Tag Archives: adhd

Bragging

It’s hard that I don’t get to share these little happy moments with Noah anymore. I want to talk about how much our children delight me. We are on our way out of the disequilbrium cycle that made 2025 as rough as it was. It was going to be a rough year even if Noah was alive. Instead it was extra special challenging in a lot of ways. I started perusing a book on helping people learn resilience after trauma and the opening pages said that children who lose a caregiver often turn to theft. Ah. Yeah. That was festive. Shortie had a time last year. She hasn’t swiped anything or tried to sneak out in a while. I am holding my breath and pretending I don’t notice that things have improved. I’m afraid of it reverting. Sort of. Maybe?

I love that we have figured out a bedtime routine that works for the pair of it. We struggled through a lot of last year. Noah has been her nighttime parent for almost all of her life. In a great many ways, she lost her primary parent, not her secondary parent. I feel like Noah’s death was harder on her in a lot of ways than it was for the older kids. When Noah and I agreed to have her it was with the understanding that I was deeply burnt out and she was going to be the baby he had to do the most for. He showed up. He spent as much time with her in her 6 years as he probably spent one on one with my son in his whole life despite a 10 year lead. Noah really did a lot of time with Shortie. She played in his office while he worked. He didn’t work for a few years of her life because he was trying to figure out other stuff.

Now for bed we start a YouTube video of “boring history” and she listens to explanations about different history periods. We brush our teeth, put on jammies and cuddle. She stays awake later than me but she stays in bed listening to the story. We’ve had fewer issues with nighttime shenanigans. I think we’ve had more than a month of peace. Shhhhhhhh, don’t ruin it.

I love that in the middle of the night when I come back to the bed after needing the toilet we have a little mutual admiration society conversation before going back to sleep. “I love you.” “I love you!” “I am so glad you are here with me.” “I am so glad you are here with me.” We cuddle fiercely and it’s nice. I feel like we have had to do a lot of specific attachment work this year. It’s been a very serious thing. She has had a lot of need to come and touch me since Noah died. I am super welcoming of this behaviour. For years when I hid in the studio it wasn’t ok to interrupt. Now, she comes out and tells me her hug bucket is empty and I drop what I am doing to hug her. This feels really important. The first while after his death she was coming every few minutes even when people tried to distract her. Now it’s if I stay out here for an hour she checks in. I don’t get a full hour out here much once the day begins.

My life is a lot more work than it used to be. I’m adjusting but it’s hard. I am being very careful to not overload myself on a given day because I can’t have a meltdown. I’m doing so much better than I used to at regulating my mood. I feel more capable of doing so. I see the signs coming. I am blocking off rest time and using it instead of doing extra work in that window. I have to. I have to be calm.

I am putting aside date time for the big kids now. I realised that I was doing everyone a disservice by only treating date time with Shortie as a priority. I wasn’t modeling that everyone needs time and that was creating part of the problem. Shortie wasn’t seeing the evidence with her eyes that all the needs will be tended to. That was my failure last year. We are doing better.

Eldest Child and I were out yesterday. I love listening to him talk. I can see where he uses some of Noah’s rhetorical devices when telling stories. He is such a good storyteller. He’s currently freaking out because his latest fanfiction story has been read 10,000+ times. I’ve been telling him he was a fantastic writer for a while. I’m glad he is now finding external validation to back me up. He is so sweet and gentle and loving. He is moving forward and trying to figure out who he can be as a grown up. It’s full of frustration and starts that go nowhere. Yup. He’s trying though, and that’s what I care about.

I appreciate that when people ask him how he knows so much he says, “My parents were both teachers and they considered it their life mission to make sure I knew everything they knew plus instilling the value that learning is as essential as breathing.” This is how he sees himself and his life. That’s really nice. I like that a lot.

Middle Child READ TOM JONES. It took them less than two weeks. I am fucking thrilled. They want to earn English qualifications for getting into Drama programs. They are practicing handwriting and going over grammar lessons and spelling lessons. They are super motivated and in each week they are covering many months of school curriculum. I haven’t bothered demanding that they cover any of this. They had functional communication but they didn’t care much about developing it. When this child doesn’t care they will not learn. They have a lot in common with me. I lived in Silicon Valley for 30 years and I spent most of that time dating programmers. I can’t code at all. I refused to learn. That was not for me. My kid is so much like me that I ache for them. I see some of the ways they struggle and I grimace. Ah. Yeah, it’s going to take you a while to get past that bit. It took me till my 30’s.

My kid is the one I worry about the most for a lot of reasons. They are both the most like me and also different from me in very crucial ways. They are incredibly bright–don’t get me wrong, but they don’t have that quickness of thought that has saved me over and over in my life. Their way of thinking is a lot more methodical and reasoned than mine. I leap from connection to connection without fully understanding why the jump happened. They don’t follow a thought unless they know why. In a way, they got that from Noah, but they aren’t quick the way he was either. It is hard being the slowest processor in the house. Sometimes I can watch the frustration they feel, it is so palpable. They are jumping as fast as they can intellectually but sometimes they get really upset when people are making connections too fast for them.

It’s kind of funny. I watch Middle Child get frustrated by how “slow they think” the same way I watch Eldest Child get frustrated by how “bad they are at math” and I watch Youngest Child complain about how “they read so slowly.”

Babies. The reason you think you are slow is because you are in a Petri dish with folks who have brains that are basically on speed. You are above average. Being slower than someone who is absurdly fast is not the same thing as being “slow”.

It’s like how EC complains that he doesn’t have anyone he can learn cooking stuff from/with. Dude. You want an Asian grandparent to teach you cooking and you ignore everyone below that in competence and knowledge. Yeah, you will struggle to find people like that to learn from if you move to fucking Scotland. No shit. You will need to learn to consider the people around you peers. They do know things you don’t. Don’t be a pretentious ass.

EC thought he was bad at math till he showed up at school 5 grades ahead of his peers. MC feels slow at responding in our house but lightning fast during improv exercises with peers. YC feels slow at reading compared to me but has to bring a whole ass chapter book per day of a trip because she can blow through them at 7.

