is they are starting to feel in their bellies that it is true when I say the same thing about my problems. “I’m not upset about you. I’m having a problem.” I can see Little Girl struggling through what the older kids went through and she is directly acting out her stuff with her dolls and it’s interesting. I feel so much more emotionally/mentally distant from the process now than I did when the older kids were that size. I will roleplay with her with her dolls.

So yesterday morning I woke up and I felt awful and I cried some. It’s not because anyone did anything. Then Little Girl came in and joined me for a snuggle and she does this thing where she likes to dig her feet into my legs. Sometimes it is ok and sometimes my body hurts and it is super painful. I was already crying so of course she felt bad and took it on herself. Later she had a whole scene with her dolls where she was talking about them hurting her by poking her legs so she was putting them in time out because it’s not ok to be mean to her. I roleplayed one of the babies and talked about how I wasn’t trying to be mean; I was trying to be close because I love her. Is there a way I can be super close without hurting her? I am scared to go in time out right now because that means I broke a rule and I don’t want to feel like snuggling is breaking a rule. She was so kind and loving and caretaking with her baby. It was really wonderful to watch. “Oh my gosh! You are right! Snuggling is not breaking a rule. Maybe we should change where we are snuggling so that you don’t hit my legs and hurt me.”

My grinch heart grew three sizes.

(At this point pretty much the only rule she breaks is screaming in the house and you have to take big voices to your bedroom. This is not California and I can’t insist that all screaming has to be in the yard because of weather.)

I don’t talk about the big kids much anymore because they deserve privacy and walking the line is complex. But I do want to say that it is fascinating to me just how much they still ache for my approval. (They get a lot of it–I’m not saying this is a hollow thing.)

My Oldest Girl is pushing so hard to individuate and good golly hormones have hit her like a freight train and she has so much hostility about injustice and difficulty in the world. Saying good morning at the wrong time is fairly likely to get a stiff middle finger. I go with it. I try hard not to take almost any of it personally. We are dancing around the balancing act of “I’m still your mother so sometimes I am going to be obnoxious and I will want to give you a hug and a kiss. If you truly object in the moment you are allowed to refuse but mostly it’s a good idea to let me do it.” She is doing a lot better in terms of mental health since she stopped going to school. Things were getting really bad for a while there. We come from families that have a lot of depression and anxiety and PTSD and suicide. It would be highly unethical and neglectful for me to not act quickly when I can see my child melting down because of abuse they are receiving. She is starting to blossom again. She is returning to herself and I love seeing it. It’s going to be a process for her to find friends here and school is not going to be the solution. Her art blows my mind. She has so much talent and skill and she practices all the dang time. Her writing is fun and engaging and she is absolutely brilliant at creating pictures in your mind of what is happening to her characters. She still needs a bit more work on exposition but that’s not a terrible lacking–just something to think about and work towards a bit more. She is strong and fit and confident and willing to speak up for herself. And she’s taller than me and built like 30-something Taylor Swift and I cannot even.

My wonderful and delightful Enby is still plugging along. Puberty is happening and it’s a roller coaster. It’s interesting how the acting out is different now from when they were younger. They have so much more self control than they used to have. They still have giant feelings that are hard to manage at times but they know which direction they are growing towards/working on when it comes to expressing those feelings and they are consciously and deliberately learning skills around that. I am so impressed by the effort they put in to being self aware. They are baking and cooking and tweaking recipes and being brave and adventurous. I am sad we didn’t get a better evaluation done at Stanford before we left because they clearly have some specific learning challenge going on and I’m struggling with figuring out what it is. They really have a hard time with some aspects of education and we are trying a few different things because I don’t know what direction is the right one. They are making progress but I think they are always going to be a person who is much better with kinesthetic and active and oral learning rather than on paper learning. It’s really cool watching them learn coping skills around that. They want competence and if they have to route around an area of challenge for that… well just get on with it. They alternate between being this absolutely startlingly compassionate person and being a normal kid. I see them being on this see saw towards adulthood and it is so clearly part of the process they need to follow. They progress intensely then they regress a bit then they leap again. The more patience I show and the more scaffolding I supply the bigger each leap is and the smaller the regression. If I am impatient or difficult about the regression then it intensifies and they can’t leap again for quite a while.

