Tag Archives: homeschooling

So this is what is going on with me.

Right now I am on a brief rest break before I either decide if this is a longer break so I can go to the queer social night or if I am going to go outside to work in the garden. Right now I am trying to get the house/garden set up for an open house with the home ed folks so I feel a lot of get up and go for the work. I’m trying to figure out how I can lay out walkways that let people understand clearly where I don’t want them stepping in my chaotic garden full of plants and different kinds of mulch all over the place.

So that is one piece. I have various irons in the fire with the home education community. I’m trying to figure out which relationships I should cultivate harder and which ones are unlikely to be a good usage of my time. I am feeling incredibly scheduled again. Time is, as it will be for the rest of my life, the biggest limiting factor for everything I do.

Exercise is going to be really over-represented in my schedule for the next five months. I am increasingly conscious of just how much cross training I need to build supportive muscles that are not used in running and to relieve tightness. I’m old. I need so much more effort to get to baseline and it fucking sucks. I’m tired.

Which means that if I am going to effectively absorb and use this exercise to actually get stronger I must sleep. Like, a lot. Even though it looks like daytime until almost midnight and then it is dusk for a little while again before it is daytime again. I’ve never been a great daytime sleeper. Which means I have to get up pretty dang early every single day and get in bed before 10 every single night. I don’t do well with adding in a run later in the day. As my runs get longer and longer I need to mostly just start earlier.

Dang, the other day in the park I met this older lady who told me that she ran her first marathon at 51 and she did it in 4 hours and 45 minutes. Fuck. I can’t even. I am really really really really really really hoping that I will be at least 1 minute less than 6 hours. I am not greedy. My previous shitty time was 6 hours and 45 minutes. I would desperately like it to be shorter than 6 hours. But I’m nervous sending that wish into the universe because I kept saying “I would just like to finish labour in 24 hours” for all three births and I never fucking did. That was a giant failure to manage a prediction/hope/goal for my bodily functioning. I actually went into the first marathon thinking I’d be something in the neighbourhood of 5 hours and 30 minutes. lololololsob

Since I am trying to decide if I am going out tonight: I could go find the giant pride flag and figure out the flagpole situation right *now* and have it up for my ride in since it’s pride month. 🏳️‍🌈 And it is pride month. Seems like a great time to be bonding with my local homies before the big event happens with all the folks who travel in from the villages.

Sometimes I wonder if we really understand people in the past as much as we think we do. Like, if I did not practically tattoo “queer” on my forehead every so often I would be entirely unremarkable and perceived as a normal cis-het mother. I really do believe that queerness is an aspect of my personality that is outside of what other people describe as their normal. It is part of the ravenous predatory streak I have. I sit on myself so hard at this point. Although the funny thing is that I don’t feel it as intensely as I used to. I suppose I would describe it as once upon a time I know I would have gone there. I am not going to speculate if that would have gone well back when. That would not go well now. Ok, bounce eyes.

Sex is complicated in a place this small. Holy crap. The dynamics scare me. Like, honestly. I fucked around so casually for so long. I would not understand how to avoid pissing in other people’s cheerios. No freaking wonder most human beings have low body counts. Yikes it could get really challenging in a place this small. I think I lack the diplomacy to do this tactfully. I am glad I don’t have to find out. It will never matter because Noah is not allowed to die before me. He has been informed.

But good golly I’ll dress as a garish motherfucker and wave a flag sometimes and coyly answer questions about for whom am I advertising. Since it really will never get to anything other than friendship I must fly that kind of outrageously if I am going to find my people and I am going to find them and find ways to integrate them into my life. I believe that queers need each other. Many of us don’t have families of origin we maintain contact with. A very large percentage of us do not have children. That doesn’t mean that any of us deserve to be alone. We have to find each other.

I mean, I can literally say: “Hey if you are one of those queers who feels like they really want a place to go and spend time and make deep community… I am going to be buying a tiny piece of land.” A piece of land small enough that we can do the vast majority of work by hand with folks not feeling exhausted at the end. I know so many people who talk about how much they wish they could build something like that. I want to make community. You’ll be welcome to come hang out in the forest you build anytime. The gates don’t lock.

