Tag Archives: living with disability

Shame is hard to carry

We had the worst family meeting ever yesterday. Most of the time when we have a family meeting, someone is struggling the most and we balance the load differently so that person has greater ease until life settles down a bit.

That’s not an option right now. I’m really struggling with the fact that everyone is at capacity.

I want to, but I won’t get into the laundry list of health issues my kids struggle with. I feel really guilty about the genetics they inherited. Noah and I had too much in common. He was freakishly hypermobile, but he had no pain from it. Just a bunch of the weird add on EDS stuff. He was like, the last Zebra standing in our house most days. He was more sturdy. The rest of us are not. Our joints melt like butter on a hot day. They simply don’t function as well as one might hope. I don’t want to get into all the rest of it in super great detail. Vertigo, passing out, immunocompromised… this is the vague overview.

I live in a house full of people who rarely have days when they feel 100%. The baseline entry for us leaving our house and going anywhere is a lot of exercise. Table stakes for entry into community is a high level of fitness that we hold on to with our fingernails.

I am not getting to my personal fitness building these days. I have too much to do and I’m exhausted. It is showing in my decreasing ability to socialise because my body can’t get there.

And yesterday our wonderful cleaning lady quit. I get why. She was so scared we were going to be mad at her. Of course not! You are moving on to do the job you would prefer to be doing. You have spent a long time in training and now you don’t need to supplement with cleaning. Yay!! Good for you!

Shit fuck. We are screwed.

Honestly she comes about once a month because she’s terrified of being exposed to any kind of illness so if anyone in my house is even vaguely contagious she won’t come so sometimes we go 9 weeks without seeing her. So, like, we probably could find more reliable help. Maybe.

Hiring help is incredibly hard and I am not good at it. I did not come from the class of people who got help. Either you do it for yourself or you do without. Those are the options.

I can make everyone in this house work more. It is technically an option. If I force them to do a lot more cleaning they will have less ability to access their social life because they are so tired. Do you know what is incredibly fucking mentally abusive to young adults? Locking them in the house to clean more instead of having a life.

I literally, physically can’t do it all. My hands stop. If I push too hard I can’t do things like hold forks. It gets bad.

So at the end of the meeting yesterday we were all crying and not sure what to do. We were really upset and then half an hour after we stopped trying because we were too activated to look for solutions, that’s when we found out our help is quitting.

I am struggling with feeling like I have not done enough to “deserve” help. I haven’t fought my way to the top of NHS waiting lists for myself and my kids. I don’t have the full diagnosis list explanation for why some of sometimes spend a day in bed with vertigo so bad that we will fall and cause a head injury if we push our luck with walking. I am not so rich that I won’t notice the money being gone–I will have to make choices at this point to not pay for other things, but it seems like a good trade in many ways.

I have tried many times over the years to hire babysitters/cleaning help. I have had one really great babysitter and one really great cleaner out of more than a dozen attempts to hire people. This is harder than finding people to date like whoa.

In the past Noah and I fought about cleaners. I don’t want to have the kinds of kids who are incapable of cleaning up after themselves. Fuck that bullshit. My kids need to fucking know how to be a competent adult, thank you very much. Thing is, they know how. It just uses a lot of their sparse energy. On days when we catch up and do a lot of cleaning I can watch the fog of exhaustion settle over their faces and I know they won’t be doing any kind of intellectual work for the rest of the day. They can’t focus.

What are my real priorities? Making sure they know how to clean no matter how terribly they feel? Or do I want them making progress towards work that might be more fulfilling down the line that will allow them to pay for the help they need. I think my kids will always need some help with the physically rough parts if they want to be capable of doing fun parts.

This is all hard to sit with. I don’t feel like I do enough work to justify an assistant. I only have 3 full time jobs, what a weak, whiny, ball sack of a human.

I had been feeling like things were going pretty well. Turns out me trying to cover for the folks who weren’t doing enough was failing to conceal how much was falling off the “done” list and the other people are getting upset about balance. Oh, well.

What we all want is for Noah to pick up his share. We would be fine.

We will never be fine again.

We need help and getting it is a high stress, time consuming activity. I am overwhelmed as fuck. I don’t know where in my schedule I am going to manufacture the time and energy to find help. It usually doesn’t go so great.

The last not quite fit was someone who was hard to schedule with every week and he’d show up and do about 40% of what I asked him to do and he did such a poor job I had to redo that 40%. I’m sorry when my kids clean more effectively than an adult by the time they are 10, I don’t want to pay the adult.

I don’t feel disabled enough to “deserve” the amount of help it would take for me to have a life where I got to actually relax at times. I don’t work for pay so spending family money to be even more useless feels like the kind of thing I want to eat the rich for.

I feel caught between a rock and a hard place.

The funny thing is, if the NHS was able to say, “Optimally for your disability it would be good if you had x hours of help because you need more rest” I would pay for it. It’s not that I need the help to magically arrive and be free. I just don’t know how to A) feel like I deserve it and B) find it.

I would be a better mother if I didn’t turn into an anxious mess at the thought of hiring help.

Sometimes, if I am feeling flippant, I think about the Scots who have told me how much they hate Trump and his mother. His mother was a Scot. She played a lottery game with the folks in her village. When she won big, she didn’t share the winnings as she was supposed to, instead she skipped town and went to the US.

I don’t want to steal a job from a local. I bought a house no one local was stupid enough to buy because it needs so much work. I am employing local crafts people. I would like to send even more money dubiously earned in the US over generations back into the Scottish economy.

Maybe there is some acceptable symmetry here?

Bragging

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It’s hard that I don’t get to share these little happy moments with Noah anymore. I want to talk about how much our children delight me. We are on our way out of the disequilbrium cycle that made 2025 as rough as it was. It was going to be a rough year even if Noah was alive. Instead it was extra special challenging in a lot of ways. I started perusing a book on helping people learn resilience after trauma and the opening pages said that children who lose a caregiver often turn to theft. Ah. Yeah. That was festive. Shortie had a time last year. She hasn’t swiped anything or tried to sneak out in a while. I am holding my breath and pretending I don’t notice that things have improved. I’m afraid of it reverting. Sort of. Maybe?

I love that we have figured out a bedtime routine that works for the pair of it. We struggled through a lot of last year. Noah has been her nighttime parent for almost all of her life. In a great many ways, she lost her primary parent, not her secondary parent. I feel like Noah’s death was harder on her in a lot of ways than it was for the older kids. When Noah and I agreed to have her it was with the understanding that I was deeply burnt out and she was going to be the baby he had to do the most for. He showed up. He spent as much time with her in her 6 years as he probably spent one on one with my son in his whole life despite a 10 year lead. Noah really did a lot of time with Shortie. She played in his office while he worked. He didn’t work for a few years of her life because he was trying to figure out other stuff.

Now for bed we start a YouTube video of “boring history” and she listens to explanations about different history periods. We brush our teeth, put on jammies and cuddle. She stays awake later than me but she stays in bed listening to the story. We’ve had fewer issues with nighttime shenanigans. I think we’ve had more than a month of peace. Shhhhhhhh, don’t ruin it.

I love that in the middle of the night when I come back to the bed after needing the toilet we have a little mutual admiration society conversation before going back to sleep. “I love you.” “I love you!” “I am so glad you are here with me.” “I am so glad you are here with me.” We cuddle fiercely and it’s nice. I feel like we have had to do a lot of specific attachment work this year. It’s been a very serious thing. She has had a lot of need to come and touch me since Noah died. I am super welcoming of this behaviour. For years when I hid in the studio it wasn’t ok to interrupt. Now, she comes out and tells me her hug bucket is empty and I drop what I am doing to hug her. This feels really important. The first while after his death she was coming every few minutes even when people tried to distract her. Now it’s if I stay out here for an hour she checks in. I don’t get a full hour out here much once the day begins.

My life is a lot more work than it used to be. I’m adjusting but it’s hard. I am being very careful to not overload myself on a given day because I can’t have a meltdown. I’m doing so much better than I used to at regulating my mood. I feel more capable of doing so. I see the signs coming. I am blocking off rest time and using it instead of doing extra work in that window. I have to. I have to be calm.

I am putting aside date time for the big kids now. I realised that I was doing everyone a disservice by only treating date time with Shortie as a priority. I wasn’t modeling that everyone needs time and that was creating part of the problem. Shortie wasn’t seeing the evidence with her eyes that all the needs will be tended to. That was my failure last year. We are doing better.

Eldest Child and I were out yesterday. I love listening to him talk. I can see where he uses some of Noah’s rhetorical devices when telling stories. He is such a good storyteller. He’s currently freaking out because his latest fanfiction story has been read 10,000+ times. I’ve been telling him he was a fantastic writer for a while. I’m glad he is now finding external validation to back me up. He is so sweet and gentle and loving. He is moving forward and trying to figure out who he can be as a grown up. It’s full of frustration and starts that go nowhere. Yup. He’s trying though, and that’s what I care about.

I appreciate that when people ask him how he knows so much he says, “My parents were both teachers and they considered it their life mission to make sure I knew everything they knew plus instilling the value that learning is as essential as breathing.” This is how he sees himself and his life. That’s really nice. I like that a lot.

Middle Child READ TOM JONES. It took them less than two weeks. I am fucking thrilled. They want to earn English qualifications for getting into Drama programs. They are practicing handwriting and going over grammar lessons and spelling lessons. They are super motivated and in each week they are covering many months of school curriculum. I haven’t bothered demanding that they cover any of this. They had functional communication but they didn’t care much about developing it. When this child doesn’t care they will not learn. They have a lot in common with me. I lived in Silicon Valley for 30 years and I spent most of that time dating programmers. I can’t code at all. I refused to learn. That was not for me. My kid is so much like me that I ache for them. I see some of the ways they struggle and I grimace. Ah. Yeah, it’s going to take you a while to get past that bit. It took me till my 30’s.

My kid is the one I worry about the most for a lot of reasons. They are both the most like me and also different from me in very crucial ways. They are incredibly bright–don’t get me wrong, but they don’t have that quickness of thought that has saved me over and over in my life. Their way of thinking is a lot more methodical and reasoned than mine. I leap from connection to connection without fully understanding why the jump happened. They don’t follow a thought unless they know why. In a way, they got that from Noah, but they aren’t quick the way he was either. It is hard being the slowest processor in the house. Sometimes I can watch the frustration they feel, it is so palpable. They are jumping as fast as they can intellectually but sometimes they get really upset when people are making connections too fast for them.

It’s kind of funny. I watch Middle Child get frustrated by how “slow they think” the same way I watch Eldest Child get frustrated by how “bad they are at math” and I watch Youngest Child complain about how “they read so slowly.”

Babies. The reason you think you are slow is because you are in a Petri dish with folks who have brains that are basically on speed. You are above average. Being slower than someone who is absurdly fast is not the same thing as being “slow”.

It’s like how EC complains that he doesn’t have anyone he can learn cooking stuff from/with. Dude. You want an Asian grandparent to teach you cooking and you ignore everyone below that in competence and knowledge. Yeah, you will struggle to find people like that to learn from if you move to fucking Scotland. No shit. You will need to learn to consider the people around you peers. They do know things you don’t. Don’t be a pretentious ass.

EC thought he was bad at math till he showed up at school 5 grades ahead of his peers. MC feels slow at responding in our house but lightning fast during improv exercises with peers. YC feels slow at reading compared to me but has to bring a whole ass chapter book per day of a trip because she can blow through them at 7.

I had a funny chat with Gentleman. I told him I think it is funny that he keeps referring to himself as neurotypical. I don’t think he particularly is. He 100% shares “infodumping about my special interest is my love language.” He also has a dramatic spiky profile in his traits. Stuff where he’s really exceptionally high and areas where he massively struggles. He talks about school the same way I do. He had very similar experiences as me. Tremendously gifted in some areas does not mean gifted in all areas, thank you very much. He asked why I thought he and I had a lot in common and I laughed. I told him that the big difference is that I found a lucky lottery ticket.

He isn’t Noah and I am not going to try to put him in Noah’s place. He is a really nice friend though and I think he is going to be kind to my children. We will see. I am afraid to hope. I am afraid to trust.

I like the results I have gotten so far. Every new adult is a possible bump in the road. It’s scary to involve more people in our life but it’s necessary. We need more contact with folks.

I like that when Shortie is trying to psych herself up I can hear her telling herself, “Being brave doesn’t mean you stop feeling scared. Being brave means doing it while being scared. I am a brave girl. I am smart. I figure out hard things all the time. I can do this.”

She doesn’t rant and express self contempt or self doubt. She’s turning 8 soon. Her personality is pretty darn set for where it is going to be for her adult life. She is sunny, optimistic, hard working, focused, and intense.

My kid knows how to set up a learning/study plan for themself. They looked up the resources necessary. They didn’t need me to guide their plan. HOLY CRAP THAT IS SO NICE. They didn’t want me to look up all the texts for them. They went and grabbed the novels from the list that we own and started reading without any kind of prompting. This is literally the point of unschooling. I taught them the skills for learning and they go do it. They have some mood swings at this point but they have learned an intense array of self soothing skills. They are a funny, thoughtful, kind, inventive person. Watching them grow up has been amazing. They have come so far and I know that they will do so much more in the future.

My son still needs a lot more assistance with setting up plans and with following through. He, unlike MC, has a lot more than just autism going on. He’s also dyslexic and he has ADHD. For all that he is a walking encyclopedia he also struggles with executive functioning in ways that are rough for him at times. Thing is: he knows this and he knows how to ask for help with the parts he can’t do alone. He knows how to self advocate. He is bright, personable, hard working, sweet, assertive, and able to rest. This is a combination that bodes well for his life. He needs rest. His body suffers.

With Noah’s help I learned how to carve out time for rest. I modeled that as a priority. My kids believe that when they are unwell they need to rest.

I did that.

Go me.

Dear Universe,

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I haven’t had to come to you in a while, hat in hand to beg your favor. I need some kind of personal assistant/housekeeper/bossy person with great organization skills who can visit with me for a number of hours in a week. I don’t need them to do much other than be there to force me to work. If they want to help with pieces, cool, but it’s not the main point of the job. The point of the job is to keep me on task.

I am not struggling to get through the list of tasks for the kids. That’s the easy part. I can do that in my sleep. I can make sure food is on the table. I can get most of my shit done.

I am struggling with the load of paperwork that is now mine. I need to get paperwork dealt with on a lot of different levels. It freaks me out and I shut down and then I can’t do it. This is where Noah and I traded off who did what based on when our brains shut down. I feel like, literally, the place where I am failing is with executive functioning to do the adult bureaucratic stuff.

I never took the SATs. I never took any kind of exam for grad school. I simply showed up and they let me in for both undergraduate and graduate school. I have skipped a lot of steps in life. I ignored them like they were irrelevant and magically I did ok until I didn’t. I am still hella salty that I was too poor to get disability accommodations and that’s why I don’t have a graduate degree. Oh well.

Once again I act like qualifications are irrelevant and, by and large, they turn out to be. I am not sure how to deal with the stuff I can’t side step. It’s not that I need someone to do it for me. I need someone to be my audience so I’m not allowed to freak out.

I feel bad about this. I am more functional, for some things, if I am being watched. I won’t ask the kids for this. It’s awful. I come out to the studio intending to work on it and instead I find I have now finished Sandokan. It was vaguely cute? It was popcorn.

I have to get this stuff done. There are consequences if I don’t. This is where I am all “Oh, yeah. This is why I have been labeled with having a disability. This failure junction. Awesome.”

I miss Noah so hard. He would have had the citizenship paperwork in weeks ago. I am flailing. Also we are on our third fucking virus in a month. Everything feels so hard. I am so tired. My body is not enjoying this constant illness. When I mentioned it to an NHS doctor she said that we aren’t out of our house enough. We need more exposure to germs. Thing is, we are all a collection of weird long term health problems we have acquired from viruses. This is not going so well for us.