I had a funny chat with Gentleman. I told him I think it is funny that he keeps referring to himself as neurotypical. I don’t think he particularly is. He 100% shares “infodumping about my special interest is my love language.” He also has a dramatic spiky profile in his traits. Stuff where he’s really exceptionally high and areas where he massively struggles. He talks about school the same way I do. He had very similar experiences as me. Tremendously gifted in some areas does not mean gifted in all areas, thank you very much. He asked why I thought he and I had a lot in common and I laughed. I told him that the big difference is that I found a lucky lottery ticket.

He isn’t Noah and I am not going to try to put him in Noah’s place. He is a really nice friend though and I think he is going to be kind to my children. We will see. I am afraid to hope. I am afraid to trust.

I like the results I have gotten so far. Every new adult is a possible bump in the road. It’s scary to involve more people in our life but it’s necessary. We need more contact with folks.

I like that when Shortie is trying to psych herself up I can hear her telling herself, “Being brave doesn’t mean you stop feeling scared. Being brave means doing it while being scared. I am a brave girl. I am smart. I figure out hard things all the time. I can do this.”

She doesn’t rant and express self contempt or self doubt. She’s turning 8 soon. Her personality is pretty darn set for where it is going to be for her adult life. She is sunny, optimistic, hard working, focused, and intense.

My kid knows how to set up a learning/study plan for themself. They looked up the resources necessary. They didn’t need me to guide their plan. HOLY CRAP THAT IS SO NICE. They didn’t want me to look up all the texts for them. They went and grabbed the novels from the list that we own and started reading without any kind of prompting. This is literally the point of unschooling. I taught them the skills for learning and they go do it. They have some mood swings at this point but they have learned an intense array of self soothing skills. They are a funny, thoughtful, kind, inventive person. Watching them grow up has been amazing. They have come so far and I know that they will do so much more in the future.

My son still needs a lot more assistance with setting up plans and with following through. He, unlike MC, has a lot more than just autism going on. He’s also dyslexic and he has ADHD. For all that he is a walking encyclopedia he also struggles with executive functioning in ways that are rough for him at times. Thing is: he knows this and he knows how to ask for help with the parts he can’t do alone. He knows how to self advocate. He is bright, personable, hard working, sweet, assertive, and able to rest. This is a combination that bodes well for his life. He needs rest. His body suffers.

With Noah’s help I learned how to carve out time for rest. I modeled that as a priority. My kids believe that when they are unwell they need to rest.

I did that.

Go me.

I started doing this so long ago

I’m sitting here making spreadsheets. I vastly prefer making my own in a bullet journal to typing all of it. I like having the scratch work spread around like a web of supporting numbers. It eases my thinking process.

I want to figure out how I can financially manage to stay in this house for the sake of the kids. This is the last home they shared with their father. I need to plan around this being our home. They want me to. I want to. I want us to be secure in this home base. I want that to be Plan A. I think I can do it.

I will never have tech bro money again so I need to make conservative choices. I need to cobble a little here and a little there and cut a lot there. The next three years will be the hardest as I pay off the mortgage. After that I think I can manage ok.

I remember doing this when I was very young, definitely by the time I was 12 though I’m not sure how long before that I started. I would sneak into my mother’s files and I would find the copy of the paperwork for my dog bite settlement. What am I guaranteed to get? How can I make it work on that amount of money? How can I make it to the future I want to have with only these resources? Of course I haven’t followed the plans I made when I was that young. How could I have dreamed how much larger my life would end up? I couldn’t. This is still just a starting point. My life won’t be as rigid as this table indicates.

If the US government doesn’t fall, if Social Security keeps paying out to dependents, I think I see a path forward that won’t be particularly painful but also won’t be lavish and what we have come to expect. Travel is not going to be a part of my life for the rest of the time I have young children. I won’t have extra money. I’m going to be house poor because keeping this thing in good nick is expensive. I will have to ask my inlaws for help, but not nearly as much as I feared when the thought first occurred to me. I’m basically asking them for child support until the kids are grown and then I will figure it out.

It will be around when I turn 55. That will be a whole new chapter of my life. I will shift my income sources entirely that year. I have a plan. Until then I think I can ignore all the investment stuff and let it grow. So far I have exceeded my plans, in most ways, by a great margin. At least financially.

There are so many pieces of this that are out of my hands. I am scared of the future that I don’t control. I know so little about what is coming.

I was trying to write emails to my inlaws and I was crying. Then my sweetie came over and cuddled me and sang to me.

“You don’t need to cry, you are with your family. You don’t need to cry. Cause you’re with your family and that’s never a case to cry. Don’t cry, no matter what struck you. Cause you’re always with your family. Cause you’re always with your friends. Oooooooooh ooooooooh oooooooh.” It repeated a bit more in places, but this is what Shortie sang me this morning.

I know that I am sad and that I will walk in a stilted way for the rest of my life. But she is right that I can’t spend all my time crying. I have to smile because I am with my family and they need to see that being near them makes me smile. They have to see that. They need it. They need to believe that they have that power. Even if I am lying to them. Other people won’t be. Down the line having these kinds of co-regulating and connecting skills will make a big difference for their adult lives. It isn’t their fault that I am so broken.

They are the glue that has put the shards of me back together. Noah may have done a lot of the work of helping me assemble pieces and organise the mosaic but the kids were the glue.

I have a different feeling in my chest. It’s been there for a few days. I usually feel like I have pop rocks in my chest. My anxiety is a vinegar/baking soda volcano that never ceases. Now it is different. It is a steady and insistent pulling. I must go forward. I must continue. I do not look for happiness or to be loved, I am loved. That’s sorted. Move forward. I have people to care for. I don’t feel capable of providing that care–I feel half dead. I feel like I cannot think or act at all but I look at my crossed off to do list and think that I’ve actually gotten a fair bit done. A lot more will happen in this new month.