I don’t wanna be Auntie… but I wanna be Auntie. That woman has had a full house of people she has been helping all of her life. First it was foster kids her mom took in and then it was all the stray people having troubles she knew. She raised her sister… and her sister’s kids… and her sister’s grandkids…

I wanna be Auntie with upgrades. She helped people in a way that resulted in a lot of deeply dependent, incapable people. Not all of them. Some of them just needed a safe place to sleep and eat for a couple of months then they went on their way and did fine. But then there are most of the rest of them. Last I knew she was in her late 70’s and working to pay a mortgage to cover the refinances her husband took out and to pay to take care of all three of her children who live with her.

I am not fucking interested in disabling my children.

I want to help people learn more about how they can teach themselves the things they need to learn in order to move forward. I mean physical skills, intellectual skills, emotional skills, academic skills, and most importantly how to set goals and work towards something they want. They get to figure out what that is. As long as you are not able to pick one I’ll push you through picking something for a while and we will both learn a lot as you learn why you end up disliking it. Over time they gradually pick better and better projects for themselves. They still fuck up… a lot… but that is the point. Fuck up now. Fuck up in ways that won’t matter in 10, 20, 50 years. Hell, most of these fuck ups won’t matter in 5 minutes. Just do it. Fuck up. Learn the lesson. Don’t hold back and wait. Don’t waste time. Think of all the better decisions you will make once you learn this. Doesn’t that sound nice? At some point it will be easier for you to figure out which decision will work for you without having to suffer so much at so many junctions.

BUT THEN YOU MOVE TO ANOTHER FUCKING COUNTRY AND HAVE TO LEARN ANOTHER FUCKING CULTURE AND JUST FUCK YOURSELF ALL THE WAY UP.

Cheezits mother trucker.

So I’m sorta categorising my community efforts as:

bike
queer
kink
maker
community resource sharing
gardening
political
proximity

That’s why I feel like whoa. That’s why I don’t feel like I’m getting to know people quickly. I’m trying to duplicate the full spread of the type of web I had in California and build all aspects of it at the same rate at the same time. While I’m fucking exercising a lot. I suppose the bike community is sorta good for that but a lot of my time there feels super awkward because I am not able to hear that well.

I mean look at the size of the fucking social life I’m planning for the next few decades. I’m going to need to be a fit bitch to ride my bike around to all that shit.

Cause that is what I’m aiming for. I’m going to go do shit. I’m go to make things with people. I am going to invite people to help me with the property.

It’s a whole fucking thing. If you ask people to do something for you they will like you more. And co-working is my biggest love language so I will invite people into my bubble and see who self selects in. And that will be a lot of the inner layers of the core of the web. That’s how it tends to work. It won’t be a perfect alignment, sometimes those very first points on the web are smaller but they lead to a giant nexxus.

That’s how your bestie picked by proximity ends up being the one to tell you “You really should go to the Disaster House Party. I think you will have a very good time.” Reader: I married the guy throwing the party. And then she leaves you to marry an admittedly rather cool guy who happened to live almost halfway around the world. So you name your children after each other because you miss each other so much. Then you decide that 10 years is long enough and you move 2 fucking miles away from her.

I mean, some aspects of my story are pretty hilarious. I follow arcs a long way. I know I should write you an email Pam. Hello, this is my social anxiety voice. You write your journals privately and share them selectively in email. You have what normal people might call “boundaries”.

Hello internet I’ve missed you. I miss this part of my inner story. Most of the time since I moved here I shut it off as fast as I can. In any conversation there can only be a couple of paragraphs and I know that I’d better keep my transition points SUPER FUCKING OBVIOUS while not in any way shape or form seeming to put effort into my, inevitably slightly graceless, transition into the next topic. Cheers, mother trucker.

Fuck every person who has ever told me to just be myself. Dude you don’t even know. Cultivated, curated, deeply thought about choice goes into so much of how I hold my body. I fucking pre-game for social events. I specifically think about what attitude I am supposed to exhibit. I think about how I need to hold my body to get the response I want. It varies based on the crowd and reason for the event. I am not natural but I am comfortable with what I am doing. I have worn this personality/skin-suit mechanism for quite some time. I struggle when I know I’m going to spend a lot of time pin-ball whacking against a lot of barriers. That is the natural and normal early stage of a relationship.