It is fascinating living with these children. The Oldest doesn’t need my approval all the time–once in a while she succeeds in order to spite me. The Middle craves approval like it is heroin. They will beg, borrow, steal, to get it. They do not function well at all if I am anything other than a full throated cheerleader. Rebukes and course corrections have to be delivered with the softest of touches or they wilt and don’t recover for days… sometimes weeks. The Littlest is so small that she still needs tons of redirections towards “Oh hey it would be great if you….” “Oh golly if you do x then y will happen and that’s not good.” I suspect she is going to be more on the spitfire end as she grows. Her threenager year has been so very long.

This post brought to you by the good news that one of my buddies now works in the paint store and he is encouraged to give a friends and family discount to people and basically no one he knows buys paint. I was talking about the sorry shape of my arms right now and how I am pushing myself raising the clock before the paint dies and he told me to take a break. It won’t be nearly as expensive of an issue to fix as I fear. Ok. I will listen.

So I stopped painting a week before my purported end date. I have a ton of other work to do that has been sliding through the cracks. This will be in no way a bad thing. I am exhausted in a way that means I am not sleeping enough because I can’t shut my brain off to sleep. I’m craving alcohol like mad. I think at my next cycle of talking to the GP and psych nurse I will say that I think I am ready to both increase the Amitriptyline and the Lisdexamfetamine.

I am still on very low doses of both and getting closer to a normal dose would be useful at this point. My blood pressure readings are so so so much better on 30mg of Amitriptyline. I’m back in the high 120’s-low 130’s/high 70’s-low 80’s. There is still room for improvement but that’s not dangerous or scary. More Amitriptyline would possibly help with that. Losing weight would probably help with that.

These medications are breaking the stalemate of my weight plateau. I’m still eating whatever I want whenever I want. I am drinking some alcohol (in the range of 4-6 units/week because I know drinking is not recommended on these meds) but not nearly as much as I was. I am not doing tons of exercise because I have been in the house painting all the time but I am still doing the twice weekly yoga and I’m riding in the neighborhood of 20-ish miles a week and even occasionally getting in a decent length walk. I’m not sedentary but I’m not over-exercising in a way that would cause weight loss. So I really believe the drop is as a result of the medications at this point. I didn’t think to weigh myself right when I started the medications. The first data point I have in this year was in February and I was 211. In late August I was at 203. As of this week I saw 199 for the first time in a long time. I repeat: I am not dieting. What I am doing is taking medications that change my brain chemistry and increase my serotonin changes how my brain processes dopamine. That’s making my body not feel like it needs to hold on to fat in the same way. I’m not doing this because I want to lose weight; I am noting physical changes in a way that can be measured. Things like mood are harder.

The PMDD window is something that can overcome the positive effect of any medication in my experience. I am seriously dreading the peri-menopause experience of my cycles gradually lengthening. I expect the next ten years to be hard. But it’s not like any decade has been easy so get on with it. I am deeply grateful that I have gotten to the point where when I feel really low that does not increase suicidal ideation or fixation. I am grateful that I don’t struggle with the desire to mutilate my body anymore. It is complicated as fuck dealing with my children as they have times of feeling like they want to hurt themselves. I am grateful to the marrow of my bones that they know they can trust me and talk to me when they feel like that. Yes, you can always come in my bed and snuggle if you feel you are scared and you aren’t safe to be alone. Puberty is a horrible time and we’ll talk and we’ll get you through this.