I did not finish the paperwork. Fuck. I tried. A lot of this takes a ton of time for each turn around. Some of these emails say they will get back to me in 10-15 business days. That’s quite a lag. I did my end about as fast as I could. Now I wait. I still have some stuff to do. I also have a birthday party to get ready for. A little girl is turning 7 and that doesn’t happen every day. She needs to know she is special and loved. A lot of the paperwork will be put to the side for about a week around her birthday. She will be the whole focus.

Today is Imbolc. I want to start seeds. I have assembled all the materials. I just need to bring it inside and do it. These are hot-needing seeds. Some will hide in my dark, warm boiler room. Or the bathroom with the always-on radiator.

It’s hard to commit to the work of starting seeds right now. It sounds way too much like hope and it’s not that I have hope. It’s that I would seriously like to A) stop filling the bird feeders because avian flu is such a bad thing right now and B) have enough flowers and other edibles that I’m taking care of the local wildlife anyway C) start supplementing our diet more seriously with stuff we grow. I think it’s going to matter. I think the US going haywire and the UK leaning towards nationalist grossness means food chain stuff will be impacted.

I’m scared in so many ways on so many levels.

I’m also doing a lot of stretching. My body is unhappy about the change in activity levels. I miss running with Noah. I miss going to yoga with Noah. I miss going on bike rides with Noah. I miss everything. I miss him showing up to join me at 9:30 as a reminder to be ready for bed by 10. I loved the smile he had every night. He was excited to see me. He was delighted. It was the highlight of his day. The kids were in bed and I was all his for a while.

I miss being someone’s favourite part of the day every single day.

I want to feel alive. Instead I am frozen into inaction. I feel like I have nowhere to go and nowhere to grow. I know that is a feeling and not a fact. Someday I will grow again but it won’t be like it was. It will never be like it was. I will never have Noah pushing me, driving me, caring for me, encouraging me, supporting me. He was the scaffolding around me that allowed me to be fixed safely.

Noah gave me the only safety I ever had. The only stability. The only consistency. Now I have to be the only source of that for the kids. It scares me so much I feel like I can’t breathe. It’s funny. I was running one of my freak out worries past EC and he said “The last problem we will ever have is making friends. We show up and work. We listen to people. We show up and give support when people need help. We will be fine in this life.”

I like the self identity my kids have.

I need to stop running my worries past him. This is not cool.

There are a lot that I don’t want to write on the internet. And now it is time to sleep.

Another Day In I Am Too Tired For This Shit

My bed is 7’x7′. How in the hell does a child turn sideways then fall off the bottom?

Yesterday MC had their first visit for assessment to see what sort of neurological testing will help find the correct diagnostic labels so that I can narrow down my research on how to support them better.

It was a good visit but, I think, not what the lady had planned. She had a sheet of questions to ask. Instead of going through those questions MC went through a prepared list of the things they have a hard time with. She flipped her paper over and scribbled like her life depended on it. She scheduled an appointment for me to come back alone and fill out those questions about developmental history. 😂

I had talked MC through how I handle appointments as an adult who does not have anyone to report on childhood milestones/attainment. I forgot that MC is not having my life. Whoops. It’ll be fine.

MC is automatically getting 3 separate assessments based on clinical presentation in this appointment and the intake lady hinted about others that might be relevant after we can actually go through developmental history with a fine toothed comb.

This is how seriously Stanford took EC. I was deeply worried I would not find a way to access similar granularity of help for MC/YC. Stanford did *not* take MC seriously. Stanford asked MC 20 yes/no questions and told me I had a perfect little boy I didn’t need to fix. That was really frustrating. This time the lady watched MC almost vibrate off the chair and noticed “Do you find that you are ever able to sit still?” Only if the kid is in a severe dissociated state because they are imploding under the weight of their own anxiety and it is combined with mutism. No. They can’t just hold their body still like a “normal person”. It is not possible for them.

I am feeling a lot less nervous about this process now. The lady also took it very seriously when I said I have two other children who are also clearly neurodivergent. I don’t know what will come of her making notes about my other kids as well. YC isn’t even on a waiting list at this point.

YC’s flavour of neurodiversity is pretty easy to accommodate within our already heavily modified for neurodiversity lifestyle. EC is doing really well with the structure we maintain. MC needs… something I’m not doing and I don’t know what. I am grateful that the NHS is trying so hard to help me figure out what I should do.

The lady looked really pained when I talked about my own history of being beaten up in school after school and how I was not even a tiny bit surprised when people beat up my children in school. Autistic people are magnets for bullying behaviour.

Human beings often want to hurt people who are different. It’s a thing. A really sucky and terrible thing. I was glad that she showed absolutely no sign of believing that it would be best for my children to be in school. *phew*

Stanford Child and Adolescent Development was quite adamant that there is not a better learning environment for EC than what I provide. They had tiny tweaks to suggest, but nothing major. I hope that the NHS can help me find the tweaks that will give MC also the best learning environment for them. Right now there are a couple of areas that concern me and I don’t know how to fix them. I do need outside guidance.

It’s kind of funny that EC doesn’t mostly overlap with my learning difficulties. His troubles are out in front of me and I can study them without feeling emotionally connected. I just need to support. MC and I share some of the same struggles. The ways in which I have never managed to overcome some of my own challenges inhibit my ability to figure out how to help them make progress. I need a more objective view.

But first I need to go run 4 miles. I’d rather eat glue.

I hit the wall this week. I think I was lowkey sick over the weekend when the kids were all very sick. I kept exercising and working the whole time. I don’t feel like I’m still dealing with a fever but my body wants to tell me to go take a long walk off a short pier. I can’t even tell how much this overreach is about physical load and how much is emotional load.

I feel like my soul is hurting. I miss the physicality of all of my California friendships.

It is already getting much colder and I am not feeling great about the change. My body is hurting a lot. I felt like the tiny increase of warmth of spring was a huge massive welcome change and I was going around outside in skimpy clothing because I was overheating. Now the same temperature range is making my bones ache.

I am not sleeping enough. I am rarely laughing and that can’t be good for me. I feel somber and like I have a flat affect. I feel numb. How can you feel numb and pain at the same time?

I really need to go run. I feel like that is an absolutely outrageous ask just now. Oh well. What I want is not important. What matters is what I do.