That’s where you have to refine your mental image of this person to progressively more specificity as they become more and more of an actual specific ensemble cast member instead of being part of the chorus in setting B. This is an especially graceless stage for me. Because I am shifting through everything I remember about someone as I talk to new people. I’m trying to come up with every detail of every conversation for the first long while. That way I can follow up on specific topics and build a sense of connection. What? You don’t think through this process? You think I just know so much about you because I happened to have that for you? Nah, babe. I am far from perfect but good golly I work hard. It’s hilarious how often whatever that person’s name is doesn’t make the connection. It depends on how often I hear other people talk about them. It depends on how well embedded in the web they are from multiple directions. If I hear their name I place it in a storyline in a way that I don’t from talking to someone and looking at their face. I will remember all the feelings I’ve had with them and I can sometimes, when I’m lucky, get people to also have that glimmer of oh yes. We had fun. I’m fun. Then we go on with our lives without even having to get into it. But goddess that takes time.

I’d really like to figure out how to figure more rhythm around my efforts in various places based on moon stuff just so that I have to synch with it more. I think it would benefit my garden tremendously. There are a lot of gardening tasks that want about a month in between the next thing. I need to build that feeling into my body and associate it with other definitive parts of my routine and that means I need to tie it in with patterns in the house.

I get to play with building a system. The funny thing is that it will go best if I make a plan and organise and make whatever decisions I want to make then I inform the kids what work they will be doing the next day so they’d better make sure they don’t have an emergency project to do tomorrow morning. Planning and making an agreement about what you will do 100% OF THE TIME RESULTS IN SOMEONE BEING EXTREMELY ANGRY AND FURIOUS.

See, I’m teaching them life skills. Muahahaha.

We have a real live group project all around us every day. We are all working on projects big and small all day long. We bounce around talking to one another and then going off to do one on one with someone for a while then we have another most-of the group contact for a while then the whole family again. We do it over and over all day. They are all managing different pieces of it.

Dude. I need to start clearing off one wall at a time in the studio and deep cleaning it. Cause then I can invite other people to scribble on the wall when they come over. I’ll clean it very slowly adding new nice white space only gradually. That way if people ever want to come claim a new place much further around the room their part of the weft will show up brightly.

But right now I feel absolutely knackered. I feel like I have a 20lb sack on my head; I am so tired. I am going to be running 3 miles tomorrow morning. I am going to be running 6 miles on Saturday morning. I uhhh think that I probably ought to stay home tonight and not go out. Ok, one decision made. I need to be in bed by 9, not in a bar in town starting home at 9.

Yeah. I think I am out of typing. That’s all I can be semi-coherent about and I doubt any of that was coherent. But I feel better. And that is good enough.

It’s not about you, David.

Time to get back on track.

The class should be able to run without you

Pacing

2 Replies

I am sure there are many people who would not appreciate me saying this: but I miss lock down. I didn’t have to worry about balancing the various needs of my family members with various outside the home activities and people while also figuring out when to get chores done. I slept more and more consistently. Lately my sleep is shit again.

One of the problems with the age spread of my children is that the shape of providing “structure” for each of them is different. Youngest Child is still small enough that she should mainly be around kids through classes and they all want to start mid-morning and last for around an hour before popping the kids out on the other side expecting snacks and a trip to the park. Most parents of children in similar ages are either nearly in nursery or already in nursery and they are specifically training the kids around having the habit of being out of the house 5 days a week for most of the day so the children manage the transition to primary school.

I get it… but I also find that doing that in the morning mostly shoots my wad and I’m too tired to come home and do a big project of my own unless I do it after dinner and give up sleep. If I am out for the morning the mid-afternoon to dinner chunk is mostly me interacting with the older kids around their school stuff and my brain is just not currently capable of doing something for me while I talk to them. Yay ADHD medication? It feels like too tired because I can’t push my brain into doing many things at once on this medication unless I am super well rested.

If I get a good night of sleep and I start my project early in the day then I can normally handle talking to the older kids about a second thing while I work. (Most projects of this type being garden or cleaning related.) I can talk to them about their literature reading progress first thing in the morning while we continue working on removing nails from the old shed boards because we are going to repurpose the wood. But if I try to do the exact same thing starting at 1 or 2 I get confused and befuddled and irritated and angry. My brain says I can fuck all the way off.

So I’m not making forward progress on a lot of the outside projects I want to do since YC started classes and that’s feeling frustrating. The older kids have enjoyed the descent into too-much screen time that happened during my last painting project and they are absolutely loathe to give it up. They really won’t come out in the mid-afternoon and help me. I can push it in the mornings.

This pacing is not working and I feel exhausted and crappy most of the time. It doesn’t help that Noah’s work schedule is hard to figure out and manage. Working for a company that is 5 hours behind us in time zones gets to be pretty challenging.