I wait until we are out of the range of contamination but I can’t wait for complete health before we return to activities. We’ve been coughing for about four weeks now, since the first one. Eventually we restart exercise and classes despite coughing the whole time. We aren’t contagious. We are simply not getting better. Then we catch a new virus and it goes through the house like a horrible domino video. Those things low key freak me out. I see them as indicating health problems and how they spread through communities. Ugh.

Ok universe, that’s all the time I have. I have some non-dairy mochi waffles to try out.

I am so proud of my babies

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Middle Child has a strong desire to do a few programs in town that require qualifications. So they looked up where to go to get the qualifications and how. We have a few workbook type things in the house that help us figure out the local expectations for these ages/grades. Specifically they will need the English qualification and so they looked up the reading list and got started with stuff from our library.

There are a lot of times while home educating that I don’t feel particularly confident or secure that I am doing the right thing. I believe that education doesn’t need to come from a school to be valid. I also believe that when a person has been free they are able to catch up on years worth of learning in a very short period of time. My kids have done it with maths. MC has a plan to get through catching up on 6 years of expectations. It helps that we are a highly literate house and most of those expectations are going to be bargain basement effort for them. They will not have to work hard to understand synonyms or antonyms. The biggest issues will be handwriting legibility and speed. We have a plan for that too.

I act on faith with teaching them. I talk to them broadly about the world and their potential place in it. We have a lot of philosophical conversations and we talk about politics and history constantly. Anytime we talk about politics it turns into a 10 layer deep discussion of all the factors leading up to whatever event. We are passionate about seeing the world through stories. It’s hard to believe that this is the right thing to do but the results I’m getting are amazing.

Trusting children is not an easy thing to do. I’m not sure how much that is my cultural experience of the world. Does anywhere trust children? Does any culture believe that children are smart and able to decide their own path? Does every culture think that children are ignorant and unable to decide? I’m not sure. I certainly have my speech down pat when I say, “The reason you have parents is because we can see further into the future about the cause and effect cycle and we are supposed to help you until you can see further on your own. Now go brush your teeth.” I am kind of obsessed with teeth brushing. My mother had lost all of her teeth by the age of 40. I’ve only lost 1 so far. My children have barely had cavities and are not on track for losing any teeth at all. This is good.

Shortie is blossoming all over the place lately. She can pedal her bike! She can go really far! She’s reading rather advanced books at a blistering speed. She’s learning a lot about history because she thinks it is fun. She’s getting much better at helping to clean up after her own messes all of a sudden. She is becoming a fun housemate. She wants to bake and sew and the price is cleaning up her messes in common areas. She says that it seems very reasonable that the requirement for making big messes is being able to clean them up.

All of a sudden she can see other perspectives and she’s willing to be respectful in ways she literally couldn’t be just a few months ago. I love watching these developmental leaps. They make my heart soar. They make me feel like we are going to be ok.

Eldest Child is less than 4 months away from being 18. This is feeling overwhelming for both of us. He keeps saying emphatically that he’s not ready and he’d like to keep our current dynamic going for longer. I told him no, I’m not going to keep being this bossy with him. Hell, I feel like I am the ghost of bossiness past with him these days. I don’t have to lecture him. He sees me and rattles off all the things I would have said to him when he was younger. He lectures his sister constantly repeating things I’ve said to him. I will never again be entitled to want to commit suicide. That’s off the table as an option permanently. Even so, I feel like if I died accidentally he would be an excellent guardian as she finishes growing up. He has internalised my voice so strongly that I believe he is going to be able to handle issues as they come up throughout life.

It’s really intense sometimes. I believed that I could create interesting people and help them get through the world without hating themselves. It was a science experiment. I had no reason to believe it would work out. It was a leap of faith. I went through the system in such a hodge podge way that it seemed reasonable to me that my kids could skip the system entirely and still come out fine. I think that’s going to be true. I already feel quite confident about where my son has landed. MC is on track to find their path. Shortie is acting like a person who is going to be able to chart her own path with glee and fervor.

I am so sad that Noah isn’t here to be gleeful with me. He had faith in my ability to do this. He signed on for a whole lifetime of supporting me in doing this. I am really sad he hasn’t been here to see our youngest find this independent spirit. I am sad he won’t see our son become a man. I am sad he doesn’t get to cheer our kid on as they find their voice and independence. He would be proud too.

I see his face in my mind all the time. He was so beautiful to me. He wasn’t classically handsome with his snaggle teeth and his lumps and lopsidedness. But when he looked at me he beamed like a ray of sunshine. He was always so happy to see us. He was so giving and kind and wonderful.

EC says he has a weird time talking about our marriage with other people. People say it sounds very abusive. Then he gets to give a long explanation about consent and unusual preferences and how things are abusive or acceptable based on your agreements. He understands that his dad and I were doing the best we could given where we started in life and we were more and more gentle with each other with every passing year. As we could be. It’s weird that EC is going to be my most significant witness in this life. He saw me and Noah more than anyone else. He is going to be my longest term live in relationship.

He will spend more time with me than any other human and he both likes me and respects me. How the heck did that happen?

He is assigning himself long lists of reading books so he can better explain characters in his stories. He wants to understand their mindsets better so he is compiling lists of books from the canon that the characters would like. When his friends ask him casual questions about his stories he responds with a 6 page essay and illustrations.

My son existing makes me feel so much better about myself. I have incredibly strong feelings about how awesome he is and I can’t miss how alike we are. He makes me feel like I am already a better person. He writes a lot of stories about traumatised people. I can see where he steals from what he has seen of me and his dad. He is so deeply insightful it breaks my heart. He tells people who ask that he has undergone fairly little trauma in his life–he had a shockingly happy childhood. But his parents were traumatised people who did their very best and this is what he learned from living with us. It’s humbling. It’s deeply rewarding to know that a lot of adults are now asking him for advice about how to cope with their problems. He has the ability to go do a lot of things with his life. He has nothing but possibilities in front of him.

My kid existing makes me feel so much better about myself. I see the ways we are alike and I see how much better they are at loving themself than I was at their age. I see them moving through the world and coping with strife and challenges with grace and poise. They decide they want things and then they figure out how to get them. I can’t wait to watch them go far.

My daughter existing makes me feel so much better about myself. She is wild and free. She is bursting into the world with all the energy of a newly born star and I am here for this adventure. Maybe even more than the other two I see the ways we are similar. I see how she is going to have a much rougher road than my first two children. She is not going to have that exceptional experience of living with Noah and me both trying to create a Wonderland away from the world. I think she is going to find ways to really dig into life here and she’s going to make herself happy.

I have never tested my children for IQ levels or anything like that. I know that they are extremely precocious and able to learn. My son makes me feel stupid on a regular basis. The only reason he doesn’t already know that he is a lot more intelligent than I am is because he hasn’t quite caught my backlog of experience. I suspect by the time he is 30 he will start to understand that he is a lot smarter than me. It’s humbling to live with him. My kid is a very different kind of smart and honestly it’s been more difficult for me to work with. They have needed very different teaching. I’ve had to throw a lot at the wall before I caught their interest on a lot of different topics. It’s wonderful watching them get to the level of independence where they can just go do stuff and learn stuff without needing my assistance as fully. It’s taken them longer to get to the level of being an autodidact. It has been interesting to me coping with how differently all of my children are extremely high needs. My son’s dyslexia has meant that he needed verbal instruction all the fucking time all his life. It’s exhausting trying to keep up with him. My kid needs intense coregulation and body doubling and they learn things in very slow and careful ways. It’s exhausting trying to slow down to go at their pace. I have had to learn a lot of meditation to be at their speed. It’s been fucking rough. My daughter is the one who feels more at my level. Frankly she’s not great at verbal instructions. She only sorta listens. I’m wondering about auditory processing stuff with her as well. She is like me in that she taught herself to read by 7 and she is already reading at an adult reading level. Her vocabulary and comprehension are off the charts. She can understand ridiculously complex concepts that she picks up on her own and then wants to explain to me. More than with the other two I must be her audience. WHICH IS FUCKING EXHAUSTING. If you know my children you know that all of us need an audience to listen to us think and unpack our brains.

When I say a child needs way more of that than the rest of us… that should be scary. She’s a lot.

Thank you, Noah, for being so crazy intense that you looked at me and thought our kids would be amazing. Thank you for wanting to be my partner for this life. It was an amazing journey together and I am a much better person because I knew you. Our children are better people because they had so much of you. Thank you for the gift if your time and your presence. Thank you for loving us. Thank you for choosing us. You made us feel special and that helped all of us move forward with purpose and no shame. We aren’t too much. It’s ok that we are very needy people, because we have each other. We need to be in relationships and we have put a lot of effort into figuring out how to create relationships. We know how to be very deliberate.

Integration is coming. The kids will meet my boyfriend in March. That’s feeling very soon. I’m looking forward to it. I appreciate the way the kids have had time to mourn and grieve while also knowing that a change will come. Each of them has asked different questions about him. They have all expressed positive impressions of him based on the way he has treated me this year. He’s a really good guy. I am deeply relieved that every conflict he can describe coming up in his past relationships with step children are things that I wouldn’t tolerate. I don’t anticipate there being much reason for friction. I don’t see any big red flags or signs of obvious incompatibility. I’ve been looking. I’ve been trying hard not to be too steeped in NRE and the honeymoon phase. We spend a lot of time talking and I ask him a lot of questions. I’m mapping his story in my mind.

I have a lot of cautious optimism.

I have also started exercising again at a fairly blistering pace and I am feeling both sore and strong. I am dragging the kids out. I have intense internal conflict as I watch the teenagers struggle with physical disability. They are not lazy. They are not unfit. They have substantial struggles. They work as hard as they are able. I see reasons their lives are going to be challenging. I have mixed feelings about that. Would I have created people if I had known more about my genetics? I don’t know. They are going to suffer. I don’t know for sure yet about my daughter but the signs are there.

They are so fucking cool though. Like, yeah they are going to have struggles. Everyone has struggles. They aren’t going to be financially vulnerable. Provided we continue to get along the plan is to be ok living together basically permanently because we all need care giving at various points. All of us take turns being the one who can’t life. This is a lot harder for me now that Noah isn’t here because I don’t like accepting so much help from the kids.

At this point I submit to as much assistance as I do when I need to because I need them to be willing to fucking rest sometimes. They cannot become enculturated with American overwork culture. Naw. Fuck that. We got away from that. It’s poison. It’s self hating. It’s awful and not necessary.

So I don’t martyr myself. When I’m sick I’m sick. The rest of the time I am very particular about the difference in expectations between adults, quasi-adults, and children. People who are not adults do not get put into adult slots.

Shit. My son is going to be an adult in 4 months. That’s going to be wild. I still won’t treat him like he is the man of the house. He’ll be a housemate not the Daddy. It is hard being the head of household. It is very important to keep in focus. I don’t have to like it. I have to do it.

I say that to kids a lot. “I didn’t tell you to like it. I told you to do it.” It is an ongoing weird thing in my life that I am both extremely demanding and shocked that my children comply. Wow. They genuinely believe that their life will go better if they do what I ask the first time. Not the youngest, not yet. The older two do their very best because they don’t want me to have to nag them. It’s not fun for either side.

They still vote me in as project manager. We negotiate this shit. They appreciate that I have put a lot of thought into how to help them grow up. They appreciate getting to own the vast majority of their time. They appreciate getting to direct their own lives. We work very well together at a wide variety of tasks. We like a peaceful house though most of us are subject to hormonal mood shifts. All of us know how to look at the floor and avoid a confrontation when someone wakes up savage. It’s pretty funny. Some days people just can’t be talked to and that’s ok. We all understand now.

It was hilarious when the first two hit puberty and had their first week of being savage. They each turned to me at some point and said, “Holy fuck. Is this how fucking angry you feel?” I say, “Yes. They say, “HOW DID YOU NOT KILL US ALREADY?!?!?!?!?!”

I say, “I prepared for you for more than a decade before I was able to start creating you. I literally bled and barely survived your births. I’m not going to let a mood swing fuck up my life. I don’t kill you because I understood what I was signing up for. You wouldn’t be so difficult if you weren’t so much like me.”

The two reactions so far were different. One nodded, very much like his father when hearing hard truth, and said, “Right. So this is something I have to learn how to manage. This is not going to be fun.” He stomped off to his room and I heard screaming into a pillow. The other one started screaming “THIS IS NOT FAIR” while jumping up and down and flailing before running screaming through the house.

I’ll let you guess which one is a lot more like how I reacted at that age. Ahem.

I’m fucking excited about my daughter hitting puberty. I am willing to bet she’s going to put a hole in the wall. Who wants to bet me? I’ll put money on it. I will teach her how to patch the drywall in a very soothing voice. She will use her allowance to pay for all the materials we need. And she’s repainting the wall.

This is a lot of how I’ve been able to respond in a relaxed way to most of the things my children have done that have been really over the line. “OK. I have a plan for this.”

If you expect people to periodically totally fuck up and cross lines, you must treat it as completely normal; then you can guide someone into repair work without shame. My kids don’t have huge anxiety about their meltdowns. They do sigh deeply and start figuring out how to fix whatever happened. We work to make the meltdowns less intense and less frequent. We look for triggers and create plans together for managing them earlier. We can’t prevent every one but we can make life happen at a more tolerable rate.

My kids have periods of anxiety when they are in deep disequilibrium. Outside of those windows they are intensely self assured. They believe they have tools for solving problems and they learn like their life depends on it. They learn from all kinds of environments.

I believe they will be able to adapt to anything that comes up even though that is fucking hard for autistic people. We need a lot more support and guidance and patience than other people as we learn. That’s ok. Apparently I have a whole lot of patience. And I don’t even get it from bourbon. That was one of Noah’s jokes. A dad was sharing the recipe for a drink called “Patience” as they were planning to interact with a group of kids. I forget what thing. I’m not the funny one. The second dad goes, “Whoa. That’s a lot of bourbon.” The first dad says, “That’s because you are going to need a lot of Patience.”

I know when he would recite from his list of like 15 jokes. They were very formulaic and I literally record scratched my brain to kind of glitch on hearing it again. He repeated himself a lot and I needed to cope with that. It’s like my hearing just clicked out and all I heard was tinnitus. I would catch up with whatever he went to after the joke a second or two late.

It’s really common, when we are talking at a meal, for all three of us bigger people to stop and put our heads down in unison at the table when we know there was an opening for one of Noah’s 15 jokes. It’s like he says it into all of our minds at the same instant. Sometimes it’s so real that one or more of us starts openly weeping. That’s the hole where Noah is supposed to be. We all miss him terribly. But on we go anyway.

Life is no longer the shape I wanted it to be for the period of the Indenture. We are no longer that wonderful happy family. We are touched by sorrow now in a way that’s going to be complicated. We still are ridiculously happy together. We get along best when we rotate in and out of date time together. We all trust that our needs matter within the pod and we are all going to make sure that each of us is ok.

I created the family I wanted to live in. I have walked my talk and improved with every passing year. My children are people I like and respect. My children like and respect me and look forward to private time with extreme glee. Getting to go things with me alone is a reward and a treat and a wonderful thing.

That’s kind of wild. Wow. How is this my life? People used to not like me very much. It’s still hard not to expect it all of the time.

My kids act like I have treated them like doing things alone together is a reward and a treat and a wonderful thing. They all feel seen and appreciated. They don’t think I’m overly self involved. They think I am super invested in everyone around me. I’m always scared that the way I write means I spend way too much time thinking about myself. I need it, though. It helps me process my feelings and my thoughts. I think I need it a lot more now than I did when Noah was alive. I do so little talking.

The way that I move through my life decisively reacting to things that happen is the result of a fuck tonne of dithering in advance. I whine at myself and go back and forth on issues. I question why I believe I should act in various ways. I plot how to handle things in advance because otherwise I might do something that is not consistent with my overall values. I’m just as selfish and stupid as the next person. The only reason I have any wisdom at all is because I’ve fucked around and found out.

Now I don’t have Noah to save my bacon when it comes to giving our kids the kind of stable and secure environment I want them to grow up in. Being a single mom is a lot harder. Like, holy shit.