So this is what is going on with me.

Right now I am on a brief rest break before I either decide if this is a longer break so I can go to the queer social night or if I am going to go outside to work in the garden. Right now I am trying to get the house/garden set up for an open house with the home ed folks so I feel a lot of get up and go for the work. I’m trying to figure out how I can lay out walkways that let people understand clearly where I don’t want them stepping in my chaotic garden full of plants and different kinds of mulch all over the place.

So that is one piece. I have various irons in the fire with the home education community. I’m trying to figure out which relationships I should cultivate harder and which ones are unlikely to be a good usage of my time. I am feeling incredibly scheduled again. Time is, as it will be for the rest of my life, the biggest limiting factor for everything I do.

Exercise is going to be really over-represented in my schedule for the next five months. I am increasingly conscious of just how much cross training I need to build supportive muscles that are not used in running and to relieve tightness. I’m old. I need so much more effort to get to baseline and it fucking sucks. I’m tired.

Which means that if I am going to effectively absorb and use this exercise to actually get stronger I must sleep. Like, a lot. Even though it looks like daytime until almost midnight and then it is dusk for a little while again before it is daytime again. I’ve never been a great daytime sleeper. Which means I have to get up pretty dang early every single day and get in bed before 10 every single night. I don’t do well with adding in a run later in the day. As my runs get longer and longer I need to mostly just start earlier.

Dang, the other day in the park I met this older lady who told me that she ran her first marathon at 51 and she did it in 4 hours and 45 minutes. Fuck. I can’t even. I am really really really really really really hoping that I will be at least 1 minute less than 6 hours. I am not greedy. My previous shitty time was 6 hours and 45 minutes. I would desperately like it to be shorter than 6 hours. But I’m nervous sending that wish into the universe because I kept saying “I would just like to finish labour in 24 hours” for all three births and I never fucking did. That was a giant failure to manage a prediction/hope/goal for my bodily functioning. I actually went into the first marathon thinking I’d be something in the neighbourhood of 5 hours and 30 minutes. lololololsob

Since I am trying to decide if I am going out tonight: I could go find the giant pride flag and figure out the flagpole situation right *now* and have it up for my ride in since it’s pride month. 🏳️‍🌈 And it is pride month. Seems like a great time to be bonding with my local homies before the big event happens with all the folks who travel in from the villages.

Sometimes I wonder if we really understand people in the past as much as we think we do. Like, if I did not practically tattoo “queer” on my forehead every so often I would be entirely unremarkable and perceived as a normal cis-het mother. I really do believe that queerness is an aspect of my personality that is outside of what other people describe as their normal. It is part of the ravenous predatory streak I have. I sit on myself so hard at this point. Although the funny thing is that I don’t feel it as intensely as I used to. I suppose I would describe it as once upon a time I know I would have gone there. I am not going to speculate if that would have gone well back when. That would not go well now. Ok, bounce eyes.

Sex is complicated in a place this small. Holy crap. The dynamics scare me. Like, honestly. I fucked around so casually for so long. I would not understand how to avoid pissing in other people’s cheerios. No freaking wonder most human beings have low body counts. Yikes it could get really challenging in a place this small. I think I lack the diplomacy to do this tactfully. I am glad I don’t have to find out. It will never matter because Noah is not allowed to die before me. He has been informed.

But good golly I’ll dress as a garish motherfucker and wave a flag sometimes and coyly answer questions about for whom am I advertising. Since it really will never get to anything other than friendship I must fly that kind of outrageously if I am going to find my people and I am going to find them and find ways to integrate them into my life. I believe that queers need each other. Many of us don’t have families of origin we maintain contact with. A very large percentage of us do not have children. That doesn’t mean that any of us deserve to be alone. We have to find each other.

I mean, I can literally say: “Hey if you are one of those queers who feels like they really want a place to go and spend time and make deep community… I am going to be buying a tiny piece of land.” A piece of land small enough that we can do the vast majority of work by hand with folks not feeling exhausted at the end. I know so many people who talk about how much they wish they could build something like that. I want to make community. You’ll be welcome to come hang out in the forest you build anytime. The gates don’t lock.

I don’t wanna be Auntie… but I wanna be Auntie. That woman has had a full house of people she has been helping all of her life. First it was foster kids her mom took in and then it was all the stray people having troubles she knew. She raised her sister… and her sister’s kids… and her sister’s grandkids…

I wanna be Auntie with upgrades. She helped people in a way that resulted in a lot of deeply dependent, incapable people. Not all of them. Some of them just needed a safe place to sleep and eat for a couple of months then they went on their way and did fine. But then there are most of the rest of them. Last I knew she was in her late 70’s and working to pay a mortgage to cover the refinances her husband took out and to pay to take care of all three of her children who live with her.

I am not fucking interested in disabling my children.

I want to help people learn more about how they can teach themselves the things they need to learn in order to move forward. I mean physical skills, intellectual skills, emotional skills, academic skills, and most importantly how to set goals and work towards something they want. They get to figure out what that is. As long as you are not able to pick one I’ll push you through picking something for a while and we will both learn a lot as you learn why you end up disliking it. Over time they gradually pick better and better projects for themselves. They still fuck up… a lot… but that is the point. Fuck up now. Fuck up in ways that won’t matter in 10, 20, 50 years. Hell, most of these fuck ups won’t matter in 5 minutes. Just do it. Fuck up. Learn the lesson. Don’t hold back and wait. Don’t waste time. Think of all the better decisions you will make once you learn this. Doesn’t that sound nice? At some point it will be easier for you to figure out which decision will work for you without having to suffer so much at so many junctions.

BUT THEN YOU MOVE TO ANOTHER FUCKING COUNTRY AND HAVE TO LEARN ANOTHER FUCKING CULTURE AND JUST FUCK YOURSELF ALL THE WAY UP.

Cheezits mother trucker.