I am almost to the end of this session of little kid classes. I am going to try and move the timing. If I can get her into classes that are more like after lunch and less like after breakfast then maybe I can get the big kids through helping me instead of getting on video games first thing then fighting to not have to get off later.

I am getting to the point where I am low key signaling distress in ways I don’t mean to and that’s a problem. Fairly random strangers keep asking me if I have any support because it sounds like I have a lot going on. It depends on what you mean by support but mostly… no. I have been shoving my mental health care needs in a box for a couple of years now. Every so often I open the box long enough to shove something else in then I quickly tape over it again. I’m not ok. I know that lots of people aren’t ok and I don’t have it bad in the scheme of things.

I’m not ok and I don’t have a way to cope with that right now. Therapy isn’t an option–I spoke with my GP recently about head injury stuff. In the course of the conversation she asked me how I was overall coping and I told her not that well. I had previously believed that I would be a lifer in therapy then I moved here and that’s not an option. She told me that she thinks I am being very kind to notice just how limited the access to therapy is here and deliberately not put myself on a waiting list. She told me that she has seen me enough times now to have a sense of me and she thinks that any of the therapists in town could be nothing other than a kind and sympathetic ear because they don’t have more training than I do after how much therapy I’ve had.

This is not the first local expert who has told me that I am the best source of support, tools, and tactics for managing my issues and those of my children in this area. Apparently I put those decades of living in the bay and having access to experts to very good use. Every so often one or the other of the older kids has something challenging happen with regard to mental health because they are people and life is complicated. When that happens I ensure that we have privacy and we get into the heavy stuff. Both kids have said, “I’m sure if I tell you about (_____) you will be upset with me.” I tell them to give me a minute so I can fix my face. Then I put on the “I will not judge you; I will be supportive and unsurprised by anything you say because it’s ok for you to be a person on your journey” face. We talk about their big feelings and the situation and why it is both normal and ok that they are struggling. We talk about the fact that it is hard that we can’t hire therapists to be there through these sorts of things going forward. We talk about what things they can imagine doing to change the situation. I ask if they want to hear about any other options I know about–sometimes they do and sometimes they don’t. Boundaries, yo.

I am not your therapist. I will never be a completely neutral party. I will never be 100% on your side because I am often the person you are in the most conflict with. That is rough. But I am not going to judge all of the things you think I will judge. I am not going to be upset about even half of the things you think I will be upset about. And as you get older I will have to be less and less of who you consider when you decide how you will solve a problem. That is the way forward. I am not and I can never be your therapist but I can help you talk out some of what is bothering you. I definitely don’t have all of your answers but pretty often I do have useful questions. I have been very lucky in my life and the state of California made sure that I had access to lots of people who asked good questions.

I need to start writing even if I am afraid of consequences. I am going to be the closest thing to a therapist I have going forward. That process doesn’t work well without the blog. As my Eldest Child says: “When I write something just for me I delete it or rip it up most of the time because it never seems worth keeping. When I just go ahead and post it right away then even when it isn’t perfect I get feedback and I have to act like it was real and I have to carry on forward as if it has happened and can’t be taken back.”

Of course, she is talking about the status of her fanfic and she’s posting on Wattpad so it’s slightly different. I’ve gotta say that her comments are probably more vicious than mine ever are. I worry about the consequences of my writing because working out my feelings is not a pretty process. Sometimes I hurt people when they know what is going on inside me. If I just shut my stupid mouth and stand near them then they don’t know what an asshole I am and things carry on without too big of a problem.

Being real about all the strife inside my brain is scary. I just about always have as much pull towards people as I have push away from them. My magnetic polarity is really confused.

The thing is: I do shitty things to hurt myself when I don’t work through the stuff in my brain. I am long past the point of the kinds of self-harm that would land me in a psych ward but I am not kind to myself. I do not take good enough care. I do things that will cause long-term damage through neglect or lack of love. It’s little, cumulative things but nothing dramatic that will force other people to intervene. I am smart and I don’t want intervention so let me tell you I will stay below that fucking radar for the rest of my life. There is a lot of room under the radar line to hit a bird and have it destroy an engine.

I am not acting like I am a creature I love who needs to be taken care of. That means I can’t model what that means and that’s a problem. I am very certain that I will never again have a person I talk to all the time to help me sort out my brain. So I have to do it. I need to start doing it a lot again. Which also means I need to stop sitting in this damn chair and use the standing desk. That’s going to have to be step one, Krissy.