If I thought I was exhausted and deep in burn out before I lost my coparent? Yikes. I’m a lot more exhausted than I used to be. Or am I? I am doing a lot less. I don’t volunteer anymore. I have dropped out of almost every community event I participated in. I still go to munches and that’s about it. Almost all of the babysitting I pay for is put into the relationship with Gentleman. I have no regrets. I’m enjoying talking to him. He is an excellent storyteller. He makes me happy. He makes no demands upon me. He is very happy to see me when he can. We have had no reason to have strife. We do talk about some day hard stuff, but he’s not that eager to get into the long term theoretical way I plan. That’s going to be a big transition for me. It’s another way I am going to have to not look for Noah replacements. I need to be alone in my brain.

This is where the solo poly thing is coming up for me. I am going to not seek out another engulfing relationship. I loved my marriage. It was a one shot deal. I rode it to the end. I don’t want that again. I am always going to be managing a lot of stuff off stage. That means I need time to be off stage.

I had an excellent therapy session yesterday. I like working with them because they often interrupt and push me into somatic work when I am explaining stuff I am struggling. Last week, they had an off week. They needed to put themself into the session a bit. There were a couple of times where they were encouraging me strongly in directions that felt like appeasement. They were clearly having big feelings about it. They wish I was a more interactive client. They want to have more midweek check ins and exchanging of silly gifs. I’m not your girl for that. I need very clear time boundaries around therapy. I have issues around that. I’ve got stories for days about therapists and bad time management. And then it gets into my mommy issues because that woman can’t be on time to save her life.

So they sent me an apology after the session. I responded very minimally that I was totally fine and looking forward to seeing them next time.

This week I told them a little bit about Traci, a therapist I worked with for 5 years who OD’ed about 3 weeks after I ended our therapy relationship. I ended the relationship because I was pregnant and she was spinning out. I needed to transition into the care of someone who had more ability to support me through the next stage of my life and Traci was seriously going off the rails and needed reciprocal care I couldn’t offer. She was bringing her problems into my therapy. She really needed support and I didn’t give her any. I have a really intense amount of guilt for that. Yes, I know that I behaved in the appropriate clinician sliding off the rails way according to the guide books. But she was a person who put a lot into me and I didn’t do what I could to pay her back. I’m really upset about that.

Thus I told my plural rodent therapist that when they are having a bad day I am going to be patient with that. They do a lot for me by being able to be there for me when I am freaking out. They are learning a lot of really tough background things. I am a challenging patient history to learn. If they have days when they need me to hear what they are struggling with, maybe that’s where I am in therapy now and it’s not a bad thing.

Maybe the trade is slightly less about the money and a lot more like being friends who have cool tricks and insights to share. I’m not upset about this, not really. It means that I have to have times when I can pull my shit in during that hour a little and that’s complicated. Every relationship has costs. Usually in therapy the cost is financial and you get support in exchange.

Am I even trying to have a therapist or a coach-y friend who is exceptionally woo and down with how weird I am?

I am conscious over and over that I will never feel like I have company in my brain again. It feels hard.

It feels very hard that my children are going to know the most about me for the whole of my life and there’s going to be a lot that is always carefully off screen. I have lost the constant witness.

I liked that Noah and I spent 12-18 hours out of 24 together pretty much since we moved to Scotland. He gave me his brain and I gave him mine. We shared them. I think it is funny that I think of it like we were sharing a compiler. I have never used one but I’ve heard a lot about them. I think it is funny that I never got into tech but it permeates my brain.

I miss Noah. I will never try to replace Noah being the Oracle. I will never have his recall. I don’t think I will meet many people in the whole of my life who will be as smart as him. That’s a weird thing. Even if I do meet people that smart they will not be interested in downloading my brain. I will be irrelevant to them. It’s hard to think about. I feel a wave of pain when I go through all the topics I’m thinking about that I will never speak out loud at all. I no longer have anyone who wants to hear what I’m thinking at that level.

I need time to cope with that. I need to be able to be in a room alone. I feel like it goes best when I wake up extra early in the morning and take my alone time then. I get to fill my bucket with attention before I go work. I don’t love when these essays pour out at night because the day has been a lot. My feelings are so big. I want to talk to Noah about them.

I got to explain to my therapist that I really don’t want to be encouraged towards forgiving someone I am having a social conflict with so that we can be friends. That would require a lot of sweeping really awful things under the rug and I’m not British enough. What I need from them is support in figuring out how to crank back my rage because it’s a waste of energy that I need for other things.

I don’t want to waste time feeling rage. I want to move forward. I want to put all of my energy into the work ahead of me. Goodness knows I don’t have a lot of energy going spare.

My babies are vowing to help more with the garden this year. It’s going to be interesting to see how it goes. We will see! I like that they are starting to see the extreme value of the garden we have built together. They all really appreciate the glut of amazing fruit. Especially because I’m not buying fruit that is £10+/kg. Nope. In order to get enough of it to make a dent in our nutrition needs it is horrifyingly expensive and shipped in from very far away. We need to eat stuff from what is in season and what we can get from this country as much as possible.

We are close to having a 12 month garden. This week I’m going to start in the poly tunnel. I have a plan for how to make it more usable. I’m pretty thrilled. I am grateful that I will have help with getting rid of all the wood inside that I haven’t been able to figure out what to do with. I am cleaning up a lot of stored rubbish and it’s making things feel easier. We are donating a lot of stuff. It’s time to make space in our house for future needs. We don’t need to fill every nook and cranny.

We are changing our shape inside the house and it feels good. It feels like the right thing. A lot needs to be fixed, still, and that’s feeling super freaking intense. This is a forking expensive place to live in. It will be entirely upgraded in like 3 more years. That’s wild to think about. I will have replaced and improved stuff from the roof to the floor joists and the underpinnings. I still need more cladding. The upstairs bathroom is in dire need of ripping out and starting again because of the levels of problems. It needed replaced when we bought the damn house. The entire upstairs is going to have the flooring done all in a big go. I will pay a decorator to do the painting so that those rooms will look like someone else lives here. It’s going to be like I’m staging the damn house. It’s so intense to think about.

I have a big ass fancy house and it’s getting fancier by the year. The garden is so freaking cool and I can do things like give comfrey starts to young budding permaculture interested queerlings. This brings me big joy. I don’t know if I’m going to be able to throw a 60th birthday party without Noah. Luckily I don’t have to decide yet. I’m still working on getting the garden and house ready anyway. I figure working towards what will be here in 16 years is a good timeline when it comes to a garden and fixing a house. At that point the house will be so completely renovated that we will truly never want to leave. We will grow in and around the house.

It feels good to talk about the kids. I feel kind of gross bragging about them to anyone but Noah. It feels like I am being an asshole about other people. I’m really not trying to. My children did not fit into school. They would not have done well if they had been pushed into more compliance. It took years of recovery time for my son to stop feeling suicidal.

What we are doing is working for us. I am grateful for the privilege that allows us to do this. It is shocking dealing with what it means to be a one of those Gibbs’. Noah was not that impressed by being from that family. It’s been a wild ride for me. Way more good than bad. I’m scared of the future. I’m also really looking forward to it because I have front row tickets to see three cool people launch themselves into the world. I’m looking forward to the show.

The line between parentification and being part of a team

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Let’s start with the premise that I have no confidence that I have done this right. I’m guessing. I’m trying. I don’t feel like I have the right to say my methods were good yet. I definitely don’t feel like my methods or approach are fully available to everyone equally. So much of my life is shaped by access to deep privilege at this point.

Yesterday I went out sledging with Shortie. It turns out our road is now excellent for this now that the farm tractors aren’t racing up and down it prodigiously. This was great news! We had a blast. It was a truly excellent time. Then we walked to the Co-op for milk for hot cocoa. By the time we got home I had walked about 2 miles but it felt like 8. She pressured me to agree to watching one of their cartoons with the kids while we drank it.

I really struggle with cartoons as a medium. Even when I have genuine appreciation for a show (Bluey is so good.) I still struggle to focus and care about what is happening. I fall asleep. I can’t sustain attention on them. It takes oomph for me to watch one enough to satisfy them. I have frankly slept through a lot of Owl House. I couldn’t stay awake enough during Avatar to even know what the fuck was happening or who anyone was. My body literally shuts down during these kinds of “You have to watch it to be part of the group” things. I used to sleep through MST3K when my friends got together. I have dim memories of Red Dwarf. So it’s not just cartoons. My brain struggles with “You have to ingest this content in order to be one of us.” I shut down. No. I don’t want to conform.

So when I walked into the house and the dishwasher was poorly, barely filled and the counters were so full of stuff I didn’t feel like I had space to start making the hot cocoa? Oh. I had feelings. I hadn’t done breakfast clean up before I went sledging. I had an online yoga class. I had made the silly assumption the kids would do it. They didn’t. They all had feelings, too.

I could feel myself wanting to explode and get all shouty. This felt not fair. Thing is, shouting won’t help and will make everyone have a sad day. I marched (a bit more heavily than necessary but my legs were super tired and making sure I walk quietly takes effort) to tell the big kids that I could be responsible for items 1-5 on the list of tasks that were necessary before we could get to hot cocoa and cartoon watching. If they wanted us to actually have somewhere to land items 6-10 had to be done by someone other than me.

My kids responded that it sounded totally reasonable and they were very happy to pitch in to help so they could have the fun pay off. No sweat. Everything got done. No one had to do it all. I did a larger share than anyone else but that’s kind of the point, right? I’m the mother and I should do a much larger share of the work?

I struggle a lot with the line between “I am training good future housemates” and parentification. Am I expecting them to take care of me or their siblings? Well, only in small ways that I put boundaries around and then they clock out and aren’t responsible anymore? They aren’t responsible for obtaining food. They are responsible for learning how to meal plan, and prepare food, and clean a kitchen environment so that no one gets sick.

Where is it parentification and where is it teaching them how to be an adult? I don’t want them to have to figure it all out on their own when they leave home. Even more so I don’t want them expecting me to take care of them because they are incompetent if they continue to live with me. I aspire to inter-generational living. We all have the kind of genetic disabilities that mean we sometimes fall ill or injure ourselves and require a fair bit of assistance to hold on to shreds of independence.

I don’t want to be Auntie taking care of my adult children into my 70’s. Fuck no. I think I wouldn’t mind if we were all sharing the work load though. She never transitioned out of “mom does everything” and I don’t want that. I really don’t. So in my house we sit down and negotiate chores. People volunteer to do that which is least annoying to them. Anyone can ask to renegotiate at any time. No one is trapped. Everyone has the ability to say “This isn’t working for me anymore. I need to change jobs.” Cool! No problem!

The parent is the one who tracks the big picture and makes sure it is all done. The parent makes sure the supplies are brought to the house. The parent guides learning how to take over all of these processes when the parent dies. The parent should do the work as long as possible but there is a time when the parent must be replaced.

Is it so wrong to teach people how to fill these roles?

I struggle with this one a lot. I feel even more worried as I have to deal with accomplishing tasks that used to belong to Noah. I can’t physically do all of it alone. I need help. I am now literally physically smaller than two of my children. Is it evil parentification if they do things they are more physically suited to doing? I worry about this massively.

There seem to be no good paths forward. Nevertheless, I keep going.

It’s going to be a long 10 years.

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My baby is struggling with impulsive behaviour. This means we are back to the buddy system. It means she has to be within eye sight, and preferably within arm’s reach of me throughout the day. I have to be her self control for her because she doesn’t have it right now.

I’m not going to list the ways she is acting out. I don’t particularly want to hold on to that ranting list. Her behaviour is all within developmental/PDA norms. She’s 7. She is acting like a 7 year old who has lost her primary parent. She’s in deep distress.

It’s been weird coming to terms with the fact that Noah literally was her primary parent for most of her first 6 years. He tied her to his body while working so I could do stuff. He let her come in and play piano while he was doing stuff. She played under his desk. Even though the third baby was “for me” so I could have the family that felt complete to me, due to the age gap I told Noah he had to step up. I couldn’t do what I did with the first two kids.

Looking back I both feel like it was smart that I gave myself space to rest and put spoons in my drawer while I could and also that I was stupid. Now my baby is suffering so deeply because of Noah’s loss. I can see it in her all the time. The big kids are suffering too, but it’s different. They are both much more strongly bonded to me. Now my daughter and I don’t have a choice. We need to make our bond a lot stronger and part of how we will do this is to spend a freakish amount of time together.

I think this girl would need a 1-1 aide in a classroom setting to keep her from doing things that would disrupt the learning environment for everyone else. She is just as high needs as my son was but the kinds of destructive behaviour are slightly different. I feel so exhausted thinking about going through this again. She has the destructive behaviour of my first child and the explosiveness of my second child plus her PDA traits are turned up to 11. She is going to be a truly radical and amazing adult. I can’t fucking wait to hang out with her when she is in her late 20’s and 30’s. Getting there is going to be a bit rough.

I tell myself a lot that I am paying Future Me by doing this work. I will get to have the adult peer relationships I want if I nail their childhoods.

Part of it is realising which of the methods I used with the older kids do not work for Shortie. She has a different life. I will now admit that I probably was using ABA tactics with the older kids. I took away fun things when they couldn’t meet my demands. I can’t do this to my youngest. Her life doesn’t have the massive amount of over-weight in the “fun” department. She hasn’t spent 2 weeks a year at Disneyland. She’s not traveling around the country. She’s not been to a bunch of exciting cultural events. She didn’t grow up with parties every 6 weeks and dozens of families she had constant contact with. She has had a fairly isolated and lonely life.

This girl needs different support and different raising. For one thing, I would be doing her a massive disservice if I encouraged her into being as bold as the older ones. The older kids and I are constantly having to navigate the challenge of being as weird as we are in this town. I hope that Shortie feels more like she belongs here when she is grown. It will always be different because she didn’t grow up in school culture. I don’t know.

I’m scared.

I keep making little steps of progress towards settling Noah’s estate. It freaks me out. I wish this process was over. A week until it has been 9 months. How naive I was to think I could be done in March or April. I couldn’t bear to think about how long it would drag out. I bat things back as quick as I can then someone in the chain is on holiday and it takes a week or two to get a response. It’s challenging. It means a lot of executive functioning from me to track stuff. I’m not doing very well at that.

I’m having a lot of brain fog. My pain levels are high. I’m getting back to exercise but it is a constant struggle.

The kids really need me to be on my A game. I feel like I’m barely squeaking out a C.

I am clearly flailing with a lot of my grief. I desperately wish that I could spend a whole year only keeping my body alive and not taking care of anyone else. Oh well. Keep moving. Instead I am going to experience a grueling several years. These babies need a lot of support. They are high needs people. I brought them into this world.

I’ve been thinking a lot lately, “I understand why I was hit so much.” I acted out even more impressively than my kids do. I struggle with not hitting anyone some days. I don’t do it! I didn’t do it long before I lived in a country where it is illegal. It’s not like I’m refraining because “it’s the law”. I don’t hit my kids because if you have to hit your kids to control them then you don’t have any control.

I am dreading the fuck out of this trip to Disneyland Paris. My 3rd time there. Shortie’s probable one and only Disney trip of her childhood. My last two times there weren’t great. Maybe it is going to go better now that my expectations are below the toilet and in the sewer? No one will be nice. People will be hostile. Expect it and get on with it. They use the name Disney but it has nothing to do with Disneyland in Anaheim and it’s not useful to expect that.

I wish Disneyland wasn’t such a poisoned experience for me. 9 days till we get on the sleeper train. 12 days until we enter the park. These countdowns used to feel more fun. Now I feel a creeping funk hitting my brain and I want to cry. Who am I kidding? I’ve been crying.

I wish I could stop crying.

I am struggling.

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There is so much my kids need right now and I can’t do it. I tried to arrange help but it didn’t work out. Shortie is out of her mind with boredom and I have no more to give. The big kids are really struggling with post covid recovery. We are all so tired. We are taking naps, often together, almost every day. We are all barely limping through each day. I’m feeling bad about all the ways I am not enough. My kids are used to having a second full time parent who is supportive and involved all day every day. I can’t replace that.