So I’m sorta categorising my community efforts as:

  • bike
  • queer
  • kink
  • maker
  • community resource sharing
  • gardening
  • political
  • proximity

That’s why I feel like whoa. That’s why I don’t feel like I’m getting to know people quickly. I’m trying to duplicate the full spread of the type of web I had in California and build all aspects of it at the same rate at the same time. While I’m fucking exercising a lot. I suppose the bike community is sorta good for that but a lot of my time there feels super awkward because I am not able to hear that well.

I mean look at the size of the fucking social life I’m planning for the next few decades. I’m going to need to be a fit bitch to ride my bike around to all that shit.

Cause that is what I’m aiming for. I’m going to go do shit. I’m go to make things with people. I am going to invite people to help me with the property.

It’s a whole fucking thing. If you ask people to do something for you they will like you more. And co-working is my biggest love language so I will invite people into my bubble and see who self selects in. And that will be a lot of the inner layers of the core of the web. That’s how it tends to work. It won’t be a perfect alignment, sometimes those very first points on the web are smaller but they lead to a giant nexxus.

That’s how your bestie picked by proximity ends up being the one to tell you “You really should go to the Disaster House Party. I think you will have a very good time.” Reader: I married the guy throwing the party. And then she leaves you to marry an admittedly rather cool guy who happened to live almost halfway around the world. So you name your children after each other because you miss each other so much. Then you decide that 10 years is long enough and you move 2 fucking miles away from her.

I mean, some aspects of my story are pretty hilarious. I follow arcs a long way. I know I should write you an email Pam. Hello, this is my social anxiety voice. You write your journals privately and share them selectively in email. You have what normal people might call “boundaries”.

Hello internet I’ve missed you. I miss this part of my inner story. Most of the time since I moved here I shut it off as fast as I can. In any conversation there can only be a couple of paragraphs and I know that I’d better keep my transition points SUPER FUCKING OBVIOUS while not in any way shape or form seeming to put effort into my, inevitably slightly graceless, transition into the next topic. Cheers, mother trucker.

Fuck every person who has ever told me to just be myself. Dude you don’t even know. Cultivated, curated, deeply thought about choice goes into so much of how I hold my body. I fucking pre-game for social events. I specifically think about what attitude I am supposed to exhibit. I think about how I need to hold my body to get the response I want. It varies based on the crowd and reason for the event. I am not natural but I am comfortable with what I am doing. I have worn this personality/skin-suit mechanism for quite some time. I struggle when I know I’m going to spend a lot of time pin-ball whacking against a lot of barriers. That is the natural and normal early stage of a relationship.

That’s where you have to refine your mental image of this person to progressively more specificity as they become more and more of an actual specific ensemble cast member instead of being part of the chorus in setting B. This is an especially graceless stage for me. Because I am shifting through everything I remember about someone as I talk to new people. I’m trying to come up with every detail of every conversation for the first long while. That way I can follow up on specific topics and build a sense of connection. What? You don’t think through this process? You think I just know so much about you because I happened to have that for you? Nah, babe. I am far from perfect but good golly I work hard. It’s hilarious how often whatever that person’s name is doesn’t make the connection. It depends on how often I hear other people talk about them. It depends on how well embedded in the web they are from multiple directions. If I hear their name I place it in a storyline in a way that I don’t from talking to someone and looking at their face. I will remember all the feelings I’ve had with them and I can sometimes, when I’m lucky, get people to also have that glimmer of oh yes. We had fun. I’m fun. Then we go on with our lives without even having to get into it. But goddess that takes time.

I’d really like to figure out how to figure more rhythm around my efforts in various places based on moon stuff just so that I have to synch with it more. I think it would benefit my garden tremendously. There are a lot of gardening tasks that want about a month in between the next thing. I need to build that feeling into my body and associate it with other definitive parts of my routine and that means I need to tie it in with patterns in the house.

I get to play with building a system. The funny thing is that it will go best if I make a plan and organise and make whatever decisions I want to make then I inform the kids what work they will be doing the next day so they’d better make sure they don’t have an emergency project to do tomorrow morning. Planning and making an agreement about what you will do 100% OF THE TIME RESULTS IN SOMEONE BEING EXTREMELY ANGRY AND FURIOUS.

See, I’m teaching them life skills. Muahahaha.

We have a real live group project all around us every day. We are all working on projects big and small all day long. We bounce around talking to one another and then going off to do one on one with someone for a while then we have another most-of the group contact for a while then the whole family again. We do it over and over all day. They are all managing different pieces of it.

Dude. I need to start clearing off one wall at a time in the studio and deep cleaning it. Cause then I can invite other people to scribble on the wall when they come over. I’ll clean it very slowly adding new nice white space only gradually. That way if people ever want to come claim a new place much further around the room their part of the weft will show up brightly.

But right now I feel absolutely knackered. I feel like I have a 20lb sack on my head; I am so tired. I am going to be running 3 miles tomorrow morning. I am going to be running 6 miles on Saturday morning. I uhhh think that I probably ought to stay home tonight and not go out. Ok, one decision made. I need to be in bed by 9, not in a bar in town starting home at 9.

Yeah. I think I am out of typing. That’s all I can be semi-coherent about and I doubt any of that was coherent. But I feel better. And that is good enough.

It’s not about you, David.

Problematic people

Oh man my RSD is on turbo lately. (That’s Rejection Sensitivity Dysphoria if you aren’t familiar with the acronym.) I learned about this facet of neurodiversity in later years and it was like “Huh. Ok so that’s been most of my life. I just thought I had low self esteem.” Which is why I often feel weirdly haunted by the memory of a therapist who laughed so hard she almost fell off her chair when I said I had low self esteem. She said I had the highest self esteem of any client she had worked with in over 20 years.

Right.

What does self esteem mean then? I don’t think I really understand. I have aspects of my self-hood that I have confidence in: I can giggle off aspersions about my intellect because I am ridiculously confident in my intelligence and I laugh about people implying that no one would ever fuck me because holy hell is that inaccurate.

But I doubt whether I am actually doing enough good in the world to justify how many resources are needed to keep me functional. I have a shitty, high maintenance body. I doubt whether people will really accept me with all of my fierce outbursts and intensity.

