adhd | You just keep going

My bed is 7’x7′. How in the hell does a child turn sideways then fall off the bottom?

Yesterday MC had their first visit for assessment to see what sort of neurological testing will help find the correct diagnostic labels so that I can narrow down my research on how to support them better.

It was a good visit but, I think, not what the lady had planned. She had a sheet of questions to ask. Instead of going through those questions MC went through a prepared list of the things they have a hard time with. She flipped her paper over and scribbled like her life depended on it. She scheduled an appointment for me to come back alone and fill out those questions about developmental history. 😂

I had talked MC through how I handle appointments as an adult who does not have anyone to report on childhood milestones/attainment. I forgot that MC is not having my life. Whoops. It’ll be fine.

MC is automatically getting 3 separate assessments based on clinical presentation in this appointment and the intake lady hinted about others that might be relevant after we can actually go through developmental history with a fine toothed comb.

This is how seriously Stanford took EC. I was deeply worried I would not find a way to access similar granularity of help for MC/YC. Stanford did *not* take MC seriously. Stanford asked MC 20 yes/no questions and told me I had a perfect little boy I didn’t need to fix. That was really frustrating. This time the lady watched MC almost vibrate off the chair and noticed “Do you find that you are ever able to sit still?” Only if the kid is in a severe dissociated state because they are imploding under the weight of their own anxiety and it is combined with mutism. No. They can’t just hold their body still like a “normal person”. It is not possible for them.

I am feeling a lot less nervous about this process now. The lady also took it very seriously when I said I have two other children who are also clearly neurodivergent. I don’t know what will come of her making notes about my other kids as well. YC isn’t even on a waiting list at this point.

YC’s flavour of neurodiversity is pretty easy to accommodate within our already heavily modified for neurodiversity lifestyle. EC is doing really well with the structure we maintain. MC needs… something I’m not doing and I don’t know what. I am grateful that the NHS is trying so hard to help me figure out what I should do.

The lady looked really pained when I talked about my own history of being beaten up in school after school and how I was not even a tiny bit surprised when people beat up my children in school. Autistic people are magnets for bullying behaviour.

Human beings often want to hurt people who are different. It’s a thing. A really sucky and terrible thing. I was glad that she showed absolutely no sign of believing that it would be best for my children to be in school. *phew*

Stanford Child and Adolescent Development was quite adamant that there is not a better learning environment for EC than what I provide. They had tiny tweaks to suggest, but nothing major. I hope that the NHS can help me find the tweaks that will give MC also the best learning environment for them. Right now there are a couple of areas that concern me and I don’t know how to fix them. I do need outside guidance.

It’s kind of funny that EC doesn’t mostly overlap with my learning difficulties. His troubles are out in front of me and I can study them without feeling emotionally connected. I just need to support. MC and I share some of the same struggles. The ways in which I have never managed to overcome some of my own challenges inhibit my ability to figure out how to help them make progress. I need a more objective view.

But first I need to go run 4 miles. I’d rather eat glue.

I hit the wall this week. I think I was lowkey sick over the weekend when the kids were all very sick. I kept exercising and working the whole time. I don’t feel like I’m still dealing with a fever but my body wants to tell me to go take a long walk off a short pier. I can’t even tell how much this overreach is about physical load and how much is emotional load.

I feel like my soul is hurting. I miss the physicality of all of my California friendships.

It is already getting much colder and I am not feeling great about the change. My body is hurting a lot. I felt like the tiny increase of warmth of spring was a huge massive welcome change and I was going around outside in skimpy clothing because I was overheating. Now the same temperature range is making my bones ache.

I am not sleeping enough. I am rarely laughing and that can’t be good for me. I feel somber and like I have a flat affect. I feel numb. How can you feel numb and pain at the same time?

I really need to go run. I feel like that is an absolutely outrageous ask just now. Oh well. What I want is not important. What matters is what I do.

Right now I am on a brief rest break before I either decide if this is a longer break so I can go to the queer social night or if I am going to go outside to work in the garden. Right now I am trying to get the house/garden set up for an open house with the home ed folks so I feel a lot of get up and go for the work. I’m trying to figure out how I can lay out walkways that let people understand clearly where I don’t want them stepping in my chaotic garden full of plants and different kinds of mulch all over the place.

So that is one piece. I have various irons in the fire with the home education community. I’m trying to figure out which relationships I should cultivate harder and which ones are unlikely to be a good usage of my time. I am feeling incredibly scheduled again. Time is, as it will be for the rest of my life, the biggest limiting factor for everything I do.

Exercise is going to be really over-represented in my schedule for the next five months. I am increasingly conscious of just how much cross training I need to build supportive muscles that are not used in running and to relieve tightness. I’m old. I need so much more effort to get to baseline and it fucking sucks. I’m tired.

Which means that if I am going to effectively absorb and use this exercise to actually get stronger I must sleep. Like, a lot. Even though it looks like daytime until almost midnight and then it is dusk for a little while again before it is daytime again. I’ve never been a great daytime sleeper. Which means I have to get up pretty dang early every single day and get in bed before 10 every single night. I don’t do well with adding in a run later in the day. As my runs get longer and longer I need to mostly just start earlier.