Every so often I take time out of the house to try to recharge my batteries. Yesterday was such a day. I went to an event in town that lasted half the day and I wrapped around the event having date time.

Today is the one year anniversary of my most recent rape. I’m looking forward to when I don’t remember the exact date just “after Pride”.

Today is 6.5 months after Noah dying.

Today it is almost 4 months since I started dating this guy. I’m not one to move slowly. Life doesn’t slow down for me. There is always more coming and more to cope with.

I’m feeling guilty about the fact that I think I am partly dating because outside of the intimacy of sex I don’t know how to feel comfortable with people most of the time. Gentleman and I are a funny pair. He asks me if my friends are talking shit about him. I ask him how he is adapting to having to endure me touching him. My friends aren’t talking shit. He is enjoying having someone want to touch him; it’s a novelty.

I think I am as oriented around relationships as I am because I have spent my entire life playing “Pass the parcel” with allowing my interactions with someone else guide my change. I always have to be trying to change. That’s simply mandatory.

I was telling him about Jenny, how she and I have done a lot of copying each other back and forth through our whole lives to the point where people seriously think we are sisters and sometimes the same person. He jokes that I am the bigger copy cat because I moved to Scotland and found an English guy too.

Jenny had another good friend, L, and the three of us were in the same grade at school. We did a fair bit of being friends together. I was the one who dated much older people more often. Then the two of them married men who are 15 years older than us and I married the guy who was only 5 years older. Their husbands are still moving forward and mine is not. I am not working as hard to find someone closer to my age at this point. That was not as much of a protective factor as I thought it would be.

I like Gentleman. He’s not Noah. He doesn’t feel like my home. It’s hard and weird seeing the ways that it is a good thing. I needed the threat of violence and punishment in order to feel like I was at home and having that leave my life is really hard. Noah didn’t want to harm me. He didn’t want me to flinch away from him because I was afraid. Sometimes I did flinch because I was afraid. I tried not to. Nothing makes people feel compelled to hit you like flinching and wincing. I miss him so much. I can also feel the ways that stress is leaving my body because I don’t need to be afraid of displeasing him anymore.

That feels hard to admit.

I miss him. I didn’t mind the tension of being afraid of displeasing him. I wanted to be anxious about pleasing him. I wanted that to be the focus of my life. I wanted to keep soothing his wounds and worries and terror. I wanted to be the one who made him feel safe and loved and accepted. I liked being his person. Being his safe space felt like a worthy accomplishment for my life. Now what?

I keep moving. I have to make new purpose for myself.

I don’t know if I will ever feel like I have a home again. Do I feel safe here? Sitting in this room where that shit man raped me? Sitting in this room where Noah punished me the day after I had surgery because I didn’t react right to being raped? Sitting on this couch, in fact. The rape happened on the other couch.

This room is becoming mostly the place where I am having an affair with Gentleman. I am not sad about that.

I am still sad Noah got so mad at me. I am still sad that he saw my reaction as a betrayal of him. I am still sad that he wanted to manipulate my focus through pain and fear. I am still sad that I upset him and hurt him so much that he had to hurt me back. That anniversary is still two weeks away. It’s all so recent. It is so long ago. I want to go back to the day of the last party for Pride last year. Maybe if I had not wanted to make a friend this whole thing could have been averted. Maybe I wouldn’t have been raped. Maybe Noah wouldn’t be dead. I am so sad.

Even as I try to figure out what a future with Gentleman could potentially look like I know that every cell of my body misses Noah. Noah was shitty and petty and vindictive and mean, just like me. We matched. We validated each other. He gave me purpose and belonging and a place. He made me feel wanted and needed. He made me feel like I was the most important person on the face of the earth. It was a lot of pressure and it was really hard.

It was worth it.

I am not ok and I don’t know if I ever will be again. There are good parts to my life. There are things that make me happy and there are things that bring me joy and connection. I’m doing my best to reach for the light. It’s just really hard right now. I mean, I recognise the amount of luxury and privilege in my life at the moment. I have the ability to dwell and ruminate to my heart’s content. I hate being disabled and stuck idle. At least I am safe. I don’t have to worry about survival.

Even without Noah I still have the bottom layer of Maslow’s hierarchy covered. I have most of the safety level. There is this little problem of being born into my life circumstance with my body. It’s not a safe place. But mostly I’m safe. Mostly I’m almost a person. I’m still working on every level up to self actualisation. Because I can. I know how lucky I am.

I am scared but I won’t slow down. I have to keep moving.

Backwards and forwards

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Yesterday was Noah’s birthday. He should have been 49. It will be really bad for me when I turn 49. That’s going to be savage. We spent the day cleaning the house and getting ready for my impending surgery. One day till my friend arrives to help. She wants a few days of settling in with the kids first. She is smart. Surgery is in four days. Due to the stress and vagaries of train travel I’m going the night before. I feel less resilient with Noah coming along. I think the surgery will be fine. It’s going to hurt like last time.

Unlike last time I won’t have to give a police interview 3 weeks into recovery so I’m less likely to have a sudden massive bleed out.

I’m having a hard time with my feelings. I realize that isn’t a huge shock or anything. I wish I could only remember good things about Noah. Instead my brain is going through all the memories–good and bad. Our marriage was extreme in a lot of ways I can’t nail down without feeling shame. We constructed a marriage that wouldn’t work for anyone else. Were we wrong to do so? Sometimes I can’t tell.

The part that matters to me is: I wouldn’t leave for anything. I would never have left. I would have dealt with being in pain or having to be smaller. He was worth it. He was worth everything. I loved him so much I feel I could explode. He was a very good husband for me.

I am behind on emails again. I haven’t caught up on neurotic tracking in a while. If I’m not sharing the data with Noah it feels so much less purposeful. I created data, in part so I could show Noah trends and patterns and he would decide when I had to go in and seek help for a problem. He was my designated grown up and care giver. Now I feel like I will drift in the wind because there is no one to care.

I feel so achingly lonely. I want him all the time. I miss his smile, his intense way of looking at me, how he touched me, and how made me believe I always had a place: beside him.

I feel like I will never belong anywhere again.

I am highly conscious, as I move forward as a human being who will never agree to monogamy again, that I will never feel like I belong to someone again. People will always keep a space between us for their own safety. I can’t blame them. I would too. I don’t think it safe or wise to get too close to me.

The person I am seeing keeps asking why I hard selling the benefits of being around me. Do I expect him to do the same? I don’t. I really don’t. It was one of the dominant behaviour patterns of my marriage. Noah and I both did it constantly. “See, I do x for you. It is better to have me around than to kick me out.” As if that is a healthy way to run a marriage. I am having a hard time stopping. I still feel like I am trying to beg people to not throw me away. I think part of me agrees that if I am not monogamous nothing else I do will make up for that. I am a poisoned pill.

It’s been sitting heavily in my craw that between 3 men, I have not had control over my sex life or my sexual development for about 33 years. The middle one had the least time with me, but he did a lot of the early hypnosis work that Noah built on for almost 20 years. It’s not that I lost control of my body at 10. It’s that I gained it briefly at 13. I gave it away at 19/20 (that was a muddy line). It was given back when I was 23. I regained *nothing* at 33. I did have a rebellion at 34. Now I’m getting it back permanently at 43. I pay a lot of attention to patterns. Numbers give me comfort.

As I contemplate what I need from dating, as my son likes to say, the bar is a tripping hazard in hell.

Going forward I am going to need to spend time around people who make me feel cared about. I’m going to need to spend time with people who act like I am a fascinating puzzle. I am going to need to be around people who are cautious with physical boundaries and who recoil like an electric fence when they are told no. I cannot be around people who body shame because I cannot ever be vulnerable with them. That is a sign that I am going to be attacked and I will feel deep shame. I don’t need more shame factories in my life. I really don’t.

What I need (and the reason it is worth my while to seek out) is to feel seen and appreciated.

Most people don’t make me feel like this. Very few people make me feel like this. I go through most of my life feeling intensely alienated because I can’t ask most of the people I spend the most time with to see very much about me. It creates an overwhelming deficit.

Noah used to fill that. I don’t know what to do now.

I fee sad and isolated a lot of the time. More than I deserve to, in my opinion. It will change when and if it changes. I want so much. I feel entitled to so little. Noah gave me so much. My whole life is going to be less full obsessive love after this. I will never be someone’s autistic special interest like that again. I don’t even know that I would like it again. It came with a lot of constraints. They were worth it. I miss him.

The kids are clearly well on their way to deifying him. I just nod. I don’t talk about his down sides. It’s too soon. Someday when they are bemoaning how they will never be as good as their super human father I will cackle and tell them about all the stuff they didn’t see. He was a man. He had his good parts and his bad parts. He was deeply and achingly human. He was frail in a good many ways. He was aggressive in ways he shouldn’t have been. At times he was violent. Yes, he did lose his shit. Only with me. I was his safe person, as he was mine. For people like us, part of feeling safe is being able to be all the parts we can’t use with other people. Some of those weren’t very nice.

I have intensely positive feelings about my marriage.

As I move into the next stage of my life, where I don’t have Noah to meet my needs, I have to consider other ways to meet them. It feels cold as fuck but also what else am I supposed to do? I’m not my mom to simply never date again. She had a threshold of abuse and was done forever.

I have data. I understand how low the rate of violence has been for me in terms of broader exploration. I see the fireworks of good. I can’t act like one very small part of the data set defines the whole. That’s silly. That is numerically unsupportable.

Thanks to having data I can see the positive changes in my trajectory. The kinds of people I could find at different stages of my life are very different.

I am grateful I am about to have help with the kids for a while. I need it. There are tasks I’m falling behind on because I can’t brain after this many hours on duty. I feel like my job shouldn’t be exhausting after all these years–I should be inured. I’m not. I still like my day job but I need to simplify aspects of it. I can’t be as much of a three ring circus without Noah present for support.

I am so much less capable without him papering over the cracks and finishing the last 20% of so many things. And on top of that I’m doing all the stuff he usually did entirely off-screen from me. This is hard. My brain is very overwhelmed all the time. I need to find a way to get Shortie more of a social life without me having to physically facilitate it. She needs it really badly. I’m having a hard time. The surgery recovery time is looking so brutal. Oh well.

Keep moving. Only for the first wee while it’ll be shooting for 1,000 steps a day level of “moving”. The point isn’t to keep a consistent speed the whole time. We are humans, not machines. The point is to be patient and loving and kind to myself on the far side as I struggle to regain fitness. It will be another journey. I will have to go slowly or I will hurt myself.

This process is going to be harder without Noah to fuss over me and force me to rest. He was literally looking at retiring early to be my full time carer. I’m scared. I get sick a lot. I have a compromised immune system. I don’t have a specific name for it. I just get everything and I’m down for long periods. My life doesn’t stop though. I stay sick longer because I don’t rest enough. If I don’t do too much, not enough gets done.

And now Noah won’t be here to help so there is even more work that I am responsible for. Fuck. Not all of it. His family is stepping forward to build more intense relationships to start the process of transferring intergenerational wealth. Noah turned it down throughout his life. The offer was always on the table. I’m going to say yes. I would be a fool not to. I’m going to need to pay attention to this education they are offering. I am now responsible for managing all of my money. I don’t get to wave at it and call it “Noah’s money”. I have made reasonably good choices so far. I like where I’ve gotten.

A very terrible part of me can’t help but notice that the severance payment for my first marriage is alright. Sure, the relationship was terminated but I am going to be safe forever if I manage it carefully. I can’t be profligate but I can still buy whatever groceries we want. I will never live like a tech bro again. Somehow this is karmically a place I can live with.

I have incredibly mixed feelings about the wealth transfer. I also know that I have two kids with noticeable physical disabilities and one kid where it’s too young to know. It’s connected to genetic issues in both kids. The NHS is finally starting to evaluate/track them.

I may have brought people into the world who are not well suited to the capitalist hellscape. Remains to be seen, of course. I’m not offering them a fully independent amount of help. They could have enough to live at home comfortably. I can’t promise a lot more than that. I don’t have more.

Noah doesn’t have 6 more years on his arc towards saving for retirement. There was a fair bit of input expected to get to what he wanted to hit. Oh well. Deep breath. I can turn a dime into a dollar. I will be ok. I am very good at denying Current Me things so that Future Me can have more options. I’ve been playing that game for a very long time. I can take a lot of denial in some ways and not so much in others. I will build in giving lots to other people, don’t worry. I’m still me. I am thinking really hard on the structure of that giving. I am going to have to have that firm in my head. I need guard rails and limits. I need to understand what I have to give. That’s a hard thing to figure out sometimes.

I have been told recently that I like “folky” country music. I like stories, not hard rock anthems. Guilty as charged. It’s funny. I never thought of myself as such because I had never had the slider start in that position before. Usually I’m considered not very folky. I know a handful of artists and otherwise I can’t it through it. I’m too pop.

I have been listening to a lot of old albums lately. I don’t want to watch shows. I am reading more. I like having music on. I know I should embrace silence more. I do know. I like the way I get to ride my emotions like crashing waves when I have music on while I type. It is my companion through all the highs and lows and flashes of memory.

I love the way I get to re-sort my past memories that come up. I see each circumstance differently. Noah and I ran out of arc. It is really hard to feel like I am having to go in and put a manual end on each piece of the thread. “This is over now.” I am pruning off parts of myself that grew there because I had to accommodate Noah. I have absolutely no idea what this is going to mean in the long run.

It scares me a lot.

I am going to have to be mercenary with myself about my limits going forward. I need to catch up on budget work. I need to stop allowing myself this sloppiness. I’ve been scared to look. I can’t do that anymore. I’ve been watching the overall balance and keeping an eye on that. I need to look at how things are shaking out.

Then I need to hand a number to my in laws and that’s awkward. They don’t want me to stop having all fun. They want the kids to have big lives, still.

I have the option to choose a soft life.

Globally speaking this is righteously unfair. I’m aware. I’m having feelings about that. I also don’t see any global value in grinding myself to dust. Who knows what good I will do if I have the ability to learn how to thrive instead of barely surviving in “solidarity”.

I have always done my best to pay forward the help I have received. I either have credibility or not. I am not assuring private jet lifestyles. I am making sure we won’t lose the house and we never have to worry about food.

Our life together has been a mash between what he wanted and what I wanted. Now what? What about the parts that were only there because he wanted them? I’m having a lot of feelings about that. I’m having a lot of feelings about everything right now.

This is the path. I get to traverse it, not question it. All the feelings. I’ll have all the feelings.

Even though I feel weird, I’m going to talk about him.

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I have been writing about this so prolifically in the walled garden that it is weird to figure out where to start but I feel like I should. Only talking about this on a password protected site feels too close to dishonesty.

I only managed 2 months of abstinence after Noah died. I’ve only had one period of abstinence that was longer that wasn’t medically necessary since I was 16. I don’t do so hot with abstinence. It ramps up all of my mood difficulties. It makes me very physically jittery and my anxiety spikes through the roof. I don’t feel ok physically if I am not having sex more often than most people consider normal. I’ve gotten very comfortable with the language of hypersexuality for myself.

I went looking on a swinger website, which seems to be the hopping place for casual sexual encounters for the local area. A pal from the munch recommended it. One fella made it to almost three months before his personal life shifted and he can’t have sex with me anymore. I wish him and his girlfriend many happy years of monogamy now that they have gotten to that level together. I have had a few people last a handful of times but I ended things with all of them for one reason or another. There is another one I’ve seen a few times and I need to officially end it. I’m not one for ghosting. I like clear openings and endings.

There is someone approaching three months. Due to a whole cascade of events he’s actually going to be the person staying with me after my surgery on the 8th. I have to stay overnight near the hospital in case of issues. For various reasons the surgery is happening a hundred miles away from where I live. A friend is staying with me for 5.5 weeks to help with the kids. Then I have arranged local people helping with the kids after that.

