Monthly Archives: February 2026

The downs are harder to write about now

When I was younger I think it was easier to write about the down things that happened in my life. I had little care for the feelings of others as I listed my opinion about what was happening around my life. Now I worry a lot.

I was feeling like we were hitting equilibrium. My kids didn’t agree and hoo boy it’s been a rough few days. I don’t want to list the petty squabbles for posterity. That feels unhelpful at this juncture. Not being able to put these threads down is feeling bad. It’s harder for me to sort my feelings when the threads all stay in a jumbled mass and I can’t figure out how to sort them.

I feel like I need to start insisting on a lot less computer time for those I still influence. I feel like the current round of unhappiness ticked up not long after folks were allowed a little more freedom with screens.

I have mixed feelings about the ways that parenting shows me over and over that children do not benefit from complete freedom. They need structure, support, and scaffolding to grow in particular directions. They need a leader, a guide, a facilitator. They don’t need an authoritarian leader. They don’t need to be forced down a path. They shouldn’t be allowed to follow paths that will cause harm. Learning how to tell when a mistake is going to turn into a bigger problem is hard.

I never feel wise enough. I’ve made a lot of mistakes. I’m a poor example for how to do things correctly.

I miss Noah so much I feel like I am going to explode. I miss being able to hand problems to him. I miss being able to share my brain with him. I miss sharing his brain. I miss sharing problems. I miss being part of a team. I miss feeling accepted with all of my flaws fully on display. I miss feeling secure. I knew Noah loved me. I knew I was lucky to have a partner who cared so much about me. I am sad my kids don’t get to have him around loving them so much they couldn’t entertain teenage angst for long.

The world feels darker and harder and less full of hope. I feel so much less capable.

I think we are on the far side of the family meeting. I think I know what we need to do to move forward. It’s going to be a lot of work. It’s going to require me doing things I hate doing and I find enormously stressful. With luck, if I succeed, I will make my life easier. We’ll see.

I feel overwhelmed in every way. I’m in a lot of physical pain. I’m exhausted and I can’t seem to bounce back.

Oh well. Life isn’t going to wait. I’ve got stuff to do. Shortie is up. Time to make breakfast.

Shame is hard to carry

We had the worst family meeting ever yesterday. Most of the time when we have a family meeting, someone is struggling the most and we balance the load differently so that person has greater ease until life settles down a bit.

That’s not an option right now. I’m really struggling with the fact that everyone is at capacity.

I want to, but I won’t get into the laundry list of health issues my kids struggle with. I feel really guilty about the genetics they inherited. Noah and I had too much in common. He was freakishly hypermobile, but he had no pain from it. Just a bunch of the weird add on EDS stuff. He was like, the last Zebra standing in our house most days. He was more sturdy. The rest of us are not. Our joints melt like butter on a hot day. They simply don’t function as well as one might hope. I don’t want to get into all the rest of it in super great detail. Vertigo, passing out, immunocompromised… this is the vague overview.

I live in a house full of people who rarely have days when they feel 100%. The baseline entry for us leaving our house and going anywhere is a lot of exercise. Table stakes for entry into community is a high level of fitness that we hold on to with our fingernails.

I am not getting to my personal fitness building these days. I have too much to do and I’m exhausted. It is showing in my decreasing ability to socialise because my body can’t get there.

And yesterday our wonderful cleaning lady quit. I get why. She was so scared we were going to be mad at her. Of course not! You are moving on to do the job you would prefer to be doing. You have spent a long time in training and now you don’t need to supplement with cleaning. Yay!! Good for you!

Shit fuck. We are screwed.

Honestly she comes about once a month because she’s terrified of being exposed to any kind of illness so if anyone in my house is even vaguely contagious she won’t come so sometimes we go 9 weeks without seeing her. So, like, we probably could find more reliable help. Maybe.

Hiring help is incredibly hard and I am not good at it. I did not come from the class of people who got help. Either you do it for yourself or you do without. Those are the options.

I can make everyone in this house work more. It is technically an option. If I force them to do a lot more cleaning they will have less ability to access their social life because they are so tired. Do you know what is incredibly fucking mentally abusive to young adults? Locking them in the house to clean more instead of having a life.

I literally, physically can’t do it all. My hands stop. If I push too hard I can’t do things like hold forks. It gets bad.

So at the end of the meeting yesterday we were all crying and not sure what to do. We were really upset and then half an hour after we stopped trying because we were too activated to look for solutions, that’s when we found out our help is quitting.