If therapists were available they would be in therapy. I didn’t understand the depth of privilege we had in California around mental health. My entire life trajectory happened because therapy was plentiful and that would not have been possible in other places. All my kids have is me. That’s fucking daunting. (I mean, they have friends and we are making community connections…) We talk a lot about having thoughts and feeling impulses doesn’t mean anything bad about you. Let’s talk about the possible consequences if you follow through. I’m not saying I will punish you; I’m saying that once you cross the line into these behaviors there are people in the community who are bound by law to intervene so if they find out this is what will happen. It’s out of my hands. Let’s talk about strategies and ways of coping and figuring out what other things could be done instead. Let’s build habits around feeling distressed so that when something even worse happens you have some pre-built ruts in your brain for how to handle bad things. Let’s talk about distorted feelings and projecting and learning how to scan your central nervous system and what tools exist to help you feel grounded and like you can wait to act–this feeling does not require a response RIGHT NOW. For the record no one is actively suicidal, no one has any kind of plan, and people are not engaging in the sort of behavior that would involve mandatory removal from the house.

What is happening is that they both have had to deal with bullying and additionally people have been telling my daughter that she should kill herself. They are both just children and this has been hard for them. They have every predisposition genetically towards mental health struggles. Life was never going to be a walk in the park. There were always going to be dark times. But you can bet your fucking buttons that I am going to teach them how to light a candle in the dark. (I got some LED candles so nobody else tries to burn down my fucking house. Oh good grief.)

They are kids. They are all so different. I like all of them. I am annoyed by all of them. I admire all of them. I enjoy spending time with all of them. I don’t know what their future will bring but I sure hope that I get to be an enthusiastic cheerleader as they go do all the things they will do. I tell them that when they don’t believe in themselves they can borrow some of my faith in them. I will never ever run out.

More medication changes/observations.

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The last time I posted was 2 days after I lowered the Amitriptyline as an experiment. I am talking to my doctor/psych nurse about all of these changes before I do them. It’s kind of weird having a medical team that I call up and say “Hey I want to try x. I will report back on how it goes.” They respond with, “Cool. Let me know how it goes.” I am not used to American doctors being so chill about someone playing with their medication dosages. In emoji terms: 🤯

I had almost three weeks of being on the first step of Amitriptyline dosage. Very quickly I noticed: my mood getting lower (a lot more intrusive obnoxious thoughts during yoga–amusingly), sleep became really hard (the last three weeks I averaged 7.5 hours of sleep when I’ve been otherwise averaging over 8 hours a night for the past few years), I started craving alcohol a lot (back up to probably 8-10 units a week after only 2-4 units/week for the previous month or so), I was more interested in late night snacking, I had several very late night painting sessions because going to sleep just didn’t feel important, I needed more Lorazepam to sleep, my general pain levels were sky high, and I was using more Co-codamol. Oh hey and my blood pressure went from being usually in the 120’s-130’s/80’s to being mostly in the 140’s-150’s/mid-high 90’s.

That’s some forking data. (I mean… sorta anecdata but I have spreadsheets where I’ve been documenting this day by day…) It’s not like I’m trying to apply this population wide or anything.

I talked to my psych nurse two days ago and told her I do not think this is a good time to increase the Lisdexamfetamine because I need my blood pressure under control first; then I talked to my GP yesterday and told her that I think the next step is increasing the Amitriptyline for a month and seeing what happens. They both think my suggestions are dandy and that’s plan A. We will all check in next month and see how things are going.

After another month on the Lisdexamfetamine I am 3.2 pounds lower. That is a very gentle and sustainable amount of weight loss compared to the roughly 10 pounds I lost in the first month. I mean… I’m still 40-ish pounds away from where I feel like my body feels the best in terms of strength and not being limited by chub in the way. I don’t love having to shove a roll of fat out of the way to get into a certain position. I don’t love that it is hard to bend over and tie my damn shoes. But this is way better than the 60-ish pounds I was above that weight for a while.

I have been putting painting progress pictures up on Facebook because that interface is easier for dumping photos. I kind of hope I will get around to putting together pictures on a webpage here sometime soon. It’ll just take a lot more focus and time than I have right now. Erf.