Dang, the other day in the park I met this older lady who told me that she ran her first marathon at 51 and she did it in 4 hours and 45 minutes. Fuck. I can’t even. I am really really really really really really hoping that I will be at least 1 minute less than 6 hours. I am not greedy. My previous shitty time was 6 hours and 45 minutes. I would desperately like it to be shorter than 6 hours. But I’m nervous sending that wish into the universe because I kept saying “I would just like to finish labour in 24 hours” for all three births and I never fucking did. That was a giant failure to manage a prediction/hope/goal for my bodily functioning. I actually went into the first marathon thinking I’d be something in the neighbourhood of 5 hours and 30 minutes. lololololsob

Since I am trying to decide if I am going out tonight: I could go find the giant pride flag and figure out the flagpole situation right *now* and have it up for my ride in since it’s pride month. 🏳️‍🌈 And it is pride month. Seems like a great time to be bonding with my local homies before the big event happens with all the folks who travel in from the villages.

Sometimes I wonder if we really understand people in the past as much as we think we do. Like, if I did not practically tattoo “queer” on my forehead every so often I would be entirely unremarkable and perceived as a normal cis-het mother. I really do believe that queerness is an aspect of my personality that is outside of what other people describe as their normal. It is part of the ravenous predatory streak I have. I sit on myself so hard at this point. Although the funny thing is that I don’t feel it as intensely as I used to. I suppose I would describe it as once upon a time I know I would have gone there. I am not going to speculate if that would have gone well back when. That would not go well now. Ok, bounce eyes.

Sex is complicated in a place this small. Holy crap. The dynamics scare me. Like, honestly. I fucked around so casually for so long. I would not understand how to avoid pissing in other people’s cheerios. No freaking wonder most human beings have low body counts. Yikes it could get really challenging in a place this small. I think I lack the diplomacy to do this tactfully. I am glad I don’t have to find out. It will never matter because Noah is not allowed to die before me. He has been informed.

But good golly I’ll dress as a garish motherfucker and wave a flag sometimes and coyly answer questions about for whom am I advertising. Since it really will never get to anything other than friendship I must fly that kind of outrageously if I am going to find my people and I am going to find them and find ways to integrate them into my life. I believe that queers need each other. Many of us don’t have families of origin we maintain contact with. A very large percentage of us do not have children. That doesn’t mean that any of us deserve to be alone. We have to find each other.

I mean, I can literally say: “Hey if you are one of those queers who feels like they really want a place to go and spend time and make deep community… I am going to be buying a tiny piece of land.” A piece of land small enough that we can do the vast majority of work by hand with folks not feeling exhausted at the end. I know so many people who talk about how much they wish they could build something like that. I want to make community. You’ll be welcome to come hang out in the forest you build anytime. The gates don’t lock.

I don’t wanna be Auntie… but I wanna be Auntie. That woman has had a full house of people she has been helping all of her life. First it was foster kids her mom took in and then it was all the stray people having troubles she knew. She raised her sister… and her sister’s kids… and her sister’s grandkids…

I wanna be Auntie with upgrades. She helped people in a way that resulted in a lot of deeply dependent, incapable people. Not all of them. Some of them just needed a safe place to sleep and eat for a couple of months then they went on their way and did fine. But then there are most of the rest of them. Last I knew she was in her late 70’s and working to pay a mortgage to cover the refinances her husband took out and to pay to take care of all three of her children who live with her.

I am not fucking interested in disabling my children.

I want to help people learn more about how they can teach themselves the things they need to learn in order to move forward. I mean physical skills, intellectual skills, emotional skills, academic skills, and most importantly how to set goals and work towards something they want. They get to figure out what that is. As long as you are not able to pick one I’ll push you through picking something for a while and we will both learn a lot as you learn why you end up disliking it. Over time they gradually pick better and better projects for themselves. They still fuck up… a lot… but that is the point. Fuck up now. Fuck up in ways that won’t matter in 10, 20, 50 years. Hell, most of these fuck ups won’t matter in 5 minutes. Just do it. Fuck up. Learn the lesson. Don’t hold back and wait. Don’t waste time. Think of all the better decisions you will make once you learn this. Doesn’t that sound nice? At some point it will be easier for you to figure out which decision will work for you without having to suffer so much at so many junctions.

BUT THEN YOU MOVE TO ANOTHER FUCKING COUNTRY AND HAVE TO LEARN ANOTHER FUCKING CULTURE AND JUST FUCK YOURSELF ALL THE WAY UP.

Cheezits mother trucker.

So I’m sorta categorising my community efforts as:

bike
queer
kink
maker
community resource sharing
gardening
political
proximity

That’s why I feel like whoa. That’s why I don’t feel like I’m getting to know people quickly. I’m trying to duplicate the full spread of the type of web I had in California and build all aspects of it at the same rate at the same time. While I’m fucking exercising a lot. I suppose the bike community is sorta good for that but a lot of my time there feels super awkward because I am not able to hear that well.