I am struggling with feeling like I have not done enough to “deserve” help. I haven’t fought my way to the top of NHS waiting lists for myself and my kids. I don’t have the full diagnosis list explanation for why some of sometimes spend a day in bed with vertigo so bad that we will fall and cause a head injury if we push our luck with walking. I am not so rich that I won’t notice the money being gone–I will have to make choices at this point to not pay for other things, but it seems like a good trade in many ways.

I have tried many times over the years to hire babysitters/cleaning help. I have had one really great babysitter and one really great cleaner out of more than a dozen attempts to hire people. This is harder than finding people to date like whoa.

In the past Noah and I fought about cleaners. I don’t want to have the kinds of kids who are incapable of cleaning up after themselves. Fuck that bullshit. My kids need to fucking know how to be a competent adult, thank you very much. Thing is, they know how. It just uses a lot of their sparse energy. On days when we catch up and do a lot of cleaning I can watch the fog of exhaustion settle over their faces and I know they won’t be doing any kind of intellectual work for the rest of the day. They can’t focus.

What are my real priorities? Making sure they know how to clean no matter how terribly they feel? Or do I want them making progress towards work that might be more fulfilling down the line that will allow them to pay for the help they need. I think my kids will always need some help with the physically rough parts if they want to be capable of doing fun parts.

This is all hard to sit with. I don’t feel like I do enough work to justify an assistant. I only have 3 full time jobs, what a weak, whiny, ball sack of a human.

I had been feeling like things were going pretty well. Turns out me trying to cover for the folks who weren’t doing enough was failing to conceal how much was falling off the “done” list and the other people are getting upset about balance. Oh, well.

What we all want is for Noah to pick up his share. We would be fine.

We will never be fine again.

We need help and getting it is a high stress, time consuming activity. I am overwhelmed as fuck. I don’t know where in my schedule I am going to manufacture the time and energy to find help. It usually doesn’t go so great.

The last not quite fit was someone who was hard to schedule with every week and he’d show up and do about 40% of what I asked him to do and he did such a poor job I had to redo that 40%. I’m sorry when my kids clean more effectively than an adult by the time they are 10, I don’t want to pay the adult.

I don’t feel disabled enough to “deserve” the amount of help it would take for me to have a life where I got to actually relax at times. I don’t work for pay so spending family money to be even more useless feels like the kind of thing I want to eat the rich for.

I feel caught between a rock and a hard place.

The funny thing is, if the NHS was able to say, “Optimally for your disability it would be good if you had x hours of help because you need more rest” I would pay for it. It’s not that I need the help to magically arrive and be free. I just don’t know how to A) feel like I deserve it and B) find it.

I would be a better mother if I didn’t turn into an anxious mess at the thought of hiring help.

Sometimes, if I am feeling flippant, I think about the Scots who have told me how much they hate Trump and his mother. His mother was a Scot. She played a lottery game with the folks in her village. When she won big, she didn’t share the winnings as she was supposed to, instead she skipped town and went to the US.

I don’t want to steal a job from a local. I bought a house no one local was stupid enough to buy because it needs so much work. I am employing local crafts people. I would like to send even more money dubiously earned in the US over generations back into the Scottish economy.

Maybe there is some acceptable symmetry here?

Bragging

It’s hard that I don’t get to share these little happy moments with Noah anymore. I want to talk about how much our children delight me. We are on our way out of the disequilbrium cycle that made 2025 as rough as it was. It was going to be a rough year even if Noah was alive. Instead it was extra special challenging in a lot of ways. I started perusing a book on helping people learn resilience after trauma and the opening pages said that children who lose a caregiver often turn to theft. Ah. Yeah. That was festive. Shortie had a time last year. She hasn’t swiped anything or tried to sneak out in a while. I am holding my breath and pretending I don’t notice that things have improved. I’m afraid of it reverting. Sort of. Maybe?

I love that we have figured out a bedtime routine that works for the pair of it. We struggled through a lot of last year. Noah has been her nighttime parent for almost all of her life. In a great many ways, she lost her primary parent, not her secondary parent. I feel like Noah’s death was harder on her in a lot of ways than it was for the older kids. When Noah and I agreed to have her it was with the understanding that I was deeply burnt out and she was going to be the baby he had to do the most for. He showed up. He spent as much time with her in her 6 years as he probably spent one on one with my son in his whole life despite a 10 year lead. Noah really did a lot of time with Shortie. She played in his office while he worked. He didn’t work for a few years of her life because he was trying to figure out other stuff.