I have been calling this person Gentleman because he has an incredibly proper way about him. Some of it is me misreading his accent as being more posh than it is. A lot more of it is because of the knee jerk intensity he has towards a lot of behaviours I would consider improper. He’s intensely respectful. Every time I have expected him to be unpleasant or rude or cutting he has instead startled with shock and been incredibly kind and supportive instead. He probably doesn’t think of himself as a proper gentleman by the standards of his country. He is what I was brought up to think of as a gentleman.

He has achingly polite manners a lot of the time. He is deeply considerate. He accepts things about me that I’ve had to fight over all my life. Not in a “go limp with resignation” sort of way, he accepts me calmly and without fuss. It’s just true. I feel guilty every time I assume something negative and he comes back entirely positive or neutral.

I feel safe and comfortable with him. I’m scared he is going to turn and run every time I cry. I’m not always managing to be a fun toy. He doesn’t have a lot of expectations about me. I feel bad that I flinch as much as I do. It feels unfair. I am sad every time I know I am tense because Noah would have been upset.

I love Noah and I will until the day I die. It is also true that we were both intensely traumatised people. We had massive gangrenous wounds that had to be accounted for all day every day. We were together all day every day. I see all the ways he accommodated me and I see all the ways I accommodated him. I see the ways we were fairly abusive with each other at various points in our marriage. I’m not rewriting my marriage in the rear view. I saw all of this and wrote about it as it was happening. I talked about us screaming at each other. I talked about name calling when it happened. I talked about hitting when it happened.

I am not rewriting the story. I am seeing it come to a close and I am trying to assess the physical damage I will get to live with in the cells of my body because I shaped myself around Noah in ways that were not always healthy. I loved my marriage and I would have stayed forever. I thought he was worth the cost I paid. I would have been willing to pay twice what he cost me. He was good for me in so many ways. I don’t think I would be ok right now if I hadn’t had him. Noah gave me a home.

We both wrote quite a bit over the years about how we both believed that I would not have been capable of accepting anyone less abusive. I needed who and what Noah was.

If I had known how short our timeline was I may have made some different choices. If I had known what the timeline was then I made bad choices. I didn’t though. I was planning around 30 or 40 or 50 years together. I don’t think I made bad choices considering what I expected to have to carry. I would be ok with being a lot more burnt out in trade for giving Noah a better last year of his life. 2024 sucked. There were high points but mostly it was a brutal year from start to close.

I would have made different choices if I knew that was the last time I would have with Noah. I miss him so much that I feel like I will explode with pain. It’s been five months and I wouldn’t say I feel better. I am having more positive emotions. The lows are still pretty terrible and they are happening most days.

This is part of what I am scared to share with a new partner. I cry a lot. I always have, that’s been true for 40 years. I have always had a lot of reason to cry. This feels like it wants to swamp me the way Uncle Bob’s death did but I don’t have the structure in my life to support that much going off the rails. So I am not. I’m holding my shit together. I sneak off and I cry for some time almost every day. Some days are too busy and by the end of it I am jittery like I’ve just downed a six pack of Jolt. I cry to let the stress out of my body because it is better than almost every other way of coping.

I am having big feelings about the way I am crying with Gentleman. I have cried with him a number of times now. That’s not normal for me. Usually I hide. It is not safe to cry in front of people most of the time. I hate that I mostly could not let Noah touch me when I cried because I was really overwhelmed. It didn’t feel safe. There were too many times when I was hurting very badly and he hurt me more. He wanted to be my safe person. He would work at it really hard. Then something would happen and I would make him mad and he would hurt me again. He was always really upset that I couldn’t drop the flinch response. He didn’t want me to act like he hurt me.

I didn’t want him to flinch away from me either. Sometimes he did when I was angry and my tongue ran away with me.

He was the least bad bad guy I could find and we spent decades being deeply and overwhelmingly obsessed with each other. Sure, there were issues. It’s weird calling any of it abuse because so much of it was explicitly consented to. Even though he was allowed to treat me any way he saw fit he had to live with the consequences. Even if I said I would never leave and he could do anything he wanted to me that didn’t change the fact that I flinched really hard sometimes.

He was my white trash prince with all the violence and anger that indicates. He was also one of the kindest people I’ve ever known in my whole life. With every passing year his violence towards me was more calculated and surgical. He wanted to hurt me to shape me to be more pleasing to him. I was willing to follow anywhere he lead.

I don’t think I can have a relationship with a bad guy again. I’ve had a few encounters since I started dating. A few of these men have been deeply problematic. I’m not going to recount the wild stories right now. That’s not the point.

The point of this essay is I am having a very hard time accepting the way I am sinking into this relationship with Gentleman because he is so easy to be around. Instead of flinching I keep finding that instead I am softening. I usually start crying because I am trying to communicate about somewhere that I am worried about us developing a problem. Every time he hugs me and waits for me to be done and we move forward without there being a problem.

The fact that I want to trust him as much as I do makes me wary. That feels dangerous. He would like to be more helpful to me. He’s that flavour of man. I like doing homey care taker things for him and he’d like to do pieces of them for me. So far I am flinching away because it would bring about possible contact with the kids and it is too soon. I like arbitrary time lines. Why? Because they give me structure and purpose. Because the first 9 whole months of our relationship will overlap with the first year my kids have had to live without their father.

It feels respectful to wait.

It also feels compassionate to myself to allow someone to comfort me. Of course I only want to accept that from someone I’m having sex with. Duh. That’s my way. I have always bonded to people through sex. That’s been a big pattern. My kinky friends think I am demented because I consciously and deliberately went looking for vanilla sex. I was not looking for a pervert. I don’t need to have my boundaries pushed right now. I need the gap between my boundaries and my partner’s to be vast with me far in the lead. I need it.

I need to stop looking for bad guys.

I have stopped looking for bad guys. When a couple have wandered into my life I turned them around and pushed them right back out. Instead I am picking to double down on the people who make me feel safe. If I don’t feel safe I don’t come back. It’s really weird in my body.

I felt comfortable with Noah. I felt known. I felt accepted. I felt loved. I felt adored. I felt worshiped. Sometimes I felt safe; sometimes I didn’t. He never signed on to being my protector. It was explicit. We did the best we could by one another. In most ways I still feel absolutely convinced that he was better than I deserved.

I’m listening to a lot of songs that have been big parts of my personal soundtrack through this life. The Day Before You. The First Cut is the Deepest. I feel like my brain is trying to resort every part of my memory. There is now an end to the story arc with Noah. The songs that he sang to me with passion and fondness and tenderness cut like a knife. There’s a bunch of Irish songs that fucking wreck me. Shortie keeps asking me to play them. Noah had such a beautiful voice. He sang me to sleep or read me to sleep or talked me to sleep for two decades.

If I include the time we were engaged Noah and I lived together for just under 19 years. I lived with my cat Puff for longer than 19 years. There’s my kids; we’ll see how long they stay. My current cats have been in my house for 5.5 years. My mom’s longest stretch with me was 5 years; she also had a 3 year stretch. All the foster homes were crammed into the 10 years in the middle. I had a boyfriend I lived with for 3 years. I never made it longer than 2 years in Auntie’s house and my mom was there with me. The fostering without mom never lasted longer than a month.

I’m scared. I notice this all the time. I’m pretty terrified of being vulnerable. I am going to be. I’m exhausted all the dang time lately. I do need to start being more careful with my diet again but it’s not mostly that. Mostly I’m deeply burned out and depressed and I’m swimming through an ocean of grief. We are coping but I’m not at the top of my game. A lot more than usual is falling through the cracks. I can’t be more effective or efficient. I don’t have it to give. I’m seriously operating beyond capacity every day. I feel awful. I’m disabled and I’m doing my best to be two parents. I am getting mixed results shall I say.

I don’t feel like I have a choice. I’m aware of all the things I’m not getting done that other people manage. I feel like a loser pretty much every minute. I’m exhausted all the forking time. I feel like I don’t have a brain. I have started avoiding phone calls like they are electrical shocks.

I feel guilty for trying to construct a self that will move forward. I feel guilty because I feel like I am abandoning Noah. I’m not. I’m acting like the internet: I am routing around damage to keep going. I don’t get to stop. Maybe not ever. I am going to have to slow down a lot. I have less to give without Noah coping with all the awful parts of adulting. It’s funny because he thought I coped with the awful parts of adulting for him.

We’ve been doing a lot of talking in my house about the difference between codependence and conscious interdependence.

We’ve been doing a lot of talking in general. All of us are struggling without Noah around to talk at for hours a day. We have spent so much time together as a family and every single day is a reminder that our future looks nothing like our past. It’s really weird when I notice somewhere that I am not being difficult or blowing up in a way I commonly would because I’m not reacting to Noah. I’m not trying to head something off before it bugs him. I’m not trying to manage my emotional range for his benefit.

I didn’t expect that losing Noah means I get to soften. I don’t have to be defensive of the things he wants me to be defensive of. I can relax and not look to him to see how I’m allowed to feel. Our rhetoric was that he was watching me. I watched him too. A lot of the way he learned to control his affect and mannerism was because he was trying to not trigger me. I did the same kind of thing but it didn’t make me softer and kinder. It made me sad and wounded. I don’t want to feel like I am healing from Noah but in some ways I clearly am.

He is very much the best relationship of my life. There were still very hard parts. I’m not sure what my future looks like but it’s not going to look like my past. I won’t be going back to the day before Noah. I am not who I was. I like being Krissy Gibbs so much more than I ever liked being Krissy Archer. I am looking forward to when I will have been Krissy Gibbs longer. 6 years and 3 months to go. I’m so sad Noah won’t be with me.

I would not have accomplished 1/4 of what I did without him. He was always able to believe in me when I couldn’t believe in myself. Including believing that if he insisted hard enough I would somehow become monogamous in my spirit. There is no way to count the hundreds of hours we spent doing hypnosis and NLP actively trying to get me to only think of Noah.

This is how I know I am not a computer. I cannot be programmed. I cannot conform no matter how much I would like to. I am different. I would like to be able to comply and make people happen but I don’t have it to give. I’m feeling really bad about that lately. “Lately”. I have always felt bad about this. At this point I suspect that most of the disappointment for my failure to be shaped like cookie dough is only in my head. Other folks are fairly cheerful about taking me as they find me.

Other people do not look at me the way Noah did. They don’t look at me and see so much potential, if only I would stop doing _______________. For years I have struggled with how much I felt like I had to be the motor for all of us. I had to push people to get up and start chores and fucking leave the house sometimes. Noah was a cave troll. His children enjoy being such as well.

I feel like my motor has come to a stop. For a while I was hunting for sex and that gave me a huge boost of energy. Now I’m too weary to muster the energy to go end things with the last one I added. I am struggling with finding the unmitigated good from the sex with Gentleman because I am so anxious about fucking everything up. It’s pretty ridiculous of me, yet also predictable. He’s really happy to spend time with me. He takes all the opportunities he gets. He would like more. I don’t need to feel anxious. It’s silly. I’m being silly. I’m the one holding the brakes and I’m doing it for really good reasons. I’m doing it to create a safe container for my children to mourn in.

Noah was such a good father. It is going to be important for me to keep my mouth shut about the ways I’m processing Noah as a mixed figure in my life. They need Saint Noah and I need to let them have him that way. I also need to acknowledge for myself that he was a human. He was a human I loved with my whole soul. I would have stayed forever. I was comfortable with the ways we hurt each other. It was home. It was the safest home I have ever had. It was the home in which we both felt the most loved we ever felt in our lives. We were broken together and I’m not sorry.

Noah took in a feral stray and turned me into a pampered and well tended pet. He made me believe I don’t deserve to suffer the maximum amount every day of my life. That counts for a lot. Maybe someday I will even forgive myself for not being monogamous. I’m not. It’s not in my nature.

Maybe someday I will have a life in which I don’t feel like being this thing is the reason that I am irredeemably bad.

Maybe someday.

Finding my way back to me

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Today I was told that someone needs to be cautious about their landlord seeing a book about kink because it could be a problem for their housing. I live in a place that has very different boundaries than what I am accustomed to. I can’t imagine a landlord caring what people getting up to in privacy.

This kind of difference is a lot of why I haven’t written much in the past six years in public. I’ve been afraid of consequences. I will be judged on what I do and on what I don’t do. There is no way to thread this needle and be ok for everyone, people are going to be uncomfortable, if I am going to be true to myself.

When I think about the words of my friends that bounce around in my head like a pinball that will never make it to the bottom of the table I come back to a dramatic theme. Different people in different ways at different times have all told me that the thing that makes knowing me so impactful is the fact that in every single moment I am overwhelmingly, achingly myself. I hold to my values and my truth and I move forward as I have the right. I believe in the core of my being that I have the right to exist as much as anyone else does.

I was not brought into this world as an act of joy or love. That is not my fault. I can’t do anything about the rage, control, pain, and violence that brought me into being.

I am not that powerful.

I can’t do anything about the violence and sadness and unwantedness that permeated my young life. That time is over. That book is closed.

I can’t go back to the marriage where I was cherished and adored and worshiped either.

Do you notice this theme? There is no going back. There is only racing forward. People tell me that seeing me stride forward boldly without reservation makes them feel like they can too. I am not perfect. I am not waiting until I have the perfect body or all the information or I have fulfilled all the prerequisites.

I have all the confidence of a mediocre white man in Silicon Valley. 60% prepared is definitely good enough.

People keep asking me how I am doing. I don’t know. I’m getting things done. I don’t feel like I am doing anything well and I don’t feel like I am getting every ‘t’ crossed or every ‘i’ dotted. I am dropping balls all over the place. It’s frustrating. For many years Noah and I traded tasks based on who could get 90%+ done effectively. We had different strengths and we were an amazing team. Between the pair of us we went from people with deeply spiky profiles of success and failure to being absurd and superhuman. We compensated for and eliminated one another’s failures. We both got to be much more effective human beings.

Now I have to do all of Noah’s tasks too, not just the ones that I am basically competent on. I am responsible for the really hard and scary parts. I now have to be the one who does the tasks where I cry the whole time I am doing it. I feel like I am being bad and I can and should be punished for what I am doing, sometimes just because I am doing such an inadequate job.

I have a core of perfectionism I try hard to smother with a pillow. Good enough is good enough. Everything doesn’t have to be perfect. Life does not require perfection. Life just needs us to move forward. Me. I have to be thinking about me moving forward.

For many years now I have used Noah frankly as a tool to manage a lot of my physical, emotional, mental, and spiritual needs. Having him drop out of my life is devastating in a way I struggle to wrap my head around.

I’m really sad my son has to share the date of his birth with the date of his father’s death. That’s going to be painful sometimes. I will not bring it up to him. He’ll notice and it will be painful enough. He definitely doesn’t want a huge deal paid this year. No parties. No celebrations. Not this year.

It’s really hard on Shorty. That is part of why I am taking her on a trip after I recover from surgery. She needs to have more going on that give her big learning experiences. I can see how and why she is struggling to get concepts we are explaining at home because she has been so limited in environmental exposure.

I have so much to tell you all. It’s going to be hard to explain all of it in a way that makes sense quickly. I don’t have enough free time for typing. I miss you. I want to seek more integration and that means I am going to have to be more honest with you lot. I’ve been hiding in a walled garden of people who were pre-screened for wanting to talk about sex. You are just here for me and that’s a lot weirder at times.

I’ve spent a lot of time in the past few years writing about what sex means to me. It has been contentious and difficult over the entire past year. Noah and I were struggling on that front in a bunch of ways. We were also having the best sex of our marriage. Noah was laid off last February. The last 10 months of his life he was unemployed. We were trying to figure out how to get him more immediately to retirement because my body is so shitty I could use a full time care giver. We were having a ridiculous amount of sex. It was so good. It was bonding on a soul level. A lot of it was part of active magical and spiritual rituals. We were on fire together.