Good thing to notice

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I’ve been going to yoga classes for a little bit now–a couple of months? Something that I notice when I’m there is that I talk to/about my body differently than I used to. I’m not sure when it changed because I don’t write this kind of thing much anymore. It’s noticeable to me because of what the instructors say. They tell you to check in with your body then pause and then tell you to get past the negative vocies.

These days when I check in with my body it’s gratitude. Thank you for being so strong. Thank you for carrying me so far. I am so proud of what you can do. Yeah, you hurt but isn’t it nice that you hurt so much less than you used to? I’m proud of us for learning how to take care of you better. I can feel the expression of love over time in my bones. I’ve worked so hard to get to where I am. I’m happy that I’ve had this kind of support and time.

I suspect that the combination of meds that I’m on at this point is helping. Amitriptyline is both for pain and it increases serotonin so it’s an antidepressant at the same time. The lisdexamfetamine feels like what I wish i could have had since I was a teenager. I genuinely believe I would have made fewer risky/bad choices if I had been on it.

I really wish I could have been properly assessed for ADHD and ASD as a teenager. It would have changed my life. I wonder if I would have accomplished as much? I wonder if I would have accomplished less? Ah well. It is what it is and all I can do is move forward.

It’s a lot better painting on this med combo. I don’t feel the urge to paint all night long “just to get through it”. I know it will make me feel like trash later and that’s not very tempting/alluring. I’ve been painting for a few weeks in a row now. My one short night of sleep (I got over 6 hours… so not a California short night) was when I was trying to clean up after painting. It took 15 hours to put things back in place and clean up the house enough for the cleaners to be able to come in and do actual cleaning instead of just walking around piles. My average for the last four weeks of sleep is about 8 and a half hours. That’s… kind of shocking for me being in a heavy work cycle. That’s just about healthy. Whoa. Balance.

I am finding a bit of appetite suppression from the amfetamine. I am eating smaller portions at meals (2 tacos instead of 3, 2 pancakes instead of 4, 1 bowl of soup instead of 2) and I feel less desire to have a late night dessert. Sometimes I skip lunch because I’m not that hungry but I eat a lot more dinner to make up for it and I think I eat about the same amount of food. I am drinking waaaay less alcohol (I’m probably taking 3-6 units a week down from 10-15) mostly because the amfetamine means you feel the alcohol less so I don’t feel as much desire to consume it. It still tastes good so I have some. And some of the wine I like is multiple units/serving in the glass I use so there you go. I’m flirting around 200. I haven’t seen lower than 203 since I arrived in Scotland and I’ve usually been in the 210’s and 220’s over the past 2 years so I am losing some weight. With the amount I exercise it has felt kind of weird that I keep as much extra padding as I have been. When I was in my 20’s and 30’s this much exercise would have kept me down in the 160’s.

Something that I think I am feeling in my body is I have dramatically fewer spikes of cortisol with this med combo. I really don’t feel anxious. Over the past two years I have noticed that in Scotland I feel dramatically less anxiety than I did in California as a baseline… even with the help that cannabis provided. I don’t have as much hypervigilance here. Prior to trying this med combo I was still feeling anxiety though in that way that I think is about my body being programmed to worry about everything as the natural state of being. That feels like it is stopping now. In California I had to be careful with my cannabis usage because I couldn’t/wouldn’t take it when I had to drive so I had a lot of up and down effect in terms of my experience in my body. I think there was enough break in cortisol production that my body could process food normally and not turn it all into emergency fat rations for later tragedy.

Since moving and being off cannabis entirely (the weight gain started right when I left California–I could tell in how my clothes fit) there has been a slow but gradual ballooning effect. Exercise and eating a balanced diet wasn’t having any impact at all. Despite the comments of ignorant people… I eat a fairly ridiculously healthy diet compared to the average person in the western world. We eat very little that is processed. We cook from scratch for something like 12-15 meals a week. (A lot of the other meals are leftovers.) We eat 4-9 servings of fruit and veg a day. I have cut a lot of the dairy and meat from my diet. (My family eats more than I do but I’m trying to limit inflammation.) My weight creeping up is not about eating too much and moving too little. Yeah yeah it’s anecdata but I have lived in this body for 40 years now and I’ve seen it through a lot of cycles. Cortisol/stress/anxiety.