So as a result I really like a lot of folks who are publicly derided as “problematic people”. I prefer assholes because they will tell me off and compliment me in equal measure and I can lean in and rest my head on their chest and hear the authenticity of their love in their level heartbeat.

“What’s Wrong With Krissy” is, after all, one of my most frequent games.

This ties in strongly with why I pursue friendships with folks in the scene with such intensity. There are an awful lot of assholes around here. YAY!!!!

Hell, even the people I know who have mostly done the right things in life and followed all the choices they were expected to make are still people who get in trouble regularly for being overly direct. I think of them as assholes with extra class. They will still tell you off but they will do it in a way that no one is allowed to tell them to stop because it all just sounds so true and reasonable.

It is harder to find assholes around here (physical here not fetlife-here; I come to fetlife so much these days because I can smile and watch assholes). A lot more “taking the piss” and a lot less “I am going to tell you why every single thing you have done in the last 15 years is wrong. I have citations.” One of my old buddies had to leave the bay because of health issues. Now the trouble is that they are used to friendships that are super intense where folks act like mutual coaches to one another. This is a really common dynamic I have had in many of my friendships in California as everyone is striving super hard to learn new skills and hobbies and interests all the damn time. My buddy is really struggling because no one in small town New Mexico wants to do that with her. People A) don’t want to spend that much time together and B) are not interested in that dynamic because they aren’t relentlessly focused on learning new stuff and C) find it more than a little creepy that my buddy is so intense.

I feel that in my bones.

I feel overwhelmed almost every single minute that I am with folks that I need to be trying as absolutely hard as I can to hold back and not be too intense. My entire selfhood is wrong at full strength and I need to be letting it out 3%-5% at a time or I am a monster. It is additionally challenging that many of the ways I have traditionally talked people into having more tolerance for me are prohibited by agreements I have made. Also: I don’t think they would work so well at this point.

I am a Problematic Person. What do I do that is problematic? Talk too much. Not moderate eye contact sufficiently (holy shit this is a whole thing here and I’ve had immigrants bring it up with me and tell me that I need to knock it off because they get in trouble for staring too). That one is really hilarious because I had to be taught to make/keep eye contact and now I’m in trouble for doing too much of it because PEOPLE ARE NOT CONSISTENT FROM CULTURE TO CULTURE.

So, when you are instructing that autistic person on how to act to “not be offensive” what culture are you acclimating them to and how did you develop the fucking audacity to decide that whichever one you are enforcing is The Right One? Anyway.

How close am I supposed to stand to someone to look friendly but not be creepy? How do I manage the fact that my fucking tinnitus is so bad that half the time I am trying to understand people with about 70% of the words making it through to my brain? It is why I love to type. How much follow up when they are not responding is persistent and appropriate friend making behavior but when do I become a stalker? I have no fucking social credit here. I have not earned forbearance because of my long usefulness. I am a difficult outsider with a lot of demands in order to facilitate my entry.

Yeah… basically I don’t see much reason to assume that dealing with me is worth peoples time so I minimise how much I interact with people because I do not want to unfairly drain them. I have been told for years that it is not ok to give any kind of social or energetic labor with any expectation of getting anything in return. You need to just give because you have extra and probably nothing will come back to you and that needs to be ok. I have to be ok if I never get anything from anyone.

And so I sit at home and I make detailed calendars and lists of tasks for maintaining my body and whatever shred of mental health I clutch to and I pray that no one asks me for too much because I am running a surplus… barely. I am after scraping and working and hoarding and conserving and doing without. And there is this knot of worry in my stomach all the time because I am trying to put small amounts of effort into different places and people because I have to be ok if this person/group does not want to know me in three years.

There will always be people who don’t want to know me. No matter how much of my personality I saw off. They will see the mistakes I so profligately make in my haphazard pursuit of new understandings and they will not know about any of the previous history of doing exactly that before succeeding at very hard things that many people said I was not going to be able to do.

I am nobody. I am a stranger. I have no value. I have no perceived social status.

I mean, I did pick this on purpose. I made the conscious choice to pick up and move very far away to be a small fish in a small pond because I did not enjoy being a small fish in the great big ocean. They were going to eat me.

I chose to move very far away to a place where I have exactly one embedded social contact and her world has been fairly limited in her time here. I have to try and find a new place in the community. I have to find a way to have people see me as worthy of their time and effort and accommodation because you would have to fucking lobotomize me to make me easy to be around.

So mostly I just don’t go. (I am loving the fuck out of the fact that someone ranted about starting sentences with “so” and I absolutely know I am doing it extra right now just to be EXTRA.) I am a problematic person. I am an asshole. I am high effort and what I have to give is very small so it isn’t worth much. Which ends in feeling like I am not worth very much. Then I talk to people less and less. I hide and stay home and keep myself busy trying to add to any surplus of energy I might have so maybe I can have more to give and be less of a waste.

That cycle rarely goes well. It doesn’t work. The ball of tension in my stomach eats away at the surplus making it smaller and smaller until I make myself sick and then spoon deficit is days away.

So yeah. If you are ever wondering if I dislike you and that is why I don’t initiate more conversations… probably not. I’m too busy contorting myself into awkward positions around the pain in my belly to notice enough to dislike. When I dislike someone it is pretty dramatic. You won’t wonder. It’ll be public. It is part and parcel of a thing that has been repeated at me for almost 30 years now in a wide variety of settings: “You know it wouldn’t kill you to try to be friendly with (person I dislike). “But it might. Best not to try it.” Mostly I don’t bother to dislike people that much. I have conflicting feelings about people. Sometimes I detect signs of patterns that freak me out but it’s usually combined with other random positive traits and I have no idea if my gut feelings are real or if I’m just a dick. In that case I will be consistent in public and private. I will tell you how I feel about you. Often even when you don’t want to know.

Yup. A problematic person. Hard to know. I know how many thousands of hours I put into my extended community in California. In the next 20 years of my life I will not be able to come close to matching any of the similar time spans in California. I’m older. I don’t have a job. I don’t go to school. The social community up here is very different and my ability to access what exists is almost nil. I don’t drive here and I drove all the forking time in California maintaining a network of relationship that spanned thousands of miles on a regular basis. Now I very seldom get more than 5 miles from my house. I don’t go farther than 5 miles from my house in every month. I had very few days in California where I didn’t go farther than 10 miles from my house throughout my entire 38 years living there. We were car people. That’s life.