We worked really hard to build the fire inside me to a raging inferno. For those of you who are not Archivists (old friends who have been reading me since livejournal across many platforms) I need to say that I am a hypersexual. I mean it in a clinical sense and not in a “I like to have sex” way. I have been actively pursuing and chasing sex in a wide variety of inappropriate and then appropriate settings since I was 3. Sex has been an overwhelming driving force in my life in ways it isn’t for normal people. I did not have a time of virginity or ignorance. That is simply not my life path.

Instead I have provided that path for my children. I have been in active trauma therapy for approaching 35 years now. I work very hard on being a person who acts consciously and deliberately. I make choices about where boundaries should be based on an excessive amount of deliberation and waffling between various theories. I overthink my life.

I was raised by people who made incredibly bad choices. I don’t have a lot of strong role models in my head of who I want to be when I grow up. The only person I want to be is me. I see the person I want to be the same way I see the murals I paint in my homes. My homes erupt with plants and water and texture. I see that Future Me bursting out of me. She will know the right thing to do in an absurd number of circumstances and she will never be a twat about it because every new thing I learn unveils a thousand variations I will fail at. The more I know the more I understand I will never understand. I am a tiny drop in a hurricane.

For 18 years Noah was my path to controlling and living with my hypersexuality. He was my safe way to not expose my children to inappropriate behaviour. We were rigid about boundaries between our sex life and our kids.

Theoretical knowledge about sex? Heck yeah! These are some deeply educated mofos. They can deconstruct tropes. They are finding their own pathways into adult relationships in ways that have absolutely nothing to do with my path. I see the edges out of the periphery of my vision and carefully never look more closely. I am a nosy and invasive asshole, only I’m not. If I want my 30 year old children to respect me I have to nail this dynamic now.

What I am doing today is not about today. I am paying Future Me. Future Me will want to have the kind of relationship with her children where EVERYONE CAREFULLY DOESN’T LOOK. Cause no one is hiding or lying or being secretive. They just aren’t flaunting.

So I need to start figuring out what that means from myself as a single adult who is going to be polyamorous.

I am not going to fall into a serial monogamist pattern. Naw. That will be unstable and bad for my kids. People will not integrate with my life quickly.

For the love of Cheese, there will always be a locked door between me and my kids when I have sex. Preferably in a sound proof room. Hey wait, I have one of those.

I’m scared of this though. Not to hurt anyone’s feelings, but I’ve seen poly done in some ways I don’t want to emulate. I have known people who have done things in ways I thought were highly respectful all around. I’ve seen everything in between. I don’t live in the San Francisco Bay Area any more. I will not have the same kind of casual social tolerance for my antics. My neighbours here are probably already noticing. I’m having feelings about that. A lot of people use my road as a daily exercise destination. They comment on my weeding. They are going to notice and raise eyebrows about vehicles. That sits heavy in my belly.

Especially given how many of them stop to talk about how sad it is that Noah is gone. I live in a small town. This is a new thing. I am going to have to figure out how to allow them to have plausible deniability because I think they will want to have it. We already get along. If they can ignore things I think they will want to. I won’t shove it in their faces. I won’t flaunt my wanton lifestyle. I will let everyone only see what they want to see. I have spent a lot of time studying the social contract and I do ok in live tests.

I know how to be neither dominant nor submissive in a social situation. I am simply on a different hierarchy. Don’t worry about whether you are above or below me. We are parallel on different scales. No reason to raise your fur. I am not a threat and you can’t threaten me.

I’m sure I will be judged and there will absolutely be rumors. Since I am me I figure I ought to at least provide some actual facts for them to judge me based on. I like being judged accurately and I’ll take my medicine for what that earns me. I always have. I always accept the consequences for my mistakes as I try to learn.

I know the deal. I am not going to bother to talk back. I’ll take it and move on. I won’t slow down much. I have more mistakes to make. I have more learning I need to do. It doesn’t really matter that I am tired and I feel weary to the marrow of my bones. There is so much to do if I am going to create that Future Me I see in my head. She has been successfully speed running this game of life a lot longer than me and I’m desperate to catch up.

“If you don’t look back on yourself 18 months ago and say ‘Wow I really sucked‘ you aren’t trying hard enough.” I know, Noah. I’m trying. It’s hard to learn while this much of my brain is screaming in agony because how can you be gone? I am a tiny fraction of the person I was. I do not think I am better than I was 18 months ago this time, sweetheart. Please forgive me for this lapse in progress. Maybe in cooking? Mostly I have become less a spiky profile with a few low skills and a whole fucking flat line. I feel like I am barely moving in most areas.

My son said, “I thought we were your epilogue. Turns out we are your intermission” and it freaked me out.

I have never been single long in my whole life and that’s a bigger statement than it is for most humans. In 40 years if you add up all the months of not having sex I think it fills less than 3 or 4 years worth. I’m not sure. It’s around there.

I don’t know what this is going to be like here and I definitely don’t know what this will be like in this set and setting. I’m going to figure it out though. Since I got married I’ve had the privilege to fail upward. I don’t know if that halo will continue but I’m going to do my best to act like that privilege is like everything else I inherited from Noah. It is now mine. Not by birthright, no, I am not one of those good people. I am still shitty little me. But in my time and my place if I outlive my spouse I absorb all that they own. Some of the ways they address the mail are weird.

I am not finding my way back to me. Not really. I cannot go back. There is only forward. I am moving forward towards the me I want to be. I’m going to have a place in a little place. I’m going to know my neighbours and they are going to accept me as an ambassador of weird to varying degrees. Some of them will hate me. I’m sure I will be hassled in some ways but it doesn’t matter. I have the ability to cope.

That is something I have had since the very beginning, a lot of cope. I don’t always make wise or good decisions but good golly I get through.

I have an enormous pile of paperwork to get through because now I am responsible for my own taxes. I kind of want to throw up. I am a head of household with the IRS. I have never been that before.

My mother was my age when I was 11. I think perimenopause is hitting me harder at a younger age. The spotting is awful. I’m spotting for half a month at this point. “How are you doing?” people ask. I don’t usually tell them this. I’m looking forward to being a crone so much. I keep wanting to ask if there is a hormone that would make this happen faster. Then I could go off hormonal birth control. That may be part of the spotting, but it happened without the patch so I doubt it is the cause. I love being a neurotic, tracking, bitch.

If anything the patch has been doing really well at helping smooth out the PMDD symptoms. It’s not all bad to muck with hormones.

There are always two forms of birth control. This has been true since I was 12. I have been pregnant five times and they were all on purpose. If I were to fall pregnant despite heroic measures I would choose an abortion. I am too old and in ill health. I’m about to have the second of three surgeries to repair damage from my third child’s birth. I’m good. Factory is closed. I don’t want to get into a debate about birth control methods. I love you. I’m letting you know how I’m doing since I know you worry.

It’s been hard to talk to you. I tell you everything because you really are a whole cast of varying Ideal Narrators for me. I think of you so often. I love you. I’m so happy when you reach out and tell me how you are. Sometimes I don’t know how to respond. I am so deep in email fuckruptcy it is absurd. I don’t respond, but I read and then leave it there unread for months waiting to have the spoons to answer.

I have not gotten organising sorted. My brain is being a right cunt about admitting this level of vulnerability and opening myself up to hearing “no” when I ask. It makes me want to puke. I don’t like asking specific people for a specific thing. That is exactly my worst failure method. It took so many years before I could ask Noah. He had to actually watch me cry while I crawled around doing things for myself because I could not ask for help. He had to live with how awful that felt. He had to beg me to ask for help. He got increasingly anticipatory as the years went by because I don’t ask for help much.

When I do it falls into one of two modes: it is incredibly low stakes and a no or a yes is equally thrilling OR I am having an emergency and I am going to be in pain if you say no.

I’m not very good at managing that second part. My primary way has been to throw open the doors to the universe and ask for help with stuff of “anyone who can” and then some people throw their hats into the ring. It’s been bloody successful for me. My life has been good thanks to this approach.

I don’t know how it will work here. It’s ok. I don’t have to know yet. Future Me will know. I just have to get to her.

I’m feeling deeply conflicted about dating. I’m not replacing Noah. There is no way. There is no such thing. I am having fun. I am having opportunities for exploration and growth. I smile more than I would without the time. I say dating because I’m still trying to not be scandalous. I’m still scared. I smile more when I have shagging very soon on the calendar. There. I’ve said it. Practically on Facebook.

I have very mixed feelings about the way this feels more me centred around myself than I have been since I got married. I am not spending my days trying to earn someone else’s approval. I am doing what I want to do in service of my own happiness. Apparently my happiness is still bought with really bad jokes.

I can’t play the “you are not funny” game ever again. There are so many layers of me that will have to change. I never need to respond as Noah’s wife again.

I keep going, even when I’m crying and even when I’m scared, because Future Me looks like a really cool lady and I want to meet her. I can’t meet her if I stop.

A low key celebration

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Today my last baby turns 7. She wants clafoutis for breakfast and green soup (potato/leek) for dinner.

She is delighted that I won’t ask her to do a single chore today because it is her birthday. That’s the rule. On your birthday: no chores.

I miss Noah. I miss him in every second and it is hard to not freak out all the time. I’m actually being pretty stable. I’m keeping my shit together. I’m not yelling. I’m not being overly harsh. I’ve definitely snapped a few times and been sharp. It’s all about degrees? I am being patient. I am wrapping my babies in cotton wool while they figure out what this damage means.

I am making sure that I am not the problem.

I’m figuring out how to get my needs met and how to get support. I’m having difficult and uncomfortable conversations. They are good and important though. They are necessary. I have to learn how to talk to people other than Noah again. It’s been a lot of years of only turning inward to our pod and I can’t ask my kids for support. No parentifying in this house.

My old lawyer told me that I had to make myself happy. I can not pour from an empty bucket. I have to do stuff to make me happy. I have to make that my priority or I have nothing to give my kids. I don’t have babies anymore. I don’t have to put other peoples immediate demands above my need every minute of the day.

I will fail if I continue to try.

My limits weigh heavily on me. I’m getting more kinds of support in. I am trying to lurch towards a new normal that has elements of our old normal but with a lot more support. With Noah, we could muddle through ok with just us. I can’t alone. I am trying to find ways to ask for support but it’s hard. Asking makes me vulnerable and that scares me. I am trying to make small adjustments. It’s hard that I am making in-house adjustments and out-of-house adjustments at the same time but it is necessary. It is all necessary. Necessary doesn’t mean fun or exciting.

I’m building in places in my week where I step out to be me. Thursday mornings I am going to yoga classes then I meet some buddies for a cuppa and a blether. It’s fun. I don’t even know where I get all the pieces of language I pick up. They all feel like mine because people have spoken to me using them. They were gifted to me.

I feel Noah’s loss as a stone in my chest. It weighs me down and makes me want to cry and scream. I want to be hiding in a dark room screaming for days. I won’t. I will go take a shower. Then I’ll make a birthday girl a fancy breakfast. Then I’ll go to yoga. Then I’ll talk to my friends and I’ll smile and laugh. I hope I will feel it. I might fake the whole thing. Do the things until the things feel real. Do the things until you can accept that this is your life now. Then learn how to enjoy it.

This is hard.

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There are things I want to document but privacy and security are different things in my life now.

I have:

cancelled Noah’s cell phone contract
updated the electricity company to my information
updated the oil company with my information
sent emails to several people in the council because good golly school registration is not going well
threw myself on the mercy of several different support organisations around town
emailed new accountant to talk through pieces of the hand off
got him off my credit card accounts (two of them)
exchanged emails with the financial advisors about getting everything consolidated as much as possible and all in my name
I made a big fun breakfast for wishing Grandpa goodbye
I checked the oil tank level
I snapped a couple of times because I am really hitting overwhelm with video games

I need to get the kids in school. What we are doing isn’t healthy or sustainable and I don’t have more to give. It is simply the reality of the situation I find myself in. I’ve been trying to contact people for 14 days now. I send messages regularly and then I either get no response or get fobbed off. It’s sounding like there may well be an inability to get placements due to over crowding. That’s going to be fucking festive.

I will deal with that when we have to.

The kids are safe and being played with and interacted with by a wide variety of humans. They aren’t being neglected, but I can’t teach right now. I can’t make them do things. I have to be entirely unconditional acceptance and I have this god damn trial coming.

It’s a lot to ask of my body.

I feel awful.

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It’s been 16 days and I am plowing through work as fast as I can. Folks are trying really hard to be helpful but I am not good at being helped. It took so many years for Noah to learn how to help me without setting me off into a rage. My friends are wonderful and I am grateful for their presence. Also: it is hard having people here. It is hard accepting help because people don’t do it how I would. It is hard accepting that I am going to be required to accept help for the rest of my life.

I’m feeling overwhelmed by waves of different flavours of grief. I am really struggling with how much I am only allowed tiny moments of feelings before I have to shove that shit in a box or people will start acting towards me in ways I don’t want.

When I am really upset it is hard that people rush to hug me. I want to fling people away from me. I go hard into the fight reflex and I am required to go still and limp and let other people feel better by hugging me even though it makes me feel sick. It took years for Noah to fully understand that when I am freaking out I want someone to sit near me but not to touch me. I want them out of reach. If it feels like they can reach out and touch me I am going to feel threatened and scared.

I hate that I have to perform sad in the right way. I hate that I have to accept “comfort” that makes me feel alienated and uncomfortable and kind of sick. There are times I want to hug when I am upset and I initiate at those times. It’s why I try so hard to ask people if they want to be hugged.

I am not accustomed to touching people outside my family anymore. It’s not natural at this point. It feels weird and uncomfortable. I still feel like I am wearing the Choke Chain and I am going to get in trouble if I even look at someone too long. It doesn’t matter that Noah told me that part of our relationship was over months ago. He said it and we stayed in our house together and didn’t change anything.

I miss you Noah, I’ll stay in the house with just you forever. Just come back. I was wrong when I thought I needed more than you. I need you. I just need you. My chest hurts so much I feel like I have been hit by a truck. I don’t know how to accept that he isn’t coming back.

I am having a really hard time with this whole “being strong” bullshit. I just want to go to bed for months. I don’t want to think for other people. I don’t want to help people feel like they are helping me. I don’t want to ask for help. I don’t want to be touched. I don’t want to be alone. I don’t want any of the things or options or people who are available. There is a reason I moved to the edge of nowhere to live with Noah far from anyone I knew.

I want Noah.

I hate being me so much. Noah made it bearable. I don’t know how to endure being me for lots more years without him. I don’t want to keep walking the shithole road that is my life. Yes, I have good friends. Yes, I love my children.

How many more rapists are going to come knocking at my door? I am so scared I feel like my head will explode from pain. I am not ok at all. I feel like I will never ever feel ok again. How could I be ok? Noah is gone.

I don’t feel like I have the special place in history that he had. He truly changed the course of a lot of lives. I feel pathetic, useless, and like a burden. It’s fucking humiliating filling in forms here for disability recognition. I’m not even trying to get treatment. I want the bitches to admit on paper that I am in intense pain and dramatic emotional stress every fucking day and that way I will have a UK medical record.

It is humbling having to list out all the ways Noah took care of me. I have no idea how I will survive. My life will contract and then contract again and then contract again. Whoever I had the potential to be will shrivel up like a raisin in the sun.

Noah, how could you ever fucking think I wished for your death? I didn’t want to ever live through a day without you in the world.

It’s almost like you knew that I would need a much younger tether because you knew you couldn’t outlive me. There are so many lines to be drawn between his actions in the past and this outcome. It’s like he knew how to trap me into living as long as physically possible. He stole my ability to commit suicide. I can’t ever leave these people on purpose; the cowards route is not open to me.

I am a coward though. And a weakling. And pathetic.

Noah, I am so sorry for the ways I took you for granted. I’m sorry I skipped any days of having sex. I have never before wanted to relive part of my life so I could do it better. I’ve always believed it was hard enough once. I would go back when it comes to you. If I could go back to March of 2006 I would do the whole thing differently. I’m not sure it would be better in the long run. I would have destroyed myself trying to give to you because I would not have paced myself. Maybe we wouldn’t have had kids. Maybe we wouldn’t have stayed married. I don’t know.