An affirming phone call

7 Replies

I want to write this down so that in the future I can remember this feeling. I talked to a buddy in town yesterday; she works in special education in an autism class. This is sometimes complicated for her because her training is entirely in language teaching (usually foreign language to mainstream kids) but this was the job she could get around here. She has been given very little additional training/teaching so she is figuring it out as she goes and reading books on her own to help her in her job. Also worth mentioning that her daughter is Middle Child’s best friend.

We talked a lot about what I’m seeing and what I’m trying to figure out with regard to helping MC. We talked about the areas of severe academic delay (specifically: MC is effectively reading about 4 years below grade level and writing 5-6 grades below level) and the complications that occurred in the classroom when MC attempted to go two years ago. We talked about dynamics in our house around chores/getting stuff done.

She was very clear that she didn’t have a lot of specific advice but she was a sympathetic ear and she talked through her experiences working with families in her classroom. She understands why I am not super keen on pushing more in the direction of the National Autistic Society help and why I have the worries I have. I talked about Auntie who is in her 80’s and has her three adult children living with her because none of them can take care of themselves and live independently. I talked about my brother Tommy and the way he physically abused his entire family and why the tantrums/violent outbursts are so triggering for me.

Side note: in the past couple of weeks it has come to my attention that pretty much all of the friends I have met here have basically no idea that I have/had siblings and they know nothing about my traumatic family background. I made a couple of comments recently in context in conversations in completely different groups and they all responded with extreme shock and complete surprise. “How have I been talking to you for this long and I had no idea any of this happened?” Well… I don’t trauma dump anymore. I don’t share my mental state by and large with newer friends here. It isn’t relevant to mention any of these things if I’m not going to talk about anxiety/depression/trauma. So I don’t. This is part of my strong feeling that I am never again going to make a close friend where I talk about the really hard stuff. I will have surface friends and basically shut the fuck up about my brain going forward. It’s not safe to talk about. I can no longer absorb the consequences of being honest.

But I do sometimes need to talk about educational stuff and I need some amount of support around that. We talked about classroom strategies that she uses and how functional/useful they are for my child. We talked about the possibility of Youngest Child going into school here and the likely outcomes of that.

It is her professional opinion after working in special ed in local schools for several years that my children really are better off at home. The resources are thin on the ground and are only available for the most extreme cases. MC has already been on a waiting list for assessment for over two years and it could be another year or more before they are seen. YC would be looking at four or more years given how the waiting list has expanded over the past two years and possibly more like six years. The resources for private assessment are many hours away and their waiting lists are closed because they will not be able to get through any additional patients any year soon and they don’t want to have a waiting list that goes beyond two years. When they do reopen their waiting lists they will have a strong preference for siblings of children already in their system. Even if/when my children managed to be assessed there are very few resources available for kids at their levels. (She knows my family and is comfortable stating that.) Autism resources are only available for kids at the most extreme/non-verbal end. AHDH resources are pretty much limited to medication or being taken out of a mainstream classroom and not taught much. Other Pervasive Non-Verbal Learning Disorders are pretty much ignored entirely.

She and I have had many a chat over the years about our classroom experiences with special needs and the differences between what is given to 504/IEP kids in the bay area and what is available here. She contrasts this with what is given in her native (other European non-English speaking country that I won’t name for a vague gesture in the name of privacy) country and she is of the opinion that my level of training is higher than any co-worker she has ever worked with. She thinks American understanding of education and specifically special education for disabled kids is head and shoulders higher than anything available in Europe. She is stunned by the sheer variety and kinds of books I have read in order to be a more appropriate teacher for my children. I had previously mostly focused on the ADHD/dyslexia/general atypical neurodevelopmental needs reading stuff in conversations with her.

We shared the perspective that there is a very careful balance with special needs/disabled children and adults between giving them the help they need and enabling/infantilizing them to the point where they fail to learn skills that would allow them to be more independent as adults. When you are in the family you lack the objectivity to see the larger arc and how your actions are impacting your family. When you are in the classroom/an outside observer you lack the ability to see all the nuances and decisions that are creating the entire situation so you are ignorant of the full reasoning behind what is happening and whether it is necessary or not. We talked about how difficult it is for parents to hold the line and insist on many of the pieces of development that work towards independence because fighting every battle all day long is exhausting.