I can’t anymore. My thumbs are jacked. I can’t grip a steering wheel without overwhelmingly agonising pain. I swear I am not just a pussy. I can’t do it. I know people are surprised that I can do all of the other things I do with my hands, but I have no more connective tissue left at the base of one thumb and very little left in the other hand. It’s bone on bone. Gripping things in different ways doesn’t use my thumb and the rest of my hand is fine. When I say I can carry something I’m not usually doing so at risk of strain to my existing problems. I am strong in many ways. But I can’t drive. I can’t create a wider social community by visiting people. The train takes a whole day. It’s hard to take whole days away on a regular basis. That is not how my life is shaped.

So I am putting drips and drabs and tiny bits of effort towards trying to exist in the wider water network around me but mostly I am in my tiny pond swimming around. The little tributaries that occasionally erupt that might allow me to move around are a little scary.

Being problematic is a complicated thing. Why don’t people just act right. Why can’t you just give more. Why can’t you just complain less. Why can’t you just need less. Why can’t you act happier.

Because because because….. because of the wonderful things I does. (Leave it alone. I did it on purpose. Don’t point it out. Requiring verb agreement in order to “understand” is elitist. Don’t be a brat.)

It’s all about rhetorical effect, isn’t it? There are times and places to insist on really precise language and phrasing. It’s taught when you go to school for that thing. I mean, I did teach English grammar as an English teacher. I was also correcting the other more senior teachers on staff because apparently I actually learned what was drilled into my head at university and when I am writing an MLA standard paper I will trot that shit right out.

This is not a space governed by the MLA. I am looking to communicate. I am looking to communicate with the kind of people who like and appreciate who and what I am and my native language is typing. It is the only one that taps into what I am really thinking and feeling and I have never found a way that works in anything like an equivalent manner with my voice. I feel stupid all the fucking time because I just cannot word. I am trying to analyse all the time whether or not I am doing something “right” for the setting I am in and I feel like I am going to hyperventilate because of course I am fucking wrong and that’s why people don’t like me and fuck.

Why did I even leave the fucking house.

Because that little do-si-do around the fucking topic of grammar is exactly the kind of tiny little thing I feel in my head all day long. HOW AM I SUPPOSED TO BE FUCKING CONFORMING TO SOME STUPID BULLSHIT RULE THAT I HAVE NEVER FUCKING HEARD OF NOW.

WOULD YOU LIKE SOME MORE FULL STOPS WITH THAT………???????????!!!!!!!!!!!!!!

Phew. I think I have been having some feelings. As stupid and immature as it sounds I feel strangely better. I didn’t go start a stupid argument and dump my feelings on someone. I did stand in my sandbox and I had a stupid feeling. I’m not hurting anyone.

This stupid calculus is involved in everything I say and do all day long. With my kids. With my spouse. With my neighbors. With people in the scene. With people on fetlife. With my actual blog I write with a slightly different “ideal listener” focus in my mind… it’s hard to explain. Well, not really. On my blog everyone is expected to know what Noah knows and here I don’t do that. Writing there is joining the stream full force and I have been feeling incredibly unconfident about doing that for a while. It’s a much larger thing to walk that deep into my brain.

Here I do try to keep the word count down. I swear to cheese. I try to pick a topic. I try to bring it full circle and actually find a little closure with it. It’s an essay, kinda, not just me thinking and planning and existing into the ether the way I do in my longer form writing.

The point of this essay was to demonstrate a fairly small fraction of just how much can go into being a problematic person. Maybe 5% landed here? So much censoring and picking careful examples that won’t repel the target audience by maybe sounding too close to home and thus like a preconceived dislike thus they should avoid me.

My personal ad was something like 15 pages long and I didn’t respond unless it was fucking clear you read the whole thing. I think my standards are getting more reasonable with time…

Another day

I didn’t get the trees in the ground. That’s ok. Instead I got a massage and picked up my prescription swim goggles (I am really excited about these) and Shorty got her glasses fixed and I did laundry and I spent time with Shorty setting up the computer and getting her on Minecraft before cycling off to a yoga class.

I keep thinking that I am closer and closer to my goal of being blacksheep when I grow up: cycling all over, swimming, running, walking, yoga, every other opportunity for manual labor…

I also spent some time resting in the middle of the day. I read a little. I feel like I had a really good day.

I haven’t been using the day planner over the past few weeks. I am feeling super resistant to it again. I have tied my usage to the kids and that’s a stupid thing. Because then I combine it with yelling and we all feel shittier. I need to be using it though because otherwise I am going to start missing appointments and we have a lot going on.

I’m trying to track my gardening stuff, medical appointments for everyone, exercise, money, cleaning, planning for EC’s Art Tour, video chats with friends in the US, kid social life stuff, kid classes, along with how much social time I am spending with folks in town. I’m not paying attention to Noah like I was. I feel like my sex drive is kind of napping–not sleeping, exactly. Shorty has been extremely clingy and needy and that is a real buzz-kill. I take a long-term view of this. She won’t need me like this forever and I feel deep satisfaction for the way EC and MC both feel deep in their bones that I will love and support them. This is important.

It is now time to go to bed with her.

But which past behavior?

I was reading this article about relationships (vanilla/romantic primarily) and one sentence really made me think.

“‘I often end up saying the strongest predictor of future behaviour is past behaviour.’” The author of the article is sharing what his coworker, a clinical psychologist, usually says to people who are stuck and unable to get out of a bad relationship. Not necessarily abusive bad, just unsatisfying/not meeting your needs sorta bad for the most part.