I just know that I miss you so much I feel like my soul is crushed under a glacier. Noah I miss you. I want you so much. You are the only one I want to have touch me. It makes other people feel better to hug me so I will accept it anyway. It doesn’t really matter. I don’t think I can feel better so maybe I shouldn’t try. I hurt so much. Time to sleep.

I want to be open.

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So here’s the thing: bad things are going to keep happening. 2024 was not a great year. I had surgery. Noah had surgery. I was sexually assaulted. Noah had a bursitis issue. My body has been well into melt-down/burn out for some time and my physical pain issues are ridiculously high.

When I felt this bad in California I had to keep working and driving. I saw a chiropractor, an acupuncturist, and a massage therapist nearly every single week in order to function. Now, I don’t function very well. I get the absolute basics done but that’s it and there is no way I would be safe to drive. I had a really intense conversation with myself when my California license was expiring. I had a few options. I could ask a friend to let me lie and change my address so I could get a new California license. Some folks have offered in the past. I could work harder to get a UK license, which would be the correct choice of course.

If I had a license I would feel compelled to use it. I would feel required to make other peoples lives better by using cars more. When I think of how much worse it often got in California because of all the driving? I thank my lucky fucking stars that I have reduced the stress on my life enough that I can control a flare this bad with yoga classes and careful pacing of exercise.

I haven’t seen any kind of physical support person since before my surgery and that was almost half a year ago. I am doing so much better physically than I used to do. I could be doing better if I had more support but that will always be true and I will not have the support so get on with it.

I can only do what I can do from this house. I don’t particularly want to move. The medical care in this city will be limited for the rest of my life. So I can’t drive. I can’t bear the strain.

I gave up having a license after 20 years of having a car meaning freedom and independence. I have lived in cars for a couple of years in non-contiguous spread out periods, never longer than 7 months at a stretch. In a real way giving up my license is giving up my normal Plan B for where I can go in an emergency.

I gave up on getting a license here after not trying very hard to start with.

That means my life will be necessarily small as I won’t ask someone else to do all the travel. That closes a lot of doors all by itself. I want to form relationships with people who live within approximately 5 miles of my house. That’s a significant limit.

I want to be open to the universe, to adventure, to opportunities but it feels like I am being closed down in ever increasing steps and it is weighing heavily on me. In a way the issue of increasing disability dovetailing with a reduction in financial status is convenient. I no longer have to consider how to manage all that disposable income. It’s simple: I don’t have it. I think I did well with it when I had it (paid off debts, built long-lasting wealth) and I think it will be ok to get off that train.

I don’t have to keep working like my life depends on it. Is that fair to embrace when everyone else does have to work in unhealthy ways to survive? There is no fair. There is no deserve. Life is unfair in every fucking way. Me working or Noah working to earn money so that we can justify the capitalist machine grinding people to dust is kinda weird. We can survive without giving our life to companies that make us miserable.

Why in the fuck should we try hard to stay in that? We do need to find ways to be part of community here, but why does it have to involve enriching someone else with our time? Because eat the rich. If we are honest about our life then we sure look like targets. Meh. When have I not been a target?

I want to be open to what comes in life. I don’t want to go forward with a specific size and shape and shopping list of what it needs to look like. I have so many limits. Creating more arbitrarily seems like a recipe for failing at life.

Keep resting

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It’s weird having a 16 year old. In many ways it feels like I should have this person basically cooked and ready to be an adult. Yet sometimes it is glaringly obvious that he still *needs* me. I’ve been antsy during this surgery recovery. I really *want* to get up and work/exercise more. I am struggling with the bullet train inner monologue of “If you sit around all the time you don’t deserve sympathy/help for your health problems. You aren’t looking after yourself so you deserve every bad thing that happens.”

He’s been talking a lot about how scared he was when he watched me have massive life threatening bleeds after surgeries. He’s kinda fucked up about it.

I am currently in the period of time where a normal person *should* return to exercising.

I am still experiencing pain. I am now in the window of time where I normally start to push myself.

Then either my skin opens or a blood vessel bursts. It’s part of a genetic condition. It’s predictable. Especially since it’s happened *in my body* several times. It’s not paranoia. It’s awareness of risk.

This is where “invisible disability” stuff is hard. It’s hard to predict and make general statements about. It’s hard to exist in a way that allows people to understand when you do and don’t need help that is friendly and kind and gentle enough that they don’t get mad at you.

Social anxiety at 11.

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I’m not doing well with people. I am grateful I have an excuse to hide in my house. Being around people feels like a horrible thing I’m doing to people. I feel deeply inadequate. I am upset that I managed to wreck one of the friendships I put the most effort into over the past five years. I am really sad that I managed to make myself unwelcome in the first vanilla community I tried to join. It is making me feel intensely more alienated and wrong.

This kind of thing is what comes up in my head when I think about myself as being bad all the time. I’m in my mid 40’s and I still don’t know how to act well enough to not get chased out of communities. That sucks.

I have a deep need for community and friendship that Noah doesn’t fill. He’s great but he’s one person. I do have a few friends here but I don’t feel welcome in the community. I am not assimilating that well. Shocking, I know. I don’t feel very likeable and it means I’m not feeling like I can or should go to things when I know the host would like me to come. I worry about inflicting myself on the other guests. I don’t want people to feel like they have to interact with me when they don’t want to.

I’m scared of the event in October. I’m going to have to manufacture a giant pretense of self esteem and confidence and right now that is sounding terrifying. I am not feeling very good about myself in ways that are hard to ignore. I’m feeling deeply unworthy. I am too high in cost and too little in return. I am a net loss.

This feeling makes me want to hide in a closet under a pile of blankets. I take extreme comfort from the knowledge that Noah thinks I am absolutely worth all the effort he puts into looking after me.

I can’t need anyone else. Just Noah. So when I feel like I do right now, where I am just a bottomless pit of need and fair I sit in a room by myself because I have nothing to give. If I have nothing to give then I need to be alone. I am a net loss when I am at full capacity. How in the fuck do I justify all that cost when I have so little value to anyone outside of my house?

I will get over feeling like this. I have felt this way before and then I stopped. I know that will happen again. It’s just going to take some time of being alone and trying to regenerate any sense in myself that anything I am or do has any value at all of any kind to anyone other than myself. I wish I had more of a sense that I just deserve to exist because of me because that is enough but I don’t.

I am deeply driven by collectivist and friend network building urges to amass a feeling of family. The trouble is, I am always too high in cost for that. It is what it is. I just don’t know how to shave off enough parts of me to cost less for people.

There is a void in my day.

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I’ve been talking to TB all day every day for four months now. It’s been really amazing. I have enjoyed climbing into his brain so much. Now I understand that doing so is going to block him from finding the future he wants and I have to stop. That’s hard. I feel like I am punishing myself.

I don’t say good morning and good night every day to anyone I don’t live with. That’s a lot of pressure for me. I’m a forgetful person. I have a lot of friends. I haven’t had a “we talk every day” friend since the Bonus Mama. I think I lost her in 2017? I feel absolutely allergic to the idea of having a friend I talk to that much ever again. I don’t trust the dynamic at all. If I talk to someone everyday for a couple of years then it is agonisingly painful when I am rejected because they don’t want to anymore or they found someone they want to talk to more. I don’t handle that detransition very well so I need to ensure that I don’t start that expectation within myself.

I have more abandonment issues than there are grains of sand in the Mojave. I maintain long-term friendships by making sure I never ask for or expect too much. I have to keep my needs to myself. I can share wants with friends easily, needs are harder. I have to be truly desperate before I will ask for help with a need. I would far rather do without or hurt myself doing it alone.

It’s why Noah works so hard at under promising and over delivering. He makes sure his actual promises to me are very conservative and easy to follow. He’s kind like that. He has learned how to be kind to me in this way.

I rarely worry about being too much for Noah. Today I was standing about 100m away from him; I was waiting for him and the kiddos to come in my vague direction. He ran over to me so that I didn’t have to stand alone. There was no reason to run. The kids were playing and having fun. He just wanted to. He didn’t want to be away from me for a second longer than he had to. He’s set the bar so high that other people can’t match it and maybe that’s ok. It sure makes the prospect of poly kind of weird. Someone has to treat me at least as well as Noah does or I am *choosing* to be less well treated every moment I spend with them.

I still believe with my entire soul that there was the potential for a life changing relationship with TB, it’s just not what he wants for his life. That’s ok. I really understand choosing hypothetical children over certain not quite enough. It’s a little funny because I don’t get told I’m the one who is not enough very often. It is fitting at its core though because I never pursued TB in the first place because I assumed I wouldn’t be good enough. Also, he’s nothing like Noah and I need Noah like I need oxygen and water.

TB fills needs I normally don’t even see in myself because they are so buried. I will go back to burying them because they are not things I can fill in my life with my current set up. It won’t kill me. These aren’t food and water and shelter kinds of needs. These are emotional needs around stability and being loved without being hurt. Noah is absolutely amazing and he loves me madly and deeply, but there’s a lot of hurt. I’m not complaining I am acknowledging.

I almost got to find out what it is like to be loved and cherished by a partner without having to endure pain to deserve it. I came really close but this is neither horseshoes nor hand grenades. It was weird seeing the possibility of finding out what that is like. It seemed alienating and impossible and improbable. Turns out I was right. That is not for me in this life.

It is breaking my heart. I wish I had never considered the possibility.

The fucking worst part is I had a hideous thought that makes me feel sick. “Since I am not a suitable partner on my own, maybe I should abort an accidental pregnancy.” I have never tied anyone to me through negligence and I will not start at this stage of my life. Elsenet I have recently done a copious amount of writing about how absolutely not ok I am with the possibility of aborting a child. Especially a fourth child. Especially an unwanted fourth child. I am the fourth unwanted child and I should have been aborted. I will be very careful and not get pregnant. I’m good at being slutty without accidental pregnancies. I feel bad inside myself about myself that I would have such a thought. I would never force someone to be with me. He’s made it clear that I am not enough. That would be true with an oops child in the picture. God that would be so unfair. This particular bit of calculus is why I’m going to have one sex filled trip with him and then not see him again. Apparently there is a hyperfertility uptick during perimenopause. My chance of getting pregnant is higher than it used to be.

Naw. Not playing with that fire a bunch over the next few years. That would be looking for pain.

Why one sex filled trip since this is not going to turn into what I wanted?

I feel like I will think about this and decide over and over and over for a long time. All the way till January. 18 weeks and 2 days. As long as we courted. As long I poured energy to trying to figure out if we could be good for each other as more than friends. That’s a good thing. That gives me time to get over feeling butthurt and go back to being excited.

I get to bang someone I have wanted to bang for 25 fucking years. That’s awesome. I’m looking forward to it. I think it is still going to be tender and sweet and loving. He is my very dear friend and we have both nursed a simmering crush all this time. Being incompatible isn’t something that either of us have done to the other. We are still good people having a good friendship with deep admiration and respect on both sides. It just so happens that I also like having sex with friends. At least I used to a long time ago in another life. I’m not so big on it here in Scotland. I am freaked out by the idea and I can’t consider it.

I feel scared about the amount of fall out that is going to be the result of this failed courtship. I would still like to do some fun travel things with him as just a friend. Maybe I am hoping that the sex is unimpressive so I can get over wanting him. That is the result after sex with quite a lot of people. Most people are not that skilled at sex and sometimes I am not up for the amount of work involved with ensuring I have good sex with someone who isn’t all that good at sex. I can do it. I can push just about anyone through having sex with me in a way that will get me off acceptably; I am both easy to get off and very skilled at directing sex.

I have very strong feelings at this point about the trip. I am not ok with “let’s see what happens”. I am going to direct this very much. I am going to go in knowing what I am trying to get out of each separate encounter. I feel bad, but I’m basically setting up how I can ensure a just and equitable transaction of emotional and physical energy. I’m not going to give more than I get. Oh fuck that.

Nope. That ship sailed away on de Nile and it ain’t ever coming back. I can’t get back on that river again. I will not put pennies in a piggy bank I will never be able to withdraw from. I’m a selfish cunt and I am not running at a surplus in my life. I now need to be a lot more fucking honest with myself about the cost I pay compared to what I am getting back. Is it enough? What do I need to do to make sure that I’m not bleeding out? I can’t have any fucking holes in my bucket and pouring energy into someone who is that actively encouraging me to invest, while planning to walk away suddenly at any point, would put a giant hole into my bucket.

The amount of hurt I feel today is 1/1,000 of what I would feel in two years. I might have started to trust that I was going to be kept come what may. I would never try to keep TB from finding a different primary if keeping me as a comet/distant secondary was a priority. It isn’t a priority for him. I can’t invest more emotionally in someone who will drop me like a hot potato for monogamy. That’s acting like it’s ok to treat me like a resource to use until something better pops up. I will not let my friend treat me so shabbily because then he would have to carry the shame for doing so.

I think at some point along the way this sounded more ok to me? I think there have been too many statements about “for the rest of your/my life”. I can no longer put any trust in the words that are being said. They are not at all reflective of reality. They are things you sorta hope might come true but it’s not a serious priority or demand upon any future partners.

Maybe if I didn’t have that Mojave Desert sand depth of abandonment issues. I’m not securely attached enough in my own self to withstand the level of pain I would feel at being discarded later. That would totally fuck up my ability to parent/teach well. I can’t set my life up for that crashing pain to come down on my kids. That’s fucked up and unfair. I can’t compartmentalise well enough for them to be totally unaffected by my mental state. I have to take steps to increase stability, not make choices that make instability more likely.

“You can depend on me. I will always be there for you.”

Those two sentences really should get me running in the opposite direction as fast as I can run. Usually when someone says that I stop hearing from them soon after and then I never speak to them again. It’s a fucking death curse for my relationships. No, I can’t depend on people. No one will always be there for me. Not even Noah. Not because Noah is shitty or because he doesn’t try hard; life is fucking brutal, dude.

I had very large problems before I ever met Noah. They haven’t all completely gone away despite all the work that we’ve done. Some of these are chronic and permanent. I don’t have a choice. I am always going to fucking struggle. I do stuff for myself long past the point when someone else would complacently accept help. I will fucking cry the whole time I hold a fork but I will not allow myself to be fed. I will eat the food like a fucking dog before I will allow someone to feed me when my hands aren’t working.

I have a lot of big feelings about the increasing disability I am experiencing. I wonder if part of my freak out about TB is I’m well aware I’m going to have slim pickings for folks who want to date me as I get older and more disabled and a lot less rich. Given the reading requirement involved in dating me I might be deciding that I am theoretically poly but I never get around to it. I am fucking difficult. Lowering the admission bar would not improve the success rate, it would make it worse.

95% chance of flaming out before 6 months. I’ve got statistics based on a significant enough sample size that I can use percentages. Yup.

I am difficult and demanding and exacting and way happier being alone over putting up with bullshit. I also have a husband who acts like I hung the fucking moon. I am not in any way deficient in sexual attention.

I spent four months helping a friend learn how to have a variety of adult relationship conversations that he otherwise would have had difficulty with down the line. I can’t call it mentoring because I sure as shit did it with the plan to fuck him. I made sure this vanilla monogamous person was going to be making a well informed decision with regard to the risk involved in being in a relationship with me. There are lot of implications to joining my life. It exists in a lot of layers and either you are in it or you are someone I talk to sometimes.

I’m not being mean. I have to keep walking. No matter what I feel or what happens to me I have to keep walking until I can’t walk anymore and then I will fucking crawl. I will fucking horrify the NHS because I’m not going to ask for help until it’s pretty ridiculous. They will scold me for not calling them in sooner to help. After all I am entitled.