Then I said “And I get to be the parent and the teacher and be with my children for nearly all of their waking hours! It’s great!” She kinda choked for a minute and then gushed about how amazing it is that I do what I do with my kids because she sees the results and she sees us interact and man do I keep it together.

That was so fucking validating. She hosts MC for sleepovers pretty regularly. Her daughter is an only child and she’s pretty happy to have a friend over quite a bit. Her daughter has other local friends but has an easier time with MC than with a lot of the kids from school because my buddy and I have fairly similar perspectives on manners and appropriate ways to interact. Because of the one on one social dynamic and the fact that MC is highly motivated to be liked by people outside the family MC really shines in these visits as they get to show off their pride in being able to help with household chores and how to speak with people.

It’s really fascinating seeing how my personality plus my parenting techniques interact with my childrens’ personalities and needs. MC has a very strong basic need for control and a lot of anxiety around demands being made of them. However they have been raised in a 24/7 environment where there are very specific high standards about how we talk to one another and “we are workers, not shirkers” is the family motto so they have adapted their need to not be directed in somewhat surprising ways. The PDA profile fits them to a T and I can go down the list explaining all the ways they resist/avoid work… yet they still manage to do a significant amount of work because of the desire to be a “good citizen of the household”. It’s complicated/complex.

MC has very much internalized that a lot of the ways I am strict/intense in my demands are because of my internal terror that I will fail them as a parent and they love me; this makes them spotty in how they learn and follow through on what I ask but there is this undercurrent of wanting to try. They may take 6 fucking hours to sweep the kitchen most of the time because it is not ok with them on an internal level that they are being told to sweep the kitchen but when they go to someone else’s house and they want to show off they can do it in 5 minutes and tell their little friend all the specific tricks that make it easier/faster because they get to feel like a teacher and they fucking love that.

Hunh. I just had a thought. I kind of wonder if MC is going to finally be interested in learning to write when they get to feel like they are showing YC.

It is quite a challenge to get them to practice reading out loud to me but they do love to do it with YC. When they babysit (more like “mother’s helper” because everyone else is in the house but distracted with video calls or taking a bath) they do a lot of reading/talking about learning. Very much “Having someone read to you is the best…. let me show you.” So much of my teaching approach relies on careful observation and figuring out how to turn my kids personalities to my advantage. That and one to one teaching gives a level of intimacy that simply cannot be matched in a larger classroom. That is not a slam on classroom teachers in any way. I was not as good of a teacher to anyone in particular when I had 150 students. I did my best and it wasn’t what I can give my children.

I feel so much insecurity and anxiety about whether or not what I can give is good enough. I worry so much about letting my children down. It does so much to increase my confidence when I can periodically touch base with another teacher/educator and I can go through my approach and methodology. I do have a fairly extensive education when it comes to child development and what different special needs entail. I have worked very hard on understanding theory.

Towards the end of the call I said, “Something I am very conscious of with regards to my teaching and parenting is that I literally have more will and force of personality than most people. If I believe I am doing the right thing it doesn’t really matter how hard it is or how much time it takes I will do it. It is part of how my brain acts out hyperfocus. When I feel secure that I’m doing the right thing I have just about unlimited energy. I know that if my children were in a classroom they would lose out on that for a big part of their educational support because teachers by and large don’t have that intensity for a myriad of appropriate and healthy reasons. My kids do have special needs and I knew they would before they were born and I am fully committed to doing whatever I have to do to meet them. It is just hard and scary when I feel like I am flailing and I don’t know what to do.” She said that matches what she sees and my kids are lucky to have me.

I feel a lot better after the phone call. I do cycle through novelty. I do renegotiate how things are taught and what things are taught. I do hold the line on “You have to learn a basic level of functionality in order to be an independent adult and we are going to get you there.” I do push/encourage my children through learning and growing in ways that overall result in them liking themselves the vast majority of the time. Even when my kids struggle with anxiety there are usually pretty obvious organic/social reasons that I am not directly to blame for (obviously with the exception of genetics). I am not mean to my kids. I don’t beat them down. They are pretty happy and healthy and secure. Even when they are struggling for a while it is usually in ways that are predictable and appropriate developmentally and I help them pivot towards the path they want to be on.