I mean look at the size of the fucking social life I’m planning for the next few decades. I’m going to need to be a fit bitch to ride my bike around to all that shit.

Cause that is what I’m aiming for. I’m going to go do shit. I’m go to make things with people. I am going to invite people to help me with the property.

It’s a whole fucking thing. If you ask people to do something for you they will like you more. And co-working is my biggest love language so I will invite people into my bubble and see who self selects in. And that will be a lot of the inner layers of the core of the web. That’s how it tends to work. It won’t be a perfect alignment, sometimes those very first points on the web are smaller but they lead to a giant nexxus.

That’s how your bestie picked by proximity ends up being the one to tell you “You really should go to the Disaster House Party. I think you will have a very good time.” Reader: I married the guy throwing the party. And then she leaves you to marry an admittedly rather cool guy who happened to live almost halfway around the world. So you name your children after each other because you miss each other so much. Then you decide that 10 years is long enough and you move 2 fucking miles away from her.

I mean, some aspects of my story are pretty hilarious. I follow arcs a long way. I know I should write you an email Pam. Hello, this is my social anxiety voice. You write your journals privately and share them selectively in email. You have what normal people might call “boundaries”.

Hello internet I’ve missed you. I miss this part of my inner story. Most of the time since I moved here I shut it off as fast as I can. In any conversation there can only be a couple of paragraphs and I know that I’d better keep my transition points SUPER FUCKING OBVIOUS while not in any way shape or form seeming to put effort into my, inevitably slightly graceless, transition into the next topic. Cheers, mother trucker.

Fuck every person who has ever told me to just be myself. Dude you don’t even know. Cultivated, curated, deeply thought about choice goes into so much of how I hold my body. I fucking pre-game for social events. I specifically think about what attitude I am supposed to exhibit. I think about how I need to hold my body to get the response I want. It varies based on the crowd and reason for the event. I am not natural but I am comfortable with what I am doing. I have worn this personality/skin-suit mechanism for quite some time. I struggle when I know I’m going to spend a lot of time pin-ball whacking against a lot of barriers. That is the natural and normal early stage of a relationship.

That’s where you have to refine your mental image of this person to progressively more specificity as they become more and more of an actual specific ensemble cast member instead of being part of the chorus in setting B. This is an especially graceless stage for me. Because I am shifting through everything I remember about someone as I talk to new people. I’m trying to come up with every detail of every conversation for the first long while. That way I can follow up on specific topics and build a sense of connection. What? You don’t think through this process? You think I just know so much about you because I happened to have that for you? Nah, babe. I am far from perfect but good golly I work hard. It’s hilarious how often whatever that person’s name is doesn’t make the connection. It depends on how often I hear other people talk about them. It depends on how well embedded in the web they are from multiple directions. If I hear their name I place it in a storyline in a way that I don’t from talking to someone and looking at their face. I will remember all the feelings I’ve had with them and I can sometimes, when I’m lucky, get people to also have that glimmer of oh yes. We had fun. I’m fun. Then we go on with our lives without even having to get into it. But goddess that takes time.

I’d really like to figure out how to figure more rhythm around my efforts in various places based on moon stuff just so that I have to synch with it more. I think it would benefit my garden tremendously. There are a lot of gardening tasks that want about a month in between the next thing. I need to build that feeling into my body and associate it with other definitive parts of my routine and that means I need to tie it in with patterns in the house.

I get to play with building a system. The funny thing is that it will go best if I make a plan and organise and make whatever decisions I want to make then I inform the kids what work they will be doing the next day so they’d better make sure they don’t have an emergency project to do tomorrow morning. Planning and making an agreement about what you will do 100% OF THE TIME RESULTS IN SOMEONE BEING EXTREMELY ANGRY AND FURIOUS.

See, I’m teaching them life skills. Muahahaha.

We have a real live group project all around us every day. We are all working on projects big and small all day long. We bounce around talking to one another and then going off to do one on one with someone for a while then we have another most-of the group contact for a while then the whole family again. We do it over and over all day. They are all managing different pieces of it.

Dude. I need to start clearing off one wall at a time in the studio and deep cleaning it. Cause then I can invite other people to scribble on the wall when they come over. I’ll clean it very slowly adding new nice white space only gradually. That way if people ever want to come claim a new place much further around the room their part of the weft will show up brightly.

But right now I feel absolutely knackered. I feel like I have a 20lb sack on my head; I am so tired. I am going to be running 3 miles tomorrow morning. I am going to be running 6 miles on Saturday morning. I uhhh think that I probably ought to stay home tonight and not go out. Ok, one decision made. I need to be in bed by 9, not in a bar in town starting home at 9.

Yeah. I think I am out of typing. That’s all I can be semi-coherent about and I doubt any of that was coherent. But I feel better. And that is good enough.

It’s not about you, David.

You just keep going

Do the best you can

Tag Archives: adhd

Another Day In I Am Too Tired For This Shit

So this is what is going on with me.

Another day