I don’t really believe I am entitled to much in this life. I have acquired much. I am doing what I can to make this house into a place that will survive for a generation after me before needing more significant repair work. Sure, someone will probably paint over my art. I know. Deep sigh. My kids will have a secure home from which to figure out their lives. I’m not promising to make them rich enough to not need jobs but they will be able to survive without assistance from the government and without needing a job like Noah’s. I am planning as hard as I can for a future where we don’t need that kind of money anymore to be ok. I have been paying Future Us hand over fist in a variety of ways that will outlast me.

I think our days of regular, unplanned, expensive travel are over. I don’t think we can come to the weddings. If Noah hadn’t lost the last big tech job, sure we could have done all of them without a problem. We would have been on track even with the bulge of unexpected financial loss. Now he hasn’t worked in six months and it looks like his next job will be pretty much exactly how much we need to live on and we will no longer be contributing towards retirement. Awesome. That’s with a lot of cutting out expenses in terms of “what we need to live on”. I’ll need to cut expenses by 50%. I’m going to be fixing less on the house and at a much slower rate. Good thing I already got most of the biggest ones done.

Was I so intrigued by TB because I am an asshole and I wanted help fixing my house? It’s not a 0% chance. That takes the air out of my balloon in terms of being indignant about him not wanting me. Am I mad about the benefits I won’t get? Don’t get all self righteous here, Krissy. Sure he wants to keep getting the emotional support benefits without the commitment. Are my motives actually only pure and altruistic or some bullshit like that?

Probably not. I’m a selfish cunt. Yo, brutal honesty dictates I say that I was frankly concerned about the mismatch in physical size for intimate matters. That was going to be a difficult thing for me. Combining that mismatch with the other disparities in sexual preferences I wouldn’t be getting so much out of the sex that it would fill up my end of need for emotional support.

I have a high opinion of the value of the support I offer as a partner. Demanding high return support in exchange has historically resulted in my life steadily improving and me having increasingly healthy and positive relationships.

I feel weird about that kind of a statement right now. It feels like a pie crust promise. It feels like a big claim without evidence. I don’t jump into bed with everyone I want to be friends with because it’s the primary way I know to get people to like me. It’s been more than 8 years since I’ve had sex with a friend. Holy moly it is the longest stretch of monogamy in my life. I think twice as long as previous stints? Why do I want it to end so much?

I have a narrow window. For one week I will have a travel boyfriend that I will have a lot of fun with. I have negotiated it painstakingly with my husband so that I can be as respectful as possible of his feelings through this whole experience. I think Noah will fall in love again some day. I think he will have friends he wants to have sex with. I have some hope about my ability to send him off for adventures with a big smile on my face. It will be a lot easier to do when I am not feeling constant anxiety about when TB will be dumping me. Noah and I will keep negotiating and talking. We will make friends slowly and not go out hunting for strangers/near-strangers here.

I have a husband who will give the full measure of devotion in service to my safety, health, and longevity. I don’t get to feel actual bitterness about not being so sparkly and shiny that I get to have another serious partner who is nearly so devoted. That’s a big fucking ego you have there, Krissy. Really think a lot of yourself, do you?

I guess I do. I think I need to be honest with myself and with anyone who ever tries to date me that I don’t accept inconsistency. Do not make pie crust promises while asking me to trust you. That’s not something I can work with. Know your own mind. Think about your shit. Figure out what you want. If it isn’t me then don’t waste my fucking time. I have a short life. Trying to prevent me from spending my time in ways that will build towards my long-term future is absofuckinglutely disrespectful. As I will try hard not to waste your time. It’s about respect.

I’m disabled. What I can get done in a day is distinctly finite. I have bursts of time where I overextend on a project and get an unhealthy amount done. I always pay in big and small ways.

What I do with my time is a big McFlippin Deal. Time is my most scarce resource in this life. I will be spending the vast majority of my time with my family. If a person does not particularly have any desire to integrate with that unit then they need to be a person I talk to sometimes.

I don’t have enough self to give to be doling out big chunks to a bunch of off-stage people who are not actually part of my life. It’s just math. It’s pragmatism. It’s reality. I need to treat people as not good matches for me when they are happy to use a lot of my time with no regard to the effect that has on my ability to live the life I want to lead. If someone does not notice or care about the holistic reality of my life then I need to keep them in a small box away from my life where I limit how far down the rabbit hole I go.

I need to believe that I deserve a good match. There is a void in my day right now because I want to be poking TB. I don’t want to though. I want to be poking in the direction of a fantasy I had, which isn’t at all the same thing as poking him. I want to be poking at a partner who is doing work to making themself better actively like I am to remind one another that there is fun in trade for the hard and the boring. “Hey asshole, poke your husband.”

I do. I poke and prod and talk to him all day long. I have a lot of RAM in my brain. Once he gets a job I won’t be able to take up all his time like I have been doing. Holy cheese I’m looking forward to retirement. I could keep more people busy. God I am a bottomless pit of need. I don’t want to do it for someone where I don’t get the long run benefit of nipping at their heels to get them to run just a little faster. It’s a lot of fucking energy.

The trade value for my time as a girlfriend experience is quite high. It’s not your soul but it’s pretty close.That is probably a highly inappropriate amount of hubris. Oh well. The down side is less time spent with people who don’t want to put much energy into me. That doesn’t sound like a down side when I say it like that. It kind of sounds like healthy self regard.

I don’t have a lot of unrequited loves left to come knocking. I think the ties of the past are finally fraying. I think that going forward it’s going to be a very weird process. Good thing I am primarily interested in making friends. That is a worthy endeavour and I strive to not have a lot of standards and demands for friends. Friends are free to be whatever kinds of fuck offs they want to be. It doesn’t impact my life too badly because of boundaries. I keep people in small boxes.

My standards for Noah are shockingly high at this point in a lot of ways. Very low in other ways. I don’t ever get to expect my birthday to be a good day for me. The most peaceful birthdays I spend alone. I don’t have expectations of anyone that way. I don’t have to take care of anyone. I don’t have to carefully monitor my tone to ensure that I am being respectful even when I feel shitty. My birthday is not a day that is good for me. TB has long since proposed me spending my birthdays with him.

He offered to be the one who made sure my birthdays are special while planning to dump me if someone better comes along.

I’m 10 days out from my birthday. I am glad I am downgrading my expectations in my mind from “boyfriend” to “friend with benefits”. That means I can stringently avoid getting myself into a situation where yet another person makes my birthdays feel full of memories of not being wanted or good enough. Fuck. That really fucking hurts. That’s not a small thing to offer. I refused it instantly. No. I couldn’t do that to Noah or the kids. They would take that very personally. I can go away with Aunt Jenny and everyone wishes me well with a smile.

If I am going to get back to interviews then I need to get my sleep schedule under better control. Good night.

We’re All Mad Here

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I was reading an article that included the phrase “Mad Pride” about how mental illness has been perceived by society (mostly the US/Canada/UK) over time. It made me stop and think hard about how much my life has changed. I am in the closet now in a way I was not in California. There were times in my younger years where I would keep some things under wraps (I was militant about limiting sex life conversations with some groups of people) but mostly I didn’t hide any aspect of myself to such a degree that anyone and everyone couldn’t find out if they tried even a tiny bit.

There is a big difference between “I don’t share personal stories about my sex/romantic life with students or homeschooling parents but I write about it explicitly on my public blog” and “I took my writing private so that someone would need at least a basic understanding of the internet archive in order to find out anything about me, I stopped writing about myself publicly on any topic that might be controversial and I no longer bring up or mention most things about my past and I am actively evasive with every person who does not have connections to my former life.”

It’s different. I am feeling more comfortable in the community. I feel like I probably do not have to remain quite this guarded permanently but I feel intense gratitude towards myself that I allowed myself this runway of time to have a place in the community where I am already seen as stable and competent and fairly well educated, especially in topics that are not well understood already here. I am starting to have that boost to the ego experience of having people say, “Oh Krissy I wanted to ask you about something. I don’t understand why ____?” When that something is often related to an aspect of interpersonal communication. I’m also getting more requests than I can take when it comes to organising level responsibility for different community groups or associations. And folks are asking me how I have taught my kids (thing). That’s definitely one of my sweet spots for feeling like I am not an imposter who should shut the fuck up.

It’s not that I think everyone should do what I do… that would go poorly. What I really appreciate is when people are interested in the process of how I figured out what was right for me because understanding that process is the bit that can help other people. They will have a different right answer in the end, but maybe seeing how I made decisions that align with my values will help them crystallise what their own values are so they can feel confident in their own choice. I like talking about parenting philosophy, not parenting choices. Because we are going to make different choices and that’s absolutely great. It’s mandatory. It’s as it should be for there to be the delightful variety of folks that this world needs. But the philosophy behind parenting is a place where you can discuss motivation and intentions and you can learn from each other without getting into a pissing match about technique.

Technique is hard because it’s a minefield of traps for not understanding your own privilege when you frame what you do. Noah says that society has as much justice as it can afford. It’s complicated because often a family has as much justice as they can afford. And from family to family that is such a complicated and loaded concept that oh goodness just no. Can’t.

Anyway. The article. It goes through who is allowed to be mentally ill in public now. Who benefits from hashtag campaigns and public awareness movements around mental illness? It’s a short article but provocative in a way I agree with. I am so deeply aware of the privilege I enjoy at this point in my life.

But this privilege comes with costs too. Costs I could not have imagined when I was on the far side of that particular privilege slider.

I’ve been watching a lot more sci-fi/fantasy shows and movies recently. I am particularly drawn to things that are depicting ways that people live with an understanding of there being completely opposing truths/narrative/existanses existing all at the same time.

So, I like to talk about money. If you have been here for a while you have seen the arc of that from poverty to (I think) fairly substantial wealth. When you are new to a community you only really exist from the moment they meet you. Your past is invisible and unknowable. Ok fine with google they could look me up but they don’t. I write all over the fucking internet. I have one handle I use on every site and I am so trackable it is definitely what a security expert would frown upon and give me a lecture for. I am consistent in part because that is my absolute only talisman against being called a fraud. My story is too whack-job. But I gots receipts, bitch.

I have suppressed so much of that over the past few years. I have been so very silent. It is taking a toll.

The pendulum is going back and forth on so many different dynamics in my life. In one way I feel like my kids just got out of a big disequilibrium period (or at least some combination of them) and I am slamming my way into one with full force and fury. There are a whole bunch of things that are not working and I need them to change.

I say over and over that disequilibrium is a necessary feeling for everyone because without it you probably won’t grow. You will get complacent and comfortable and you won’t want to face the terror and uncertainty and pain that comes with change. I have to get angry to have the force to demand change. I have to feel like I will wreck big things if the change doesn’t happen.

I am doing a med change. Amitriptyline and Lisdexamfetamine are not working for me anymore. There are enough negative symptoms with using them that I just cannot. Sex just hasn’t been happening. I’m not happy. I’ve been intermittently explosively raging for quite a while and it’s just not ok. I don’t like me. I need Patience, and I don’t mean the drink made with a whole lot of bourbon.

It feels silly to say this but I want to drink less. (It’s silly to say because Noah and I both have recently put in MASSIVE orders of alcohol.) I got variety. I got stuff that I want to invite other people over and say “I have x and y for you to taste test.” I want a social gambit, I don’t plan to consume much of it myself. I is making friends.

I have a teeny tiny bit of regret about buying this house because it is huge and has been really rough to repair but I can’t tell you all about it because a Shorty has just informed me that there are gingerbread pieces waiting to be made into a house and I am all out of time.

The monsters under the bed

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Sometimes you get cocky. You think, “Hey the monsters under my bed haven’t come out for a long time. Maybe I made friends with them and they decided to leave me alone as an act of mercy. Maybe they died of natural causes. Maybe…. one of the many chemical warfare bombs I threw under their killed them. Maybe.”

Then something happens. Maybe you knock a glass off your bedside table and it shatters on the floor. Maybe a support plank in your bed gives way and makes a loud creaking sound when you move. It might be a big sound or it might be a small sound. It really doesn’t matter. There was never much sense behind the monsters coming after you anyway. They have their own agenda.

So you step lightly off your bed expecting to walk peacefully off to the bathroom to brush your teeth.

Even when they came out often you never really learned how to hop off the bed fast enough and far enough away to get away from them. Their arms are so long. They can grab you so hard and pull you so close. Their teeth when they bite you are so sharp–so terribly razor sharp. Their teeth are a bear trap. If you move very much you are going to tear the wound and make yourself bleed out. Instantly your stomach fills with the sharp, acrid, acidic, burning poison of fear.

You are always so terribly terribly afraid that even if the bleeding doesn’t kill you first your body is going to produce so much acid that you will destroy yourself from the inside. You’ve been so close in the past. The acid burned holes in you so that you could barely eat, barely sleep, it burned through the tissues of your body making terrible pain absolutely everywhere.

You will never, ever forget that pain.

So when it starts you have to first go very very still. So still that you calm down all the way to the atoms of your body. So still that it feels like if you are not careful even this paralysis might kill you. You have to slow down enough to figure out how you are going to get help.

You can’t be casual about getting help. If you ask the wrong person they think they can toss you a screwdriver or a metal nail file and tell you to pry it open yourself.

You are stupid. If the only tool that you have to hand is one that will poorly break open the seal and probably slip sideways in the blood and cause you to damage yourself even more terribly… you will use it. You are scared and you are hurting and thinking is almost an impossible task. You are desperate. Thinking requires so much will. So that first decision, “Who can I ask for help?” is maybe the first, last, and only time you will be able to think.

You have to make sure that you carefully only ask for help from people who have the right tools in their toolbox. People who have experience with this kind of atrocity. People who will neither flinch nor minimize the severity of the wound. Probably these are people who climb out of their own beds very carefully because they are currently at a détente with the monsters under their own bed. They know deep in their bones what is at stake if they fuck up.

Make no mistake, that monster wants you dead.

If you choose very carefully and you manage to pick wisely and your dear, wonderful, important friend helps you to get the trap open that doesn’t mean you have to cling to them for all of the healing. They can pack up their tools and head back on their own journey. Someone else will probably be along soon and bandages and medicine are so much easier to get help with.

It’s getting the damn trap open that usually sinks a person. That moment is do or die. That moment decides if you will have more moments. That moment when you go quiet and you pull yourself in and you weigh carefully exactly who you can ask…

It’s everything.

You had better hope you made the right friends. You had better hope they have their toolbag with them when they happen to hear your call.

Sometimes you get lucky. You can limp away. You are reminded that you did not actually kill the monsters. The war is not over. You will have to keep fighting.

But for now you can rest. Rest and heal. Be grateful that you made the right friends. Be ready to help them with their own monsters when the need arises. Because as sure as the sun will rise those monsters are going to keep trying to kill you all.

I do like to do things in contrary fashion.

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In the fall I painted spring. Now that it is spring I am painting autumn. I like to buck trends and all that. I have started on the upstairs hall. The upstairs will be sunset and the downstairs will be early dawn–I want to keep a lot of the soft pink that is currently downstairs.

Recently I was doing a video chat with an old friend and he said, “Why do you have a besom on your wall?” Because I am a witch, naturally. I think of my art as being part of how I try to change the world. It is how I try to change people’s perceptions and emotions. I am drawn to witchcraft because I believe that people have power and they should use it. Power manifests in different people in various ways and you need to figure out what your way is. I am blessed with having many ways that I influence people and I take that seriously.

For now: it’s in a hallway. I am going to do this mural with more limits for the sake of my body. I’m trying to respect the fact that I’m growing old. I got in two hours to start with so far. This one is going to take months because I am getting ollllld. I can’t upload pictures without wordpress being bitchy so I guess I won’t post the pictures here.

You just keep going

Do the best you can

Tag Archives: living with disability

Bragging

Dear Universe,

I am so proud of my babies

The line between parentification and being part of a team

It’s going to be a long 10 years.

I am struggling.

Backwards and forwards

Even though I feel weird, I’m going to talk about him.

Finding my way back to me

A low key celebration

This is hard.

I feel awful.

I want to be open.

Keep resting

Social anxiety at 11.

There is a void in my day.

We’re All Mad Here

The monsters under the bed

I do like to do things in contrary fashion.