Now for bed we start a YouTube video of “boring history” and she listens to explanations about different history periods. We brush our teeth, put on jammies and cuddle. She stays awake later than me but she stays in bed listening to the story. We’ve had fewer issues with nighttime shenanigans. I think we’ve had more than a month of peace. Shhhhhhhh, don’t ruin it.

I love that in the middle of the night when I come back to the bed after needing the toilet we have a little mutual admiration society conversation before going back to sleep. “I love you.” “I love you!” “I am so glad you are here with me.” “I am so glad you are here with me.” We cuddle fiercely and it’s nice. I feel like we have had to do a lot of specific attachment work this year. It’s been a very serious thing. She has had a lot of need to come and touch me since Noah died. I am super welcoming of this behaviour. For years when I hid in the studio it wasn’t ok to interrupt. Now, she comes out and tells me her hug bucket is empty and I drop what I am doing to hug her. This feels really important. The first while after his death she was coming every few minutes even when people tried to distract her. Now it’s if I stay out here for an hour she checks in. I don’t get a full hour out here much once the day begins.

My life is a lot more work than it used to be. I’m adjusting but it’s hard. I am being very careful to not overload myself on a given day because I can’t have a meltdown. I’m doing so much better than I used to at regulating my mood. I feel more capable of doing so. I see the signs coming. I am blocking off rest time and using it instead of doing extra work in that window. I have to. I have to be calm.

I am putting aside date time for the big kids now. I realised that I was doing everyone a disservice by only treating date time with Shortie as a priority. I wasn’t modeling that everyone needs time and that was creating part of the problem. Shortie wasn’t seeing the evidence with her eyes that all the needs will be tended to. That was my failure last year. We are doing better.

Eldest Child and I were out yesterday. I love listening to him talk. I can see where he uses some of Noah’s rhetorical devices when telling stories. He is such a good storyteller. He’s currently freaking out because his latest fanfiction story has been read 10,000+ times. I’ve been telling him he was a fantastic writer for a while. I’m glad he is now finding external validation to back me up. He is so sweet and gentle and loving. He is moving forward and trying to figure out who he can be as a grown up. It’s full of frustration and starts that go nowhere. Yup. He’s trying though, and that’s what I care about.

I appreciate that when people ask him how he knows so much he says, “My parents were both teachers and they considered it their life mission to make sure I knew everything they knew plus instilling the value that learning is as essential as breathing.” This is how he sees himself and his life. That’s really nice. I like that a lot.

Middle Child READ TOM JONES. It took them less than two weeks. I am fucking thrilled. They want to earn English qualifications for getting into Drama programs. They are practicing handwriting and going over grammar lessons and spelling lessons. They are super motivated and in each week they are covering many months of school curriculum. I haven’t bothered demanding that they cover any of this. They had functional communication but they didn’t care much about developing it. When this child doesn’t care they will not learn. They have a lot in common with me. I lived in Silicon Valley for 30 years and I spent most of that time dating programmers. I can’t code at all. I refused to learn. That was not for me. My kid is so much like me that I ache for them. I see some of the ways they struggle and I grimace. Ah. Yeah, it’s going to take you a while to get past that bit. It took me till my 30’s.

My kid is the one I worry about the most for a lot of reasons. They are both the most like me and also different from me in very crucial ways. They are incredibly bright–don’t get me wrong, but they don’t have that quickness of thought that has saved me over and over in my life. Their way of thinking is a lot more methodical and reasoned than mine. I leap from connection to connection without fully understanding why the jump happened. They don’t follow a thought unless they know why. In a way, they got that from Noah, but they aren’t quick the way he was either. It is hard being the slowest processor in the house. Sometimes I can watch the frustration they feel, it is so palpable. They are jumping as fast as they can intellectually but sometimes they get really upset when people are making connections too fast for them.

It’s kind of funny. I watch Middle Child get frustrated by how “slow they think” the same way I watch Eldest Child get frustrated by how “bad they are at math” and I watch Youngest Child complain about how “they read so slowly.”

Babies. The reason you think you are slow is because you are in a Petri dish with folks who have brains that are basically on speed. You are above average. Being slower than someone who is absurdly fast is not the same thing as being “slow”.

It’s like how EC complains that he doesn’t have anyone he can learn cooking stuff from/with. Dude. You want an Asian grandparent to teach you cooking and you ignore everyone below that in competence and knowledge. Yeah, you will struggle to find people like that to learn from if you move to fucking Scotland. No shit. You will need to learn to consider the people around you peers. They do know things you don’t. Don’t be a pretentious ass.