It’s really dramatic having medications that lower the level of cortisol in my body on a 24/7 basis. I am consistent with the meds. I haven’t skipped many doses since I started so this is a really level sort of experience.

But my blood pressure has creeped up. I’m hoping that losing some weight will have an effect on that so that I can keep the meds. I really like how my brain feels. I have also halved the amitriptyline dosage on the advice of my GP to see if I can keep the positive effects with a lower dosage. She is mildly skeptical because my former dosage was already the “grandma dose” (her words) and she wonders if my body will be able to feel anything with half that. I’m trying it for a few weeks to see. I think it is worth trying. I really don’t want to lose the lisdexamfetamine. I feel like this is doing so much.

It feels like such a blessing that when I quiet down and look inward what I see is liking myself.

Getting old is fun

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I had an appointment with my psychiatric nurse this morning. We agree that I don’t need to adjust the lisdexamfetamine because it is going very well. She is, however, quite worried about my continual high blood pressure. She is also a bit concerned about how much weight I have lost in the last month (around 15 lbs) but not *overly* concerned because I have reduced how much alcohol I am drinking, I am snacking less right at bed, and I did ride almost 300 miles last month. I am going to be monitor my weight and my blood pressure daily for a while. She wants me to send her a text message once a month letting her know how the trends are going.

I am also going to be speaking to my GP about lowering my dosage of amitriptyline or possibly switching meds entirely to see if something else can provide some relief without the blood pressure spike.

I finally feel like I am getting a handle around some pieces of how the NHS functions. That’s good. I’m feeling cheerful about life just at the moment. I’m back to painting. After lunch I am going to go do a few hours of working on the ceiling in the lounge. I never have finished the hall but I need to finish up the bits that require the extremely tall ladders because I need to give them back. I suspect I will be painting through a lot of the winter. Christmas decorations may come out a bit on the late side this year and get put away early because I don’t know how much painting I can do with them out.

Middle kid has been an absolute dear and is letting me store paint in their closet because they don’t use that shelf anyway and keeping the paint away from the extreme temperature cycling will help it last a bit longer. It also makes it easier for me to get it out and put it away reducing how much time I need for support work instead of painting.

Today feels like a very good day.

Lisdexamphetamine

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I should put this here and not facebook for long-term tracking reasons.

I’m a little over 3 weeks into the trial of lisdexamphetamine now.


I would say the main thing that is helping is that I am less willing to attempt multi-tasking to the point of frustration meaning I am blowing up less. I feel less anxious about all the things I “should” be doing at any given point. I have a long to-do list but I always have a long to-do list because I have a chronic need to believe that working is how I earn my right to breathe.
I think I can say with confidence that this is the best-for-me psychiatric medication I have ever tried. I can see how this would have helped me when I was younger and I have really intense feelings around the fact that no one was ever willing to look for a reason other than “trauma” to explain my behaviors as a child.


How different would my life have been if I had been diagnosed with ADHD and ASD as a child? The signs were there but I never stayed in a school long enough for them to see patterns. They just knew I acted inappropriately and assumed it was all because of the family issues.
Can’t change the past. I can can only move forward. I suspect this is going to be a medication I am on for as long as cannabis isn’t legal here. It is the closest to what cannabis gives me of anything I have ever experienced. I love being able to do one thing at a time without my brain constantly jumping between 6 different tracks. This is pretty rad.


I am going to sleep later than I was before starting this trial but I am getting the same number of hours of sleep so I think that’s not so bad?


Also: I have lost 10 lbs in 3 weeks after this weight not budging for the entire time I have been in Scotland. I am eating as much as I feel like I want to eat. (Interestingly I crave snacks more at night when I take amitriptyline earlier than usual…) I think the weight loss is because there are fewer cortisol spikes with the lower anxiety level. Ok… also probably because I am drinking less alcohol because I can’t “feel” it with this medication so it seems kind of silly to have it.