I am not the shitty parent I sometimes fear I am. I am not perfect because there is no such thing. I do pretty well though. I refuse to stop learning and growing and increasing my ability to meet their needs. When I fail for a while I use that as motivation to push through towards a deeper level of understanding so I can better succeed as their needs change as they grow.

Part of the modeling I want to do for my children is showing that these periods of disequilibrium mean that you keep trying and learning and growing. You don’t give up and declare yourself a failure. As long as you are alive you have the chance to keep growing. Don’t give up on yourself. If we aren’t going to meet my personal goal of having my kids basically ready for complete auto-didact learning to finish the growth necessary for adulthood by 13 that doesn’t mean you can’t hit that mark by 15 or 18. It’s ok that you need the growth curve you need instead of the growth curve I had in my head as ideal. That is not a failure. It is a miscalibration and we’ll just keep going.

Frankly the way that MC needs to reassess every few months and needs a tremendous amount of novelty in order to keep doing things… looks like how I have managed my adult life. I go through intense bursts of focus in different areas. I have to restructure chores and tasks and hobbies regularly or I burn out. You know what? I’m not a failure. I do cool stuff.

MC will too.

Maybe that’s it?

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It’s not a secret that I have long had struggles with my middle child. I adore them and love them and worry a lot about whether or not I am doing the right things for them. I tried to get them evaluated by Stanford before we left California and they got a 15 minute yes/no questionnaire that wasn’t at all useful for data on understanding them. I was frankly pissed off. When they enrolled in school here after a month the school asked for permission to refer them for extensive neurological testing because something is going on. We’ve now been on that waiting list for a bit over two years and every sign points to the likelihood of it being another two years before we get answers. But kiddo is rapidly running into puberty when everything is going to get exponentially harder. My window for effecting major change is closing.

Due to all of that I’ve been doing more research. I am heading in the direction of Pathological Demand Avoidance. (Sometimes referred to as Excessive Demand Avoidance because pathological has a bad reputation. I mean… the definition isn’t awful. The word seems appropriate. I get that colloquial associations can be complicated.) It’s not really diagnosed in the states, this is a UK recognized syndrome. But holy shit when you read up on it: https://www.childrenandfamilyhealthdevon.nhs.uk/wp-content/uploads/2020/05/pathological-demand-avoidance.pdf Oh. That’s my baby. I read it and felt strong recognition. I showed it to Noah and he could illustrate each section with repetitive conversations we’ve had in the past. I read it to kiddo and they said, “Oh wow. That sounds like me.” So whether or not we ever get to an official diagnosis we are treating that like Plan A going forward at this stage.

This has some potentially wide ranging implications for the future. How we home educate needs to change pretty broadly because neither of us can handle more years of crying all the time from frustration that they just won’t fucking do as I tell them to do. We need to find new strategies for figuring out how to get stuff done together and separately. And frankly my plan had been to use our investment money till we die and have the will put everything left towards charities. That may… not really be an option if my kids are not going to be 100% able to support themselves and work. I’m still in the preliminary stage of course but I’m looking into stuff written by adults with PDA and mostly they are not independent and able to work.

(Very briefly if you don’t want to read the whole description on that web page: Pathological Demand Avoidance is very related to autism but there is no certainty whether it does or does not fall under the Autism Spectrum Disorder label. It has enough specific quirks around sociability that it seems to be related but not the same. It is a syndrome where anxiety is the dominant part of the difficulty and the stress of being told what to do is so intense one shuts down. By golly if that doesn’t describe my baby. I’ve been saying for years that when they have a list of things to do the most likely way for them to spend the day is staring at a blank wall, numb. Or huge violent tantrums. It’s a wild card sort of option.

I don’t say any of this to complain, criticize, or put them down. I am looking to understand better so I can figure out how I need to change my parenting so my child can have the maximum level of mental health and support available. If this is what is going on I want to see what needs to happen so they can thrive not so I can figure out which levers to pull to make them change. They are who they are. I accept them and love them. But I have clearly not been handling things in the best way and it’s a problem and it needs to change. We both feel bad a lot of the time and I believe with my whole heart it doesn’t need to be that way.

We are both smart. If we understand what direction we need to head in we will figure it out. One of the ways I am that I believe verifies my own autism diagnosis/autistic personality is that I need to have a set of rules/labels that tells me how to behave or I flail and I experience a fair bit of distress. If I can figure out what label is most accurate then I can do research on what works best then I can act it out. Work with what you’ve got and the whole thing goes better.

You just keep going

Do the best you can