EC thought he was bad at math till he showed up at school 5 grades ahead of his peers. MC feels slow at responding in our house but lightning fast during improv exercises with peers. YC feels slow at reading compared to me but has to bring a whole ass chapter book per day of a trip because she can blow through them at 7.

I had a funny chat with Gentleman. I told him I think it is funny that he keeps referring to himself as neurotypical. I don’t think he particularly is. He 100% shares “infodumping about my special interest is my love language.” He also has a dramatic spiky profile in his traits. Stuff where he’s really exceptionally high and areas where he massively struggles. He talks about school the same way I do. He had very similar experiences as me. Tremendously gifted in some areas does not mean gifted in all areas, thank you very much. He asked why I thought he and I had a lot in common and I laughed. I told him that the big difference is that I found a lucky lottery ticket.

He isn’t Noah and I am not going to try to put him in Noah’s place. He is a really nice friend though and I think he is going to be kind to my children. We will see. I am afraid to hope. I am afraid to trust.

I like the results I have gotten so far. Every new adult is a possible bump in the road. It’s scary to involve more people in our life but it’s necessary. We need more contact with folks.

I like that when Shortie is trying to psych herself up I can hear her telling herself, “Being brave doesn’t mean you stop feeling scared. Being brave means doing it while being scared. I am a brave girl. I am smart. I figure out hard things all the time. I can do this.”

She doesn’t rant and express self contempt or self doubt. She’s turning 8 soon. Her personality is pretty darn set for where it is going to be for her adult life. She is sunny, optimistic, hard working, focused, and intense.

My kid knows how to set up a learning/study plan for themself. They looked up the resources necessary. They didn’t need me to guide their plan. HOLY CRAP THAT IS SO NICE. They didn’t want me to look up all the texts for them. They went and grabbed the novels from the list that we own and started reading without any kind of prompting. This is literally the point of unschooling. I taught them the skills for learning and they go do it. They have some mood swings at this point but they have learned an intense array of self soothing skills. They are a funny, thoughtful, kind, inventive person. Watching them grow up has been amazing. They have come so far and I know that they will do so much more in the future.

My son still needs a lot more assistance with setting up plans and with following through. He, unlike MC, has a lot more than just autism going on. He’s also dyslexic and he has ADHD. For all that he is a walking encyclopedia he also struggles with executive functioning in ways that are rough for him at times. Thing is: he knows this and he knows how to ask for help with the parts he can’t do alone. He knows how to self advocate. He is bright, personable, hard working, sweet, assertive, and able to rest. This is a combination that bodes well for his life. He needs rest. His body suffers.

With Noah’s help I learned how to carve out time for rest. I modeled that as a priority. My kids believe that when they are unwell they need to rest.

I did that.

Go me.

Pick a side

Yesterday I had the hilarious experience of being told (online, so does it even count?) that I am demanding that all women subject themselves to abuse because I am on the side of men. This was an interesting experience given that I was saying women use sweeping judgments because not doing so is too high in cost.

Bluesky is hard to visit these days. I know the real time documentation of the fall of the US is important. It is also deeply upsetting and there is literally nothing I can do from here.

Once upon a time people did not have political turmoil across an ocean impacting their nervous system all day. It’s not great for us as a species.

My boyfriend is going to meet my kids in 27 days. That’s feeling dramatic. The few days before we go we will be away for a weekend together with friends. I’m looking forward to this weekend and I am also feeling terror. It is a huge cliff to go over.

My sister was fond of a few sayings: “abused children are the most loyal” and “you are on my side or you are against me”. It didn’t work though. I didn’t pick her side. I was not loyal.

I love the relationships I get to have with my kids. They blow me away. They are smart, funny, and deeply thoughtful. When someone blows their top a bit much we ignore it in the moment and come back a day or two later to say, “Hey, when you need to say (thing) it works a lot better if you say (slightly softened thing).” It doesn’t matter who had the bad moment. It applies to every person in our house equally. I love the way we all feel free to correct each other.

I worry about inflicting this sense of rightness in sitting judgment on my kids. They will not bow to authority how others expect. They don’t perceive that whole “adults are in charge” thing the way they would have if they properly attended school for longer. They think they have the right to say that people can’t be rude to them. I love watching them as young people. I can’t wait to see them as adults.