I had to meet a new psychiatric doctor yesterday. I was nervous because meeting new doctors is a crap shoot. Will they be older men who tell me that all of my testable, long-term health problems are all in my head? Naw, it was a young masculine appearing person who looked like they would fit right in at any party I would throw. I instantly felt comfortable. I was meeting him for the purpose of handing over the management of my ADHD and I needed to explain my history with medication, my other assorted neurological/mental health issues, a VERY brief summary of my physical health history, and about a 20 second primer on my history with assault so that I could explain how I came to cannabis in the first place and please for the love of god don’t tell me to go off it.

In the course of this conversation I came upon the challenge of how to explain that I am both consistent and inconsistent. My “past behavior” is all over the map on a variety of different axis. I managed to complete my bachelors and my teaching credential but I failed out of grad school at the very last minute because I just couldn’t do more of what I had been doing. We’ve lost a lot of money over the years because I fuck things up regularly. I fuck up in every relationship. I am incredibly variable in how intense/defensive/aggressive I am and if you come talk to me on the wrong day or at exactly the wrong minute on an otherwise good day I might react like a complete dick. That’s consistent.

What is also consistent is that I show up when people are having an emergency. I help people fix problems. I am gentle when I really need to be. My kids have figured out a trick. If they tell me, “I need to tell you something and I’m scared to because this is the sort of thing you might get mad over. I need you to not get mad.” Then I take a moment to pause every other single thing going on; I fully focus my mind and my energy on being calm and I say, “Ok I am ready to hear it.” Or I say: “I am not capable of listening until x” where x might be a time or the end of a current activity and then we go through the rest of it like normal. Then we fix whatever is going on.

I know that when they say that they are asking me to put myself aside and just be support. I can’t do that 24/7–it will grind me into dust. It is very high cost to put yourself aside like that. I don’t know how therapists do it. Maybe it helps because they usually aren’t having to do that in their personal lives? Dinno.

Anyway, the reason I put this here instead of my blog is because this idea that past behavior is the strongest indicator of future behavior is both useful and problematic. I started dating Noah when we were 22/26. If you were to look at the first four years of our knowing each other you would think that we would still be doing almost exclusively slightly rough penetrative sex and nothing else. That’s not at all what our relationship is like at this point. Neither of us have the physical energy or the time to have sex 2-4 times a day every day. That’s just not something we can manage in our life. Putting that much energy into sex requires you to not put it into other things (children, work, other hobbies) and we just can’t do that anymore. We made commitments. Commitments to be consistent. Oh, shit.

This is something I’m thinking about as I’m trying to learn how to deal with my body in the late-stage motherhood zone I’m in. I may have up to 10 more years until I pass into being a crone (a phase of life I am absolutely ecstatic about getting to because long story I’m not going to write here) and I need to figure out how to manage my body in the meantime.

I have PMDD along with all of my other things. Basically what that means is that I am exquisitely sensitive to every hormonal variation in my body. I think of my menstrual cycle like riding a dragon. There are times when it is wild and bumpy and I hold on to functionality with my fingernails and there are times when it is placid and easy and there are times when it takes every ounce of self control I have not to go get in trouble. I really like getting in trouble, except when I don’t.

A lot of the PMDD extremes were dulled by the postpartum period. It is amazing to me how much difference there is in inhabiting my body when I am not still reeling from the influences of parasites who would have been happy to kill me. Did you know that embryos/fetuses colonize the host body? There is a theory that it happened that way because it is a way for the first fetus to have influence over the future of the parent that will care for them. My body was not real interested in having another baby for most of the last four years. I don’t want another child but right now my body is telling me that the only important thing in the world is getting pregnant. At other times in my life when I did not want a child but my body said, “Hey let’s make a baby” that’s when I would go get into trouble.

You would think this would be a bonanza for Noah. He isn’t in his 20’s anymore and he’s had a lot of years of consciously dampening his sex drive because we just couldn’t do much about it even at the rare times I was even a tiny bit interested. Mostly I wasn’t interested and the idea was appalling.

So which past behavior should we look at to decide what I am going to do in the future? Yeah, that’s tricky shit. I mean, if I look at how Noah was behaving from 26-35 I should think he isn’t capable of getting up every day like clockwork and making breakfast for the family. He wasn’t a regular sleeper/riser at other points in his life. He chose to learn how to do that.

We go through phases. We go through stages. Noah wooed me by telling me that if you can’t look back on yourself 18 months ago and say, “Wow I really sucked” then you aren’t trying hard enough.

So now we have to figure out how to transition into how to ride out the next phase. We can’t run off for weekends together to break rules together to do wildly-inappropriate-for-children activities for hours and hours. We get a three hour date a week in a space that isn’t perfectly soundproof. We can have sex at night before going to sleep knowing that we need to be really really really quiet because you can hear freaking everything through the walls in this house. It’s a real buzzkill when it starts getting good and you hear a knock on the door and, “I need you; I can’t sleep without you.” Sigh. This is not forever.

Don’t have kids unless you believe you will never be ok without them because this shit is a lot.

There are lessons here I need to learn. Lessons about patience and being consistent enough and forgiveness and love and what it looks like to accept that you have to make mistake after mistake after mistake after mistake if you want to get good at something.

I want to learn what it means to be in a happy family, this is my one shot.

So how do I figure out how to manage the part of the dragon ride where all I want is to make decisions other people would view as “bad”. I’m not in that life phase anymore. I can’t go to a Burner party and do drugs with my friends and hunt for interesting prey. I can’t do a lot of things. I get to behave. I get to be a good role model. This shit is boring, y’all. I’m like a zoo animal. I hurt myself when I get bored.

You know how I have 97 projects going at once… most of which I will finish… eventually… I am not a person who stays bored.

But I have to. I have to figure out how to make furtive sex happen. I need to find a way to inspire Noah to continue on this road to queering our sex. Sex is not dependent on a hard cock. There are a lot of reasons that a 40-something dad who hasn’t been having a lot of sex for a decade and a half is not going to be able to get and stay hard for 3-5 hours a day.

It’s not fair to say that what a person has done is the only thing they will ever do. Our sex life once upon a time was tremendously centered around a hard cock and now it isn’t. If I am going to stay out of trouble then our sex life needs to be a much more diverse experience. That’s not a lot of fun when you have to be almost completely silent.

And I was paged